Book

Sharing linked data for health research : toward better decision making

Adams, Carolyn, 1962- editor, Allen, Judy, 1953- editor, Flack, Felicity, 1969- editor

Overview

\"The genesis of this project was the experience of the authors working with researchers, data custodians, ethics committees, and linkage units over the past decade or more managing access to government administrative data for research. Our individual backgrounds, experience, and expertise meant that we brought a diverse, interdisciplinary approach to the table. We started to identify the problems: we heard from researchers that there were concerns with unjustified delay and lack of access to data for research that was in the public interest; we heard from data custodians that they found the decision-making process difficult because they did not have sufficient resources or guidance; we heard from ethics committees that they found data linkage projects complex and difficult to assess; and we heard from consumer representatives that there were concerns about privacy, transparency, community awareness, and consultation\"-- Provided by publisher.

• Publisher: Cambridge University Press
• Subject: Medical records Access control English-speaking countries. / Data protection Law and legislation English-speaking countries. / Medicine Research Law and legislation English-speaking countries. / Linked data Government policy English-speaking countries.
• ISBN: 9781108426640

Item info:

1 item available

1 item total in all locations

Holdings :

Call Number	Copies	Material	Location
K3611.R43 S53 2022	1	BOOK	AUTOSTORE