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result(s) for
"Hashiloni-Dolev, Yael"
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Feminism, gender medicine and beyond: a feminist analysis of \gender medicine\
by
Koffler, Shahar
,
Hashiloni-Dolev, Yael
,
Shai, Ayelet
in
Acute coronary syndromes
,
Aggression
,
Brain research
2021
The feminist women’s health movement empowered women’s knowledge regarding their health and battled against paternalistic and oppressive practices within healthcare systems. Gender Medicine (GM) is a new discipline that studies the effect of sex/gender on general health. The international society for gender medicine (IGM) was embraced by the FDA and granted funds by the European Union to formulate policies for medical practice and research.
We conducted a review of IGM publications and policy statements in scientific journals and popular media. We found that while biological differences between men and women are emphasized, the impact of society on women is under- represented. The effect of gender-related violence, race, ethnic conflicts, poverty, immigration and discrimination on women’s health is seldom recognized. Contrary to feminist practice, GM is practiced by physicians and scientists, neglecting voices of other disciplines and of women themselves.
In this article we show that while GM may promote some aspects of women’s health, at the same time it reaffirms conservative positions on sex and gender that can serve to justify discrimination and disregard the impact of society on women’s lives and health. An alternative approach, that integrates feminist thinking and practices into medical science, practice and policies is likely to result in a deep and beneficiary change in women’s health worldwide.
Journal Article
Pregnant Genetic Counselors in an Era of Advanced Genomic Tests: What Do the Experts Test Prenatally?
by
Hashiloni-Dolev, Yael
,
Shkedi-Rafid, Shiri
in
Advaced‐genomic‐tests
,
Amniocentesis - methods
,
Best practice
2018
Advanced genomic tests in pregnancy, such as chromosomal microarray analysis (CMA), provide higher detection rates yet often produce probabilistic and uncertain information. This study aimed to understand how the most knowledgeable patients, i.e., pregnant genetic counselors, act in their own pregnancies, thereby gaining insight into the impact of patients’ knowledge on the diagnostic process. Seventeen interviews were conducted with Israeli genetic counselors, either pregnant or up to 2 years post-pregnancy. A third of the participants chose not to have CMA while two thirds underwent it despite no detected abnormalities. Although knowledge was the main motivation, counselors varied in the desired degree of information. Two thirds of those opting for CMA wished to have all findings identified whereas roughly one third asked for a targeted platform seeking to avoid uncertain results. Counselors were not quick to adopt new tests such as whole-exome sequencing. Being knowledgeable was described as promoting a sense of control yet also being a source of stress and moral dilemmas. While the basic premise of informed consent is crucial, it does not always make things easier for educated patients. Consequently, raising levels of patient knowledge is only a limited step forward in the search for best practice.
Journal Article
Genetic Counseling for Sex Chromosome Anomalies (SCAs) in Israel and Germany: Assessing Medical Risks According to the Importance of Fertility in Two Cultures
2006
In this article, I report findings from a comparative study of Israeli and German genetic counselors. Specifically, it concerns counselors' attitudes and risk assessments relating to prenatal diagnosis of sex chromosome anomalies (SCAs) such as Klinefelter and Turner syndromes. Data collected through in-depth interviews with counselors in both countries (N = 32) are presented, and the types of claims experts deploy in their personal and professional estimation of the risks involved in SCAs are analyzed. The article concludes by suggesting that the counselors rhetoric concerning SCAs, whose major manifestation is the future infertility of the unborn child as well as their estimations of the related risks, should be situated in a broader cultural context, that of local Israeli and German understandings of the importance of fertility, and not in their professional nondirective ethos. Hence, to understand the practice of genetic counselors in two late-modern societies, one must understand the unique relationship between the individual bodies of pregnant women and the body politics of their nations, a relationship mediated by the counselors, who are the bearers of knowledge and expertise in this field.
Journal Article
mtDNA tests as a vehicle for Jewish recognition of Former Soviet Union Israeli citizens: religious and political debate
2022
Until recently, in rabbinic discourse as well as Israeli state policy, Jewish identity was not reckoned via genetics. While academic studies looked for genetic similarities among Jewish communities, these similarities did not determine Jewishness or state policy. This article is the first study spotlighting the novel use of mtDNA testing in order to determine the Jewishness of Israeli citizens who immigrated to Israel from the Former Soviet Union (FSU) 1990 onward. These tests offered by the Israeli State Rabbinate are accompanied by heated political and religious wrangles, in particular between leaders of the Ultra-Orthodox Jewish community and the political party claiming to represent immigrants from the FSU. We aim to understand this current debate on determining Jewishness by mtDNA. We examine the reciprocal relationship between science, religion, communal identity and state policy, and question the possible social implications. In contrast to claims that the change in Jewish’ definition is guided by science and technology, we argue that this change is dictated primarily by specific historical and socio-political circumstances. Furthermore, enthusiasm or rejection of the use of mtDNA for Jewish recognition depends on inclusive or exclusive ideologies, not on the indecisive content of science or religion themselves.
