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"Lingam, Raghu"
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Advancing integrated paediatric care in Australian general practices: Qualitative insights from the SC4C GP-paediatrician model of care
by
Germano, Stephanie
,
Wheeler, Karen
,
Le, Jane
in
Analysis
,
Australia
,
Biology and Life Sciences
2024
The Strengthening Care for Children (SC4C) is a general practitioner (GP)-paediatrician integrated model of care that consists of co-consulting sessions and case discussions in the general practice setting, with email and telephone support provided by paediatricians to GPs during weekdays. This model was implemented in 21 general practices in Australia (11 Victoria and 10 New South Wales). Our study aimed to identify the factors moderating the implementation of SC4C from the perspectives of GPs, general practice personnel, paediatricians and families. We conducted a qualitative study as part of the mixed-methods implementation evaluation of the SC4C trial. We collected data through virtual and in-person focus groups at the general practices and phone, virtual and in-person interviews. Data was analysed using an iterative hybrid inductive-deductive thematic analysis. Twenty-one focus groups and thirty-seven interviews were conducted. Overall, participants found SC4C acceptable and suitable for general practices, with GPs willing to learn and expand their paediatric care role. GPs cited improved confidence and knowledge due to the model. Paediatricians reported an enhanced understanding of the general practice context and the strain under which GPs work. GPs and paediatricians reported that this model allowed them to build trust-based relationships with a common goal of improving care for children. Additionally, they felt some aspects, including the lack of remuneration and the work and effort required to deliver the model, need to be considered for the long-term success of the model. Families expressed their satisfaction with the shared knowledge and quality of care jointly delivered by GPs and paediatricians and highlighted that this model of care provides easy access to specialty services without out-of-pocket costs. Future research should focus on finding strategies to ensure the long-term Implementation of this model of care with a particular focus on the individual stressors in general practices.
Journal Article
6906 How big is the gap? Creating a learning health system to assess inequities in hospital outcomes for Australian children from priority populations
2024
ObjectivesChild health inequity in Australia is not being systematically addressed and is limiting children from achieving optimal health and wellbeing.1 2 Closing the inequity gap in health outcomes for children and young people (CYP) from priority populations is critical.3 4 We aimed to accurately quantify inequities in health outcomes for Australian CYP.MethodsDesign, setting: Analysis of prospective electronic medical record data from Sydney Children’s Hospitals Network from 2015–2020.Participants: CYP from priority populations (Indigenous, Culturally and Linguistically Diverse, refugee/asylum seeking, Out of Home Care backgrounds and National Disability Insurance Scheme participants) aged 0–17 years.Main outcome measures: High acuity presentations, potentially preventable hospitalisations (PPH), chronic condition hospitalisations, Discharge against medical advice (DAMA), ward and critical care admission, 28-day readmission and extended length of stay (LOS).The cost of health inequity between priority and non-priority populations was calculated using mean inpatient hospital cost.ResultsAmongst 253,934 inpatient admissions and 446,924 Emergency Department (ED) attendances, priority population CYP comprised one third of all encounters. Compared to non-priority populations, priority population CYP had increased risk of PPH by 25% (relative risk [RR], 1.25; 95% confidence interval [CI], 1.23–1.27), chronic conditions by 9% (RR, 1.09; 95% CI, 1.07–1.10), DAMA by 33% (RR, 1.33; 95% CI, 1.19–1.49), ward admission by 16% (RR, 1.16; 95% CI 1.15–1.18), readmission by 48% (RR, 1.48; 95% CI, 1.42–1.53), extended inpatient LOS by 21% (RR, 1.21; 95% CI, 1.18–1.24) and ED LOS by 11% (RR, 1.11; 95% CI, 1.10–1.12). As an example of cumulative risk, Indigenous CYP living with a disability had a 239-fold increased risk of readmission compared to CYP without these risk factors (RR, 3.39; 95% CI, 2.92–3.93). Our study estimated the potential cost of health inequity at SCHN over five years. The cost of health inequity between priority and non-priority populations was more than $AUD107 million.ConclusionInequity in health outcomes in children and young people from priority populations persists and can be quantified using routine data within a learning health system that focuses on equity. Urgent interventions are required to reduce inequities in health outcomes for children from priority populations. Routinely collected data from hospital systems can form the foundation of a learning health system. This enables real-time evaluation of health system interventions driven by consumer and designed to reduce child health disparities in priority populations.ReferencesSinger R, Zwi K, Menzies R. Predictors of in-hospital mortality in aboriginal children admitted to a tertiary paediatric hospital. Int J Environ Res Public Health. 2019 May 29;16(11):1893.Joshua P, Zwi K, Moran P, White L. Prioritising vulnerable children: why should we address inequity? Child Care Health Dev. 2015 Nov;41(6):818–26.Kahn RS, Cheng TL, Mitchell MJ. A framework for pursuing child health equity in pediatric practice. Pediatr Clin North Am. 2023 Aug;70(4):629–38.Brown AF, Ma GX, Miranda J, Eng E, Castille D, Brockie T, et al. Structural interventions to reduce and eliminate health disparities. Am J Public Health. 2019 Jan;109(S1):S72–8.
