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result(s) for
"Ellis, Alison"
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From grief, guilt pain and stigma to hope and pride – a systematic review and meta-analysis of mixed-method research of the psychosocial impact of stillbirth
by
Downe, Soo
,
Bradley, Stephanie
,
Cacciatore, Joanne
in
Adaptation, Psychological
,
Adult
,
Ending Preventable Stillbirths
2016
Background
Despite improvements in maternity healthcare services over the last few decades, more than 2.7 million babies worldwide are stillborn each year. The global health agenda is silent about stillbirth, perhaps, in part, because its wider impact has not been systematically analysed or understood before now across the world. Our study aimed to systematically review, evaluate and summarise the current evidence regarding the psychosocial impact of stillbirth to parents and their families, with the aim of improving guidance in bereavement care worldwide.
Methods
Systematic review and meta-summary (quantitative aggregation of qualitative findings) of quantitative, qualitative, and mixed-methods studies. All languages and countries were included.
Results
Two thousand, six hundred and nineteen abstracts were identified; 144 studies were included. Frequency effect sizes (FES %) were calculated for each theme, as a measure of their prevalence in the literature.
Themes ranged from negative psychological symptoms post bereavement (77 · 1) and in subsequent pregnancies (27 · 1), to disenfranchised grief (31 · 2), and incongruent grief (28 · 5), There was also impact on siblings (23 · 6) and on the wider family (2 · 8).
They included mixed-feelings about decisions made when the baby died (12 · 5), avoidance of memories (13 · 2), anxiety over other children (7 · 6), chronic pain and fatigue (6 · 9), and a different approach to the use of healthcare services (6 · 9).
Some themes were particularly prominent in studies of fathers; grief suppression (avoidance)(18 · 1), employment difficulties, financial debt (5 · 6), and increased substance use (4 · 2). Others found in studies specific to mothers included altered body image (3 · 5) and impact on quality of life (2 · 1). Counter-intuitively, Some themes had mixed connotations. These included parental pride in the baby (5 · 6), motivation for engagement in healthcare improvement (4 · 2) and changed approaches to life and death, self-esteem, and own identity (25 · 7).
In studies from low/middle income countries, stigmatisation (13 · 2) and pressure to prioritise or delay conception (9) were especially prevalent.
Conclusion
Experiencing the birth of a stillborn child is a life-changing event. The focus of the consequences may vary with parent gender and country. Stillbirth can have devastating psychological, physical and social costs, with ongoing effects on interpersonal relationships and subsequently born children. However, parents who experience the tragedy of stillbirth can develop resilience and new life-skills and capacities. Future research should focus on developing interventions that may reduce the psychosocial cost of stillbirth.
Journal Article
Systematic review to understand and improve care after stillbirth: a review of parents’ and healthcare professionals’ experiences
2016
Background
2.7 million babies were stillborn in 2015 worldwide; behind these statistics lie the experiences of bereaved parents. The first Lancet series on stillbirth in 2011 described stillbirth as one of the “most shamefully neglected” areas of public health, recommended improving interaction between families and frontline caregivers and made a plea for increased investment in relevant research.
Methods
A systematic review of qualitative, quantitative and mixed-method studies researching parents and healthcare professionals experiences of care after stillbirth in high-income westernised countries (Europe, North America, Australia and South Africa) was conducted. The review was designed to inform research, training and improve care for parents who experience stillbirth.
Results
Four thousand four hundred eighty eight abstracts were identified; 52 studies were eligible for inclusion. Synthesis and quantitative aggregation (meta-summary) was used to extract findings and calculate frequency effect sizes (FES%) for each theme (shown in italics), a measure of the prevalence of that finding in the included studies.
Researchers’ areas of interest may influence reporting of findings in the literature and result in higher FES sizes, such as;
support memory making
(53 %) and
fathers have different needs
(18 %). Other parental findings were more unexpected; Parents want
increased public awareness
(20 %) and for
stillbirth care to be prioritised
(5 %).
Parental findings highlighted lessons for staff;
prepare parents for vaginal birth
(23 %),
discuss concerns
(13 %),
give options & time
(20 %),
privacy not abandonment
(30 %),
tailored post-mortem discussions
(20 %) and
post-natal information
(30 %).
Parental and staff findings were often related;
behaviours and actions of staff have a memorable impact on parents
(53 %) whilst staff described
emotional, knowledge and system-based barriers to providing effective care
(100 %). Parents reported distress being caused by midwives hiding behind ‘doing’ and ritualising guidelines whilst staff described distancing themselves from parents and focusing on tasks as coping strategies.
Parents and staff both identified the need for improved
training
(parents 25 % & staff 57 %);
continuity of care
(parents 15 % & staff 36 %);
supportive systems & structures
(parents 50 %); and c
lear care pathways
(parents 5 %).