Journal Article
Posthumous Reproduction (PHR) in Israel: Policy Rationales Versus Lay People’s Concerns, a Preliminary Study
2015
Israeli policy concerning PHR has been decided upon in an expertocratic manner, leaving the voice of the public unheard. Based on 26 semi-structured in-depth interviews with 13 Jewish-Israeli young couples, this preliminary study provides the first empirical data regarding lay attitudes toward PHR in Israel. Findings suggest major dissimilarities between the policy and lay people’s wishes and rationales. While policy is built on the “presumed wish” assumption, supposing all men living in a loving relationship wish to have their partner carry their child post-mortem, this was empirically unsupported. However, the findings suggest that many interviewees were willing to defer to their surviving spouse’s wishes to have their post-mortem child, sometimes even against their own wish, indicating a support for presumed consent. Respecting the wishes of the dead, a dominant argument in the bioethical discussion in Israel and beyond, was mainly irrelevant to informants, whereas interviewees considered the future child’s welfare, a concern overlooked by Israeli policy. Likewise, while posthumous grandparenthood is on the rise in Israel, it clearly contradicts the wishes of the majority of this study’s informants. Nonetheless, existing policy is not expected to raise any opposition, due to the extreme liberalism of the participants and their support of reproductive autonomy.
Journal Article
Unveiling the “Totem”: Haredi Newspapers During COVID-19
2023
This paper focuses on the analysis of the discourse in major Israeli ultra-Orthodox newspapers during the first year of COVID-19. Following Durkheim, we argue that the pandemic not only brought about a health emergency, but also a state of anomie. Analyzing both Hamodia and Yated Neeman—both major news outlets of the ultra-Orthodox community in Israel—we show how in a time of anomie when the sanctity of life (pikuach nefesh) conflicted with the sanctity of the community, the latter prevailed. Thus, this study unveils a different set of moral priorities than the one commonly referred to in Israeli bioethical discussions in the pre-COVID-19 era. We also found that the Durkheimian “totem” or “God” metaphors—a symbol of society itself—are highly relevant in analyzing how leaders of the Haredi community in Israel tried to keep their congregation together. This was expressed in the two heavily censored newspapers we analyzed: they placed communal living above the sanctity of individual life in a way that exposed how the cohesion of the group and the community itself were sanctified. At the same time, what was identified as the real virus was in fact secularism and not COVID-19.
Journal Article
Ethical and social implications of public–private partnerships in the context of genomic/big health data collection
by
Chneiweiss, Herve
,
Cambon-Thomsen, Anne
,
Raz, Aviad
in
Big Data
,
Big Data Data Collection / standards Genomics / ethics Humans Public-Private Sector Partnerships / ethics
,
Data collection
2024
This paper reports on the findings of an international workshop organised by the UK-France+ Genomics and Ethics Network (UK-FR + GENE) in 2022. The focus of the workshop were the ethical and social issues raised by public-private partnerships in the context of large-scale genomics initiatives in France, Germany, the United Kingdom and Israel, i.e. collaborations where commercial entities are given access to publicly held genomic data. While the public sector relies on partnerships with commercial entities to exploit the full potential of the data it holds, such collaborations may have an impact on the return of benefits to the public sector and on public trust, and subsequently challenge the social contract. The first part of this paper explores the ways in which the four countries examined respond to the challenges posed to the social contract, and what safeguards they put in place to secure public trust. The second part presents three approaches to address the challenges of private-public partnerships in secondary data use. In conclusion, this paper offers a set of minimum requirements for these partnerships within solidarity-based publicly funded healthcare systems. These include the necessity of public-private partnerships to (1) contribute to the public benefit and minimise harm produced by the use of publicly held data; (2) avoid prioritisation of commercial interests over robust governance structures to guarantee benefits to the public and protect donors, especially marginalised groups; (3) side-step the pitfalls of the rhetoric of solidarity and be transparent about the challenges to return the benefits to ‘all’.
Journal Article
Egg freezing for non-medical uses: the lack of a relational approach to autonomy in the new Israeli policy and in academic discussion
by
Hashiloni-Dolev, Yael
,
Shkedi-Rafid, Shiri
in
Academic discourse
,
Academic writing
,
Age differences
2012
Recently, the Israel National Bioethics Council (INBC) issued recommendations permitting egg freezing to prevent both disease- and age-related fertility decline. The INBC report forms the basis of Israel's new policy, being one of the first countries to regulate and authorise egg freezing for what it considers to be non-medical (ie, social) uses. The ethical discussion in the INBC report is reviewed and compared with the scant ethical discourse in the academic literature on egg freezing as a means of preventing age-related loss of fertility. We argue that both the INBC recommendations and the bioethical academic discourse on egg freezing are grounded in liberal ideology, which views technology as primarily enabling. Accordingly, they promote ‘individual autonomy’ as exercised through informed consent. Our study suggests that a relational approach to autonomy may be a more suitable model for considering women's choices about egg freezing.
Journal Article