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32 result(s) for "Frost, Caren J."
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Modalities for teaching responsible and ethical conduct of research online: Lessons learned from an undergraduate workshop in Utah
The COVID-19 pandemic disrupted scientific research, teaching, and learning in higher education and forced many institutions to explore new modalities in response to the abrupt shift to remote learning. Accordingly, many colleges and universities struggled to provide the training, technology, and best practices to support faculty and students, especially those at historically disadvantaged and underrepresented institutions. In this study we investigate different remote learning modalities to improve and enhance research education training for faculty and students. We specifically focus on Responsible and Ethical Conduct of Research (RECR) and research mentoring content to help address the newly established requirements of the National Science Foundation for investigators. To address this need we conducted a workshop to determine the effectiveness of three common research education modalities: Live Lecture, Podcast, and Reading. The Live Lecture sessions provided the most evidence of learning based on the comparison between pre- and post-test results, whereas the Podcast format was well received but produced a slight (and non-significant) decline in scores between the pre- and post-tests. The Reading format showed no significant improvement in learning. The results of our workshop illuminate the effectiveness and obstacles associated with various remote learning modalities, enabling us to pinpoint areas that require additional refinement and effort, including the addition of interactive media in Reading materials.
The limited use of US residual newborn screening dried bloodspots for health disparity research
State-run newborn screening programs screen nearly all babies born in the United States at the time of delivery. After newborn screening has been completed, some states store the residual dried bloodspots. It is unknown how they have been used to address health disparities–related research. In 2017–2018, a scoping review was conducted to evaluate the extent, type, and nature of how residual dried bloodspots. The review included 654 eligible publications, worldwide, published before May 2017. A post hoc analysis of the US-based studies using residual dried bloodspots (n=192) were analyzed. There were 32 (16.7%) articles identified that studied a condition of a known health disparity or focused on a key population: 25 studies assessed a disease or condition, 6 expressly enrolled a key population, and 1 study included both (i.e., heart disease and African American/Black). Excluding 12 studies that researched leukemia or a brain tumor, only 20 studies addressed a known health disparity, with 6 stating a specific aim to address a health disparity. This resource could be used to gain further knowledge about health disparities, but is currently underutilized.
Mothers’ Diet and Family Income Predict Daughters’ Healthy Eating
Understanding the degree to which parents may influence healthy behaviors may provide opportunities to intervene among populations at increased risk of diseases, such as breast cancer. In this study, we examined the association between daughters' healthy eating habits and family lifestyle behaviors among girls and their families by using baseline data from the LEGACY (Lessons in Epidemiology and Genetics of Adult Cancer from Youth) Girls Study. Our objective was to examine the relationship between daughters' healthy eating and family lifestyle behaviors and to compare these associations between families with and without a history of breast cancer. We examined demographic and lifestyle data from a cohort of 1,040 girls aged 6 to 13 years from year 1 (2011) of the LEGACY study. Half had a family history of breast cancer (BCFH). We used mixed-effects linear regression to assess the influence of the mother and father's physical activity, family relationship scores, the mother's diet, the family's income, and the daughter's sports participation, age, body mass index (BMI), and race/ethnicity on the daughter's Healthy Eating Index (HEI) score. Daughters' healthy eating was significantly correlated with the mother's diet (r[668] = 0.25, P = .003) and physical activity (r[970] = 0.12, P = .002), the father's physical activity (r[970] = 0.08, P = .01), and the family income (r[854] = 0.13, P = .006). Additionally, the mother's diet (β coefficient = 0.71, 95% CI, 0.46-0.88, P = .005) and family income (β coefficient = 3.28, 95% CI, 0.79-5.78, P = .002) significantly predicted a daughter's healthy eating. Analyses separated by family history status revealed differences in these associations. In families without a history of breast cancer, only the mother's diet (β coefficient = 0.62; 95% CI, 0.29-0.95; P = .001) significantly predicted the daughter's healthy eating. In families with a history of breast cancer, the mother's diet (β coefficient = 0.73, 95% CI, 0.42-1.03, P = .006) and family income (β coefficient = 6.24; 95% CI, 2.68-9.80; P = .004) significantly predicted a daughter's healthy eating. A mother's diet and family income are related to the daughter's healthy eating habits, although differences exist among families by family history of breast cancer.
