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Health inequalities and people with intellectual disabilities
\"People with intellectual disabilities die at a younger age and have poorer health than their non-disabled peers. This is largely avoidable and is unjust. This book uses concepts from contemporary public health to provide a comprehensive evidence-based overview of: the nature and extent of the health inequalities experienced by people with intellectual disabilities; why these inequalities occur and persist; and what can and needs to be done to address these inequalities. The authors have a wealth of firsthand experience gained from years of working at the interface between disability research and public health. This experience is collected and shared in this volume, which will be an invaluable resource for practitioners, advocates, policymakers and researchers concerned with health and social care and the wellbeing of disabled people\"--Provided by publisher.
Book
The Social Construction of Intellectual Disability
Intellectual disability is usually thought of as a form of internal, individual affliction, little different from diabetes, paralysis or chronic illness. This study, the first book-length application of discursive psychology to intellectual disability, shows that what we usually understand as being an individual problem is actually an interactional, or social, product. Through a range of case studies, which draw upon ethnomethodological and conversation analytic scholarship, the book shows how persons categorized as 'intellectually disabled' are produced, as such, in and through their moment-by-moment interaction with care staff and other professionals. Mark Rapley extends and reformulates current work in disability studies and offers a reconceptualisation of intellectual disability as both a professionally ascribed diagnostic category and an accomplished - and contested - social identity. Importantly, the book is grounded in data drawn from naturally-occurring, rather than professionally orchestrated, social interaction.
eBook
Towards a Contextual Psychology of Disablism
In recent years, disability studies has been driven by a model of disability which focuses on the social and economic oppression of disabled people. Although an important counterbalance to a pathologising medical model, the social model risks presenting an impoverished and disembodied view of disability, one that ignores the psychological nature of oppression and its effects.
This innovative work argues that a psychological framework of disability is an essential part of developing a more cohesive disability movement. Brian Watermeyer introduces a new, integrative approach, using psychoanalysis to tackle the problem of conceptualising psychological aspects of life with disablism. Psychoanalytic ideas are applied to social responses to impairment, making sense of discrimination in its many forms, as well as problems in disability politics and research. The perspective explores individual psychological experience, whilst retaining a rigorous critique of social forces of oppression. The argument shows how it is possible to theorise the psychological processes and impressions of discriminatory society without pathologising disadvantaged individuals.
Drawing on sociology, social anthropology, psychology and psychoanalysis - as well as clinical material - Towards a Contextual Psychology of Disablism shapes a view of disabled subjectivity which is embodied, internal, and political. Presenting a range of conceptual ideas which describe psychological dynamics and predicaments confronting disabled people in an exclusionary and prejudiced world, this volume is an important new contribution to the literature. It will interest students and researchers of disability studies, including those working within psychology, education, health and social work.
eBook
Explicit Disability Bias in Peer Review
Iezzoni discusses his experience of being rejected in peer review, the importance of peer review in research publication improvement, and the discriminatory attitudes towards people with disability. She mentions the research study on people with physical disability and serious mental illness, funded by the Patient-Centered Outcome Research Institute (PCORI).
Journal Article
How is COVID-19 Affecting the Mental Health of Children with Special Educational Needs and Disabilities and Their Families?
Parents of children with Special Educational Needs and Disabilities in the UK (
n
= 241) were asked to describe the impact of COVID-19 on their own mental health and that of their child. An inductive content analysis of the data was undertaken. Both parents and children appear to be experiencing loss, worry and changes in mood and behaviour as a result of the rapid social changes that have occurred. Some parents reported feeling overwhelmed and described the impact of child understanding and awareness. Finally, a minority of parents reported that COVID-19 has had little impact on mental health in their family, or has even led to improvements. Implications for how to support these families in the immediate future are discussed.
Journal Article
The autistic stage : how cognitive disability changed 20th-century performance
This is a book for those who have a stake in and curiosity about the relationship between autism and the stage. Performance here covers theater to therapy, film to biography, art and beyond. If you are a theater or film critic, a speech or drama therapist, a higher education specialist or special education instructor, a parent of a child on the autism spectrum or an individual with ASD interested in theatre, this book may hold unique value for you. This work is meant to cover a range of issues and reach out to audiences, critics, professionals and parents who want to know more about performance representations of autism. One message reverberates throughout the book: each autistic person illustrates different approaches to and perspectives on life. We become richer each time we come to understand these new perspectives and performance powerfully enhances our understanding of them. Autism Spectrum Disorders include alternative modes of processing information, recording images, discoursing with others, and interpreting social scenes. In this conversation, performance can function as an analytical lens, a representational space, a means of perceptual innovation, and a therapeutic tool. The definition of autism as a disorder has evolved from its first diagnosis in the 1940s to our current frame of reference with several key revisions. These three categories-interaction, communication, and perseveration-underlie any published study of those on the autism spectrum. What has shifted in recent years is an approach to disability that positions autism as a social construction rather than a medical problem. -- Amazon.com.
Book
Profound intellectual and multiple disabilities : nursing complex needs
PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES
Nursing Complex Needs
Children and adults with profound and multiple learning disabilities (PMLD) are among the most marginalised people in society. They have some of the highest support needs and are most reliant on services. This accessible and practical text presents and promotes current best practice regarding interventions to meet the complex health needs of a person with profound and multiple learning disabilities.
Divided into two sections, Profound Intellectual and Multiple Disabilities first looks at assessing complex needs, exploring topics such as communication, maintaining health, and quality of life. Part two then discusses meeting complex needs, looking at topics such as mental health problems, epilepsy, vision impairment, aural health, respiratory health, nutrition, and dysphagia.
KEY FEATURES:
* Examines current theory and practice in supporting people with profound and multiple learning disabilities and/or complex needs
* Identifies the key knowledge and skills required by learning disability nurses and other health care professionals
* Provides evidence-based best-practice guidelines about caring for people with PMLD
* Offers insights into parent carer and professional carer experiences
eBook