Conclusions
Parents’ and healthcare workers’ experiences of stillbirth can inform training, improve the provision of care and highlight areas for future research.
Journal Article
Impact of sex on severe asthma: a cross-sectional retrospective analysis of UK primary and specialist care
by
Chaudhuri, Rekha
,
Gore, Robin
,
Burhan, Hassan
in
Asthma
,
Asthma - drug therapy
,
Asthma - epidemiology
2024
IntroductionAfter puberty, females are more likely to develop asthma and in a more severe form than males. The associations between asthma and sex are complex with multiple intrinsic and external factors.AimTo evaluate the sex differences in the characteristics and treatment of patients with severe asthma (SA) in a real-world setting.MethodsDemographic, clinical and treatment characteristics for patients with SA in the UK Severe Asthma Registry (UKSAR) and Optimum Patient Care Research Database (OPCRD) were retrospectively analysed by sex using univariable and multivariable logistic regression analyses adjusted for year, age and hospital/practice.Results3679 (60.9% female) patients from UKSAR and 18 369 patients (67.9% female) from OPCRD with SA were included. Females were more likely to be symptomatic with increased Asthma Control Questionnaire-6 (UKSAR adjusted OR (aOR) 1.14, 95% CI 1.09 to 1.18) and Royal College of Physicians-3 Question scores (OPCRD aOR 1.29, 95% CI 1.13 to 1.47). However, they had a higher forced expiratory volume in 1 second per cent (FEV1%) predicted (UKSAR 68.7% vs 64.8%, p<0.001) with no significant difference in peak expiratory flow. Type 2 biomarkers IgE (UKSAR 129 IU/mL vs 208 IU/mL, p<0.001) and FeNO (UKSAR 36ppb vs 46ppb, p<0.001) were lower in females with no significant difference in blood eosinophils or biological therapy. Females were less likely to be on maintenance oral corticosteroids (UKSAR aOR 0.86, 95% CI 0.75 to 0.99) but more likely to be obese (UKSAR aOR 1.67, 95% CI 145 to 1.93; OPCRD SA aOR 1.46, 95% CI 1.34 to 1.58).ConclusionsFemales had increased symptoms and were more likely to be obese despite higher FEV1% predicted and lower type 2 biomarkers with consistent and clinically important differences across both datasets.
Journal Article
Dear Mirror: SPACEY INVADERS
by
Ellis, Alison
in
Spacey, Kevin
2004
I WAS sorry to hear Kevin Spacey was conned out of his mobile phone while walking his dog in a London park (Daily Mirror 20 April).
Newspaper Article
There's research to back pros and cons of milk
2001
Although I agree that one must be skeptical of nutritional claims made by unqualified individuals and aware of potential biases -- such as those held by animal rights activists -- I find it even more puzzling that she refers to press releases provided by the Dairy Farmers of Canada as objective and accurate resources for the public.
Newspaper Article
The Value Base of Social Work and Social Care
2009
The book enables the reader to delve as far into this area as is desired - the book's active learning style allows die reader to be informed about die subject matter, but also affords the opportunity for further research by posing thought-provoking questions which can leave die reader wanting more.
Magazine Article
Developing Advanced Skills in Practice Teaching
2009
Given die current ciimatc of practice education and its relation to professionalism, this hook addresses the importance of \"getting it right\" and serves to raise awareness of the gravitas and responsibility of practice educators to provide a wellinformed and pracrise-ready workforce for the future.
Magazine Article
Theory and Practice: A straightforward guide for social work students
2009
The light bulb logo throughout die book highlights basic but realistic questions diat generate thoughts leading to more in depdi reflections on dieory, helping to make diis book to be as \"straightforward\" as is stated in die tide.
Magazine Article
Personal effects
2006
The eldest of four, I've never felt that I missed out on anything. I always felt sorry for my friends who came from small families. I learnt responsibility, how to share, and knew from a young age that I would not always get what I wanted. I remember lots of fun times -- picnics, camping, always having...
Newspaper Article
Responding to the COVID-19 emergency : student and academic staff perceptions of academic integrity in the transition to online exams at three Australian universities
by
Laura Rook
,
Leonie Ellis
,
Darius Pfitzner
in
Academic conduct
,
Academic integrity
,
Alternative Assessment
2021
This paper explores the perceptions of academic staff and students to student cheating behaviours in online exams and other online assessment formats. The research took place at three Australian universities in July and August 2020
during the emergency transition to online learning and assessment in response to the COVID-19 pandemic. The study sought to inform decision making about the future of online exams at the participating universities. Quantitative and
qualitative data were collected using online surveys. The findings of the study led to seven key observations, most notably the need to redefine the characteristics of academic misconduct to account for changes wrought to examinations in
a digital world. The study concludes with lessons learned in relation to enhancing academic integrity in digital examinations and assessments. [Author abstract]
Journal Article