Evaluating visual imagery for participant understanding of research concepts in genomics research
Informed consent is crucial for participant understanding, engagement, and partnering for research. However, current written informed consents have significant limitations, particularly for complex topics such as genomics and biobanking. Our goal was to identify how participants visually conceptualize terminology used in genomics and biobanking research studies, which might provide a novel approach for informed consent. An online convenience sample was used from May to July 2020 to collect data. Participants were asked to draw 10 randomly chosen words out of 32 possible words commonly used in consent forms for genomics and biobanking research. An electronic application captured drawings that were downloaded into a qualitative software program for analysis. A total of 739 drawings by 269 participants were captured. Participants were mostly female (61.3%), eight different race/ethnicities were represented (15.6% Black, 13.8% Hispanic), and most had some college education (68.8%). Some words had consistent visual themes such as different types of risky activities for risk or consistent specific images such as a double helix for DNA. Several words were frequently misunderstood (e.g., ascend for assent), while others returned few submissions (e.g., phenotype or whole genome sequencing). We found that although some words used in genomics and biobanking research were visually conceptualized in a common fashion, but misunderstood or less well-known words had no, few, or mistaken drawings. Future research can explore the incorporation of visual images to improve participant comprehension during consent processes, and how to utilize visual imagery to address more challenging concepts.
U.S. Men’s Perceptions and Experiences of Emergency Contraceptives
Research suggests that men should be included in reproductive health decision making to help enhance positive health outcomes for their partners. Men affect the use of contraception and what method is used. Men’s decisions may be affected by different factors such as gender, education, and the nature of their sexual relationship. A qualitative study was conducted to explore males’ experiences and perceptions about emergency contraception (EC), and the meanings males assign to EC. Semistructured in-depth focus groups were held with 15 men who engage in heterosexual activity recruited from a university setting in the United States. Participants expressed egalitarian views of the contraception decision-making processes, a sense of responsibility regarding reproductive decision making, and that society has a negative stigma toward those who use EC. However, there was a lack of knowledge regarding the copper intrauterine device, which was not viewed as a method of EC. Exploring the role and needs of men in reproductive health care discussions and research is an important and growing area. Recommendations are provided for health care practitioners, policy, and future research around men and EC.
Mindfulness-based Interventions to Improve Relational and Mental Health of Firefighters: A Mixed Methods Feasibility Study
Previous research on the physical and mental health of firefighters indicates higher risk of coronary disease, stroke, cancer, hearing loss, and decreased mobility, as well as suicide risk, depression, anxiety, and substance use than in the general population. In spite of this, there is minimal research available on evidence-based interventions to reduce the impact of high-stress and high-trauma work on the mental health and well-being of firefighters. In collaboration with the Salt Lake City Fire Department, we conducted a feasibility study to understand how psychological resilience training influences the mental and social health of firefighters. A pre-intervention survey (n = 186) provided baseline data on firefighters’ mental health and wellbeing. Domains measured were depression, anxiety, stress, post-traumatic stress disorder, substance use, suicide risk, willingness to attend couple’s therapy, and quality of life. Three hundred firefighters then received three 90-minute training sessions on MindShield™, a newly-developed trauma-informed, mindfulness-based intervention. Analysis of measurement instrument completion rates suggests firefighters were amenable to the process, though concerns about data privacy may have inhibited response on certain instruments. Qualitative data derived from four post-intervention focus groups (n = 33) informed recommendations for future intervention delivery: shorter training sessions, leaving the training with a tangible reminder of the MindShield™ tools, embedding firefighters more into the training presentation, and clarifying data access and privacy protocols. Both the intervention and measurement tools used were generally well-received, indicating MindShield™ is a feasible intervention to mitigate the impact of high-stress, high-trauma work on firefighters.
Workforce Development and Multiagency Collaborations: A Presentation of Two Case Studies in Child Welfare
Background: Two disciplines that work in the child welfare arena, social welfare and healthcare, are crucial for addressing families’ and children’s needs in social, emotional, and physical healthcare situations. How child welfare workers are trained and how healthcare teams collaborate with other stakeholders in the child welfare system is crucial in meeting and sustaining the needs of families and children. Methods: We demonstrate two case examples, one focusing on enhanced learning tools through virtual reality (VR) and the other on strengthening collaborations between healthcare teams and the child welfare system. Results: For the VR training tool, 79% of participants indicated they would recommend the VR learning tool as effective in developing skills in the child welfare workforce. In response to the learning collaborative project, child welfare participants reported positive impressions regarding collaborative practices while identifying system-level barriers to implementation. Conclusion: Findings from these two case studies provide insights from which to consider system development for designing and implementing sustainable improvements in child welfare approaches to families and children referred for suspected maltreatment.
