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"Forster, Cris"
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Incorporating ethical principles into clinical research protocols: a tool for protocol writers and ethics committees
A novel Protocol Ethics Tool Kit (‘Ethics Tool Kit’) has been developed by a multi-stakeholder group of the Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard. The purpose of the Ethics Tool Kit is to facilitate effective recognition, consideration and deliberation of critical ethical issues in clinical trial protocols. The Ethics Tool Kit may be used by investigators and sponsors to develop a dedicated Ethics Section within a protocol to improve the consistency and transparency between clinical trial protocols and research ethics committee reviews. It may also streamline ethics review and may facilitate and expedite the review process by anticipating the concerns of ethics committee reviewers. Specific attention was given to issues arising in multinational settings. With the use of this Tool Kit, researchers have the opportunity to address critical research ethics issues proactively, potentially speeding the time and easing the process to final protocol approval.
Journal Article
The Asthma Files: Evaluation of a multimedia package for children’s asthma education
Children’s knowledge of asthma triggers and the impact on children’s knowledge of using ‘The Asthma Files’, an interactive, educational computer program, were evaluated in this pilot study. Thirty-one children aged between seven and 14 years and diagnosed with asthma were recruited to the study. Ten boys participated in evaluating the triggers section and a questionnaire was used to determine their feelings about the program and retention of information. Children enjoyed using the package and knowledge about asthma triggers increased significantly. ‘The Asthma Files’ shows promise as an additional tool to augment existing education.
Journal Article
The Asthma Files: Evaluation of a multimedia package for children’s asthma education
Children's knowledge of asthma triggers and the impact on children's knowledge of using 'The Asthma Files', an interactive, educational computer program, were evaluated in this pilot study. Thirty-one children aged between seven and 14 years and diagnosed with asthma were recruited to the study. Ten boys participated in evaluating the triggers section and a questionnaire was used to determine their feelings about the program and retention of information. Children enjoyed using the package and knowledge about asthma triggers increased significantly. 'The Asthma Files' shows promise as an additional tool to augment existing education.
Journal Article