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"Birenbaum, Arnold"
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Children, Disability, and Chronic Care
[...]premature births were 10 times more likely than non–premature births to result in that person receiving a disability pension. [...]the analysis of recent cross-sectional data derived from the 2005–2006 National Survey of Children with Special Health Care Needs chartbook (CSHCN; Health Resources and Services Administration, 2009), found that parents of children with neurologic conditions were more likely to report unmet health care needs for their child than other parents of children with special health care needs. The State Children's Health Insurance Programs (SCHIP) is a federal–state–funded program that allows families who do not qualify for Medicaid but do not have access to employer-based health insurance (or cannot afford to purchase an individual or family policy) to cover their child with preexisting conditions. (2009) reported that, Among CSHCN with neurologic conditions, those with 2 or more neurologic conditions (either at least 2 DSM conditions or 1 of each type) were more likely than CSHCN with a single DSM condition to have inadequate insurance, be uninsured, have public health insurance, and be living in poverty. (p. S348) This discussion of how mental health and neurologic disorders can create complications in the delivery of health care and other services to children with special health care needs
Journal Article
The Mentally Retarded Child in the Home and the Family Cycle
The problem of managing a retarded child in the home is considered to be made routine by emulating conventional parenthood. The mother's role performance, however, is (1) skewed in the direction of expressive versus instrumental activities (and is reversed when normal children are considered); (2) based on the advocacy of recipes that contrast sharply with her behavior (and are intended mainly for claiming that conventional routines are being followed); and (3) based on the capacity to meet expectations of other family members. Routine domestic life is possible, it is argued, so long as normal-appearing activity is both available and congruent with conventional parental roles. In both senses, it becomes less so during the retarded child's later years.
Journal Article
Patients' Rights Bills and Other Futile Gestures
To the Editor:
In her editorial on patients' rights bills, Angell (June 1 issue)
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overlooks several important positive features of managed-care systems. Most major managed-care organizations have devoted substantial resources to wellness-related activities, health-promotion and prevention programs, protocols for disease management, and other important quality-improvement strategies. Hundreds of thousands of patients have benefited from managed care's leadership in introducing innovations in immunization practices, more effective mammography, Pap smear, and colorectal-cancer screening programs,
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and the promulgation of appropriate clinical standards for improved management of both acute and chronic disorders, particularly diabetes, asthma, cardiovascular disease, and depression. The preponderance of evidence consistently . . .
Journal Article
Poverty, Welfare Reform, and Disproportionate Rates of Disability Among Children
Analysis of data from state programs providing financial assistance for needy persons and disability prevalence data led to recommendations such as expanding access to health care and quality early childhood care for at-risk children, promoting the use of behavioral health services, lowering eligibility standards, and increasing the use of Social Security Income benefits for children with disabilities. (Contains references.) (DB)
Journal Article
Toward a Theory of Role Acquisition
In attempting to learn more about the relationship between social structure and behavior, this chapter identifies the transforming conditions that promote an actor's acquisition of a noninstitutionalized role. The role concept is modified to be seen not only as an aspect of social structure, but connected to the life situation of a performer, constituting a person-role formula. Being defined according to the degree of involvement an actor will have with the proffered role, a person-role formula may be based on embracement, integration, downgrading, or avoidance. Roles are transformed into one of these possible relationships through three stages (1) role discrepancy, (2) role typification, and (3) role validation.
Journal Article
Maintain clinical services for disabled children
[...]these special providers' interventions support families.
Newspaper Article
ACA recognizes the human side
For some with insurance, they learned that when they had expensive conditions to deal with, there with upper limits on how much would be paid out during that person's lifetime. [...]out-of-pocket expenses threatened the economic well-being of a family.
Newspaper Article
Community views: ACA recognizes the human side
For some with insurance, they learned that when they had expensive conditions to deal with, there with upper limits on how much would be paid out during that person's lifetime. [...]out-of-pocket expenses threatened the economic well-being of a family.
Newspaper Article