Asset Details
Do you wish to reserve the book?
Ethics of Co-Design: Strategies for Improved Shared Decision-Making and Meaningful Partnerships in Paediatric Complex Care
Hey, we have placed the reservation for you!
By the way, why not check out events that you can attend while you pick your title.
Oops! Something went wrong.
Looks like we were not able to place the reservation. Kindly try again later.
Are you sure you want to remove the book from the shelf?
Ethics of Co-Design: Strategies for Improved Shared Decision-Making and Meaningful Partnerships in Paediatric Complex Care
Do you wish to request the book?
Ethics of Co-Design: Strategies for Improved Shared Decision-Making and Meaningful Partnerships in Paediatric Complex Care
Please be aware that the book you have requested cannot be checked out. If you would like to checkout this book, you can reserve another copy
We have requested the book for you!
Your request is successful and it will be processed during the Library working hours. Please check the status of your request in My Requests.
Oops! Something went wrong.
Looks like we were not able to place your request. Kindly try again later.
Journal Article
Ethics of Co-Design: Strategies for Improved Shared Decision-Making and Meaningful Partnerships in Paediatric Complex Care
2024
Overview
Patient-centered care is important in yielding positive health outcomes, particularly in the era of precision child health, where the values, preferences, goals, and unique experiences of children and their families ought to be at the forefront of care planning and delivery. Shared decision-making (SDM) is one facilitator of patient-centered care that allows patients, families and caregivers, and their healthcare providers (HCPs), to communicate and work collaboratively to ensure the childs care aligns with their personalized needs. There are immense benefits of SDM, including improved hospitalization experiences and outcomes. For children and youth, there are added benefits including improved coping mechanisms, improved communication and decision-making skills, enhanced knowledge in healthcare, and positive impacts to their developing autonomy and capacity. Despite these benefits, there is a lack of SDM in practice, particularly for children and youth with medical complexity (CMCs). Some of these barriers can include uncertainty about the childs needs, knowledge gaps on implementation, uncertainty regarding the childs capacity and desire for involvement, concern around navigating conversations, and power imbalances between families and HCPs. To better understand the prevalence and impact of SDM in paediatric complex care (PCC), we must first understand the experiences of SDM for patients and families. To achieve this, a co-design research study was created involving HCPs and parents of CMCs. While the aim of this study was to ideate strategies for improved SDM during hospitalization, it is also important to consider the ethical implications of collaborative research, specifically within PCC. As such, this presentation aims to evaluate the ethics of co-design methodology, particularly as it relates to family experiences and the impacts of meaningful engagement on their interactions and hospitalization, as well as assess whether this со-design study was able to reduce barriers to SDM. Through a literature search of current practices and a thematic analysis of the co-design study, it was evident that collaborative research is a valuable experience. By working with patient partners to understand their needs and experiences, participants felt that they were valued members of their childs team, and felt optimistic about the future of SDM and PCC.
Publisher
MedStar Washington Hospital Center
