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"Allison C. Carey"
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The Precarity of Disability Rights Historically and in the Trump Administration
The United States is experiencing an attack on disability rights unprecedented since the emergence of the modern Disability Rights Movement. This paper examines the various ways in which disability rights have been undercut in 2025. To do so, I provide a theoretical framework based in rights theory to reveal the precarity of disability rights and the strategy behind the actions taken by the Trump administration. I examine four key strategies to undercut disability rights: constructing disabled people as unworthy of the status of rights-bearer, constructing threats and conflicts across rights, dismantling the infrastructure of positive rights, and rejecting the value of disability rights across relational sites. Moreover, I argue that in part the effectiveness of contemporary attacks are deeply related to American history, because disability rights have always been contentious and left vulnerable to attack.
Journal Article
Disability in the time of pandemic
\"COVID-19 has once again illuminated the ways in which health risks and negative health outcomes are tied to economic and social inequalities. Disabled people rank among those most disadvantaged in terms of education, income, and social inclusion and this exacerbated their risk of negative pandemic-related outcomes. From the start, it was clear that disabled people would be disproportionately affected by the pandemic and this solidified as the pandemic unfolded. Disability in the Time of Pandemic is a timely exploration of emerging research into the implications of the COVID-19 pandemic for people with disabilities in their varied communities and across their complex identities. Using the insights, perspectives, and methods of a variety of disciplines including Anthropology, Disability Studies, Education, Physical and Rehabilitation Therapies, Public Health, Psychology, Sociology, and Women's and Gender Studies, authors explore the initial and ongoing effects of the global pandemic on people with disabilities in Canada, India, Poland, and the United States\"--Publisher's website.
BOOK
On the Margins of Citizenship
On the Margins of Citizenship provides a comprehensive, sociological history of the fight for civil rights for people with intellectual disabilities. Allison Carey, who has been active in disability advocacy and politics her entire life, draws upon a broad range of historical and legal documents as well as the literature of citizenship studies to develop a \"relational practice\" approach to the issues of intellectual disability and civil rights. She examines how and why parents, self-advocates, and professionals have fought for different visions of rights for this population throughout the twentieth century and how things have changed over that time.Carey addresses the segregation of people with intellectual disabilities in schools and institutions along with the controversies over forced sterilization, eugenics, marriage and procreation, and protection from the death penalty. She chronicles the rise of the parents' movement and the influence of the Kennedy family, as well as current debates that were generated by the impact of the Americans with Disabilities Act passed in 1990.Presenting the shifting constitutional and legal restrictions for this marginalized group, Carey argues that policies tend to sustain an ambiguity that simultaneously promises rights yet also allows their retraction.
eBook
Disability Incarcerated
Disability Incarcerated gathers thirteen contributions from an impressive array of fields. Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently.This volume includes a preface by Professor Angela Y. Davis and an afterword by Professor Robert McRuer.
eBook
Constructing the Sociology of Disability
The sociology of disability has emerged relatively recently as a subfield in sociology and has seen growing institutionalization within the field, including the establishment of a section in the American Sociological Association. The field, however, is still emerging. There is not yet an American journal dedicated to it or more than a few textbooks. The small set of professors in this field, therefore, experience both the opportunity and the challenge of constructing the essence of the field when they teach. In this study, we draw on 25 syllabi from sociologists teaching the sociology of disability and a broader set of disability courses to examine four elements of the syllabi—course description, learning goals/objectives, course topics, and readings—to assess the presence and content of an emerging core for the discipline. For each element, we analyze the thematic range and level of agreement across syllabi. We find that professors resist relying solely on sociology, instead embracing interdisciplinary scholarship and prioritizing the voices of people with disabilities. Syllabi show little overlap in readings or authors. The highest level of agreement is found among the course descriptions and topics, especially with regard to the sociological perspective and the key concepts of sociology such as social institutions, culture, theory, and inequality.
Journal Article
Family and Disability Activism
In 2020, Pamela Block, Allison C.Carey, and Richard K.Scotch published Allies and Obstacles , which examined the tensions and connections between disability activism and parents of children with disabilities.
eBook
Disability and Community
This volume of \"Research in Social Science and Disability\" brings together interdisciplinary scholarship to examine a wide array of issues related to disability and community, a topic of critical importance academically and politically. The evolving and politically contested notions of community sit at the centre of much of the recent research on disability and, as researchers both create and reflect various ideas of membership when defining \"disability\" and aggregating individuals, their methodological decisions have significant implications for how we come to understand disability and community. This volume also examines a wide range of social institutions and practices such as education, employment, and cultural venues and the extent to which and how they include people with disabilities in the workings of these institutions. It includes research framed by a variety of theoretical perspectives and research methodologies and offers innovative ways to envision inclusive communities and, therefore, enables us to consider how to move forward to create them.
eBook
Accessibility of Pennsylvania's Victim Assistance Programs
The prevalence of sexual abuse and domestic violence among women with disabilities is at least as high as the rates experienced by women without disabilities. However, according to anecdotal accounts and preliminary research, many victim service agencies are inaccessible and do not provide appropriate support and services for people with disabilities. This study examined the physical and programmatic accessibility of 55 rape crisis, sexual assault, and domestic violence agencies throughout Pennsylvania. Findings suggest that most programs had several accessibility structures in place, such as ramps and accessible restrooms. However, fewer programs had less well-known physical and programmatic accessibility features in place to ensure equal access to services. Recommendations focus on cross-system collaboration to provide access to victim services by all victims, including those with disabilities.
Journal Article