Journal Article

Characterizing online crowdfunding campaigns for patients with kidney cancer

Namiri, Nikan K., Lee, Austin W., Cohen, Andrew J., Martin‐Tuite, Patrick, Hakam, Nizar, Enriquez, Anthony, Rios, Natalie, Breyer, Benjamin N., Thomas, Hannah S., Nabavizadeh, Behnam, Mmonu, Nnenaya A.

2021

Overview

Background Cancer patients incur high care costs; however, there is a paucity of literature characterizing unmet financial obligations for patients with urologic cancers. Kidney cancer patients are particularly burdened by costs associated with novel systemic treatments. This study aimed to ascertain the characteristics of GoFundMe® crowdfunding campaigns for patients with kidney cancer, in order to better understand the financial needs of this population. Methods We performed a cross‐sectional, quantitative, and qualitative analysis of all kidney cancer GoFundMe® campaigns since 2010. Fundraising metrics such as goal funds and amount raised, were extracted. Eight independent investigators collected patient, disease and campaign‐level variables from campaign stories (κ = 0.72). In addition, we performed a content analysis of campaign narratives spotlighting the primary appeal of the patient's life story. Results A total of 486 GoFundMe® kidney cancer campaigns were reviewed. The median goal funds were 10,000USD [IQR = 5000, 20,000] and the median amount raised was 1450USD [IQR = 578, 4050]. Most campaigns were for adult males (53%) and 62% of adults had children. A minority were for pediatric patients (17%). Thirty‐seven percent of adult patients were primary wage earners and 43% reported losing their job or substantially reducing hours due to illness. Twenty‐nine percent reported no insurance or insufficient coverage. Campaigns most frequently sought funds for medical bills (60%), nonmedical bills (27%), and medical travel (23%). Qualitative campaign narratives mostly emphasized patients’ hardship (46.3%) or high moral character (35.2%). Only 8% of campaigns achieved their target funds. Conclusions Despite fundraising efforts, patients with kidney cancer face persistent financial barriers, incurring both medical and nonmedical cost burdens. This may be compounded by limited or no insurance. Cancer care providers should be aware of financial constraints placed on kidney cancer patients, and consider how these may impact treatment regimens. This work spotlights online crowdfunding campaigns for patients with kidney cancer. By elucidating patient and campaign characteristics, we are able to better understand the financial needs of this population.

• Publisher: John Wiley & Sons, Inc,John Wiley and Sons Inc,Wiley
• Subject: Adult / Cancer / Cancer Prevention / Child / Cost of Illness / Costs / Cross-Sectional Studies / Crowdfunding / Crowdsourcing / Data collection / Female / Financial Stress / Fund Raising - economics / Fund Raising - methods / Fund Raising - organization & administration / Fund Raising - statistics & numerical data / fundraising / GoFundMe / Health Care Costs / Humans / insurance / Insurance Coverage - statistics & numerical data / Kidney cancer / kidney neoplasm / Kidney Neoplasms - economics / Kidney Neoplasms - therapy / Kidneys / Male / Medically Uninsured - statistics & numerical data / Original Research / Patients / Pediatrics / Personal Narratives as Topic / Qualitative Research / Urological cancer / Variables