Identifying barriers to accessing skilled maternal health care in rural Morocco
Over the past 30 years, the Moroccan government has made enormous strides towards improving maternal health care for Moroccan women, but outcomes for rural women remain much worse than those of their urban counterparts. This study aimed to understand the experiences of women giving birth in rural Morocco, and to identify the barriers they face when accessing facility-based maternity care. Fifty-five participants were recruited from villages in Morocco's rural south to participate in focus group discussions (FGDs), using appreciative inquiry as the guiding framework. Several themes emerged from the analysis of the focus group data. Women felt well-cared for and safe giving birth both at home and in the large, tertiary care hospitals, but not in the small, primary care hospitals. Women who gave birth at the primary care hospitals reported a shortage of some equipment and supplies and poor treatment at the hands of hospital staff. Locating and paying for transportation was identified as the biggest hurdle in accessing maternity care at any hospital. The findings of this study indicate the need for change within primary care health facilities. (Afr J Reprod Health 2021; 25[1]: 20-28). Au cours des 30 dernières années, le gouvernement marocain a fait d'énormes progrès vers l'amélioration des soins de santé maternelle pour les femmes marocaines, mais les résultats pour les femmes rurales restent bien pires que ceux de leurs homologues urbains. Cette étude visait à comprendre les expériences des femmes qui accouchent dans les zones rurales du Maroc et à identifier les obstacles auxquels elles sont confrontées lorsqu'elles accèdent aux soins de maternité en établissement. Cinquante-cinq participants ont été recrutés dans des villages du sud rural du Maroc pour participer à des discussions de groupes de discussion (FGD), en utilisant l'enquête reconnaissante comme cadre directeur. Plusieurs thèmes sont ressortis de l'analyse des données des groupes de discussion. Les femmes se sentaient bien soignées et en sécurité en accouchant à la maison et dans les grands hôpitaux de soins tertiaires, mais pas dans les petits hôpitaux de soins primaires. Les femmes qui ont accouché dans les hôpitaux de soins primaires ont signalé une pénurie d'équipement et de fournitures et un mauvais traitement de la part du personnel hospitalier. La localisation et le paiement du transport ont été identifiés comme le plus grand obstacle à l'accès aux soins de maternité dans n'importe quel hôpital. Les résultats de cette étude indiquent la nécessité d'un changement au sein des établissements de soins primaires.(Afr J Reprod Health 2021; 25[1]: 20-28).
The LEGACY Girls Study
BACKGROUND:Although the timing of pubertal milestones has been associated with breast cancer risk, few studies of girls’ development include girls at increased breast cancer risk due to their family history. METHODS:The Lessons in Epidemiology and Genetics of Adult Cancer from Youth (LEGACY) Girls Study was initiated in 2011 in the USA and Canada to assess the relation between early life exposures and intermediate markers of breast cancer risk (e.g., pubertal development, breast tissue characteristics) and to investigate psychosocial well being and health behaviors in the context of family history. We describe the methods used to establish and follow a cohort of 1,040 girls ages 6–13 years at baseline, half with a breast cancer family history, and the collection of questionnaire data (family history, early life exposures, growth and development, psychosocial and behavioral), anthropometry, biospecimens, and breast tissue characteristics using optical spectroscopy. RESULTS:During this initial 5-year phase of the study, follow-up visits are conducted every 6 months for repeated data and biospecimen collection. Participation in baseline components was high (98% for urine, 97.5% for blood or saliva, and 98% for anthropometry). At enrollment, 77% of girls were premenarcheal and 49% were at breast Tanner stage T1. CONCLUSIONS:This study design allows thorough examination of events affecting girls’ growth and development and how they differ across the spectrum of breast cancer risk. A better understanding of early life breast cancer risk factors will be essential to enhance prevention across the lifespan for those with and without a family history of the disease.
Health and Well-being of Women Migrating from Predominantly Muslim Countries to the United States
The purpose of this study was to examine the health and well-being of women migrating from predominantly Muslim countries to the U.S. Women from predominantly Muslim countries completed a paper survey on the following topics from June to December in 2016 (N=102): depression; physical functioning; self-reported general health; experiences with health care; and demographic characteristics. There were several women's health-related issues: low rates for mammography and Pap smear screening, and preference for female physicians and/or physicians from the same culture. Only one-third of the participants had received a physical exam in the past year, and having done so was related to higher levels of depression and worse physical functioning. The participants who were not in a refugee camp reported higher levels of depression than those who were.