Journal Article
It’s made a really hard situation even more difficult: The impact of COVID-19 on families of children with chronic illness
by
Wakefield, Claire E.
,
McLoone, Jordana
,
Pierce, Kristine
in
Australia
,
Care and treatment
,
Children
2022
For over two years, the global COVID-19 pandemic has forced major transformations on health, social, and educational systems, with concomitant impacts on mental health. This study aimed to understand the unique and additional challenges faced by children with chronic illness and their families during the COVID-19 era. Parents of children receiving treatment for a chronic illness within the neurology, cancer, renal and respiratory clinics of Sydney Children's Hospital were invited to participate. We used qualitative methodology, including a semi-structured interview guide, verbatim transcription, and thematic analysis supported by QSR NVivo. Thirteen parents of children receiving tertiary-level care, for nine chronic illnesses, participated. Parents reported intense fears relating to their ill child's additional vulnerabilities, which included their risk of developing severe COVID-19 disease and the potential impact of COVID-19-related disruptions to accessing clinical care, medications, allied health support and daily care protocols should their parent contract COVID-19. Parents perceived telehealth as a highly convenient and preferred method for ongoing management of less complex healthcare needs. Parents reported that the accrual of additional stressors and responsibilities during the pandemic, experienced in combination with restricted social interaction and reduced access to usual support networks was detrimental to their own mental health. Hospital-based visitation restrictions reduced emotional support, coping, and resilience for both parents and children and in some cases led to marital discord, sibling distress, and financial loss. Supportive factors included increased time spent together at home during the pandemic and improved hygiene practices at school, which dramatically reduced the incidence of non-COVID-19-related communicable illnesses in chronically ill children. For families caring for a chronically ill child, COVID-19 made a difficult situation harder. The pandemic has highlighted the need for targeted psychosocial intervention for vulnerable families, to mitigate current mental health burden and prevent chronic psychological distress.
Journal Article
Integrated health Services for Children: a qualitative study of family perspectives
2021
Background
There is increasing evidence that integrated care improves child related quality of life and reduces health service use. However, there is limited evidence on family perspectives about the quality of integrated care for children’s services. This study aimed to understand children, young people, and caregivers’ perceptions of a new integrated care service, and to identify essential components of integrated care for children and young people with ongoing conditions.
Methods
A qualitative analysis of in-depth interviews with caregivers and children included families (
N
= 37) with children with one of four ongoing conditions (asthma, eczema, epilepsy, constipation) who had experienced a new integrated care service delivered in South London, UK.
Results
Four key components of integrated services identified were: that the key health-worker understood the health needs of the family in context; that professionals involved children and caregivers in treatment; that holistic care that supported the family unit was provided; and that families experienced coordination across health, social, and education systems.
Conclusions
Children and families identify care navigation and a holistic approach as key components that make high quality integrated care services. Service developments strengthening these aspects will align well with family perspectives on what works and what matters.
Journal Article
The Association Between Adverse Child Health, Psychological, Educational and Social Outcomes, and Nondependent Parental Substance: A Rapid Evidence Assessment
2020
Background:
Between 5% and 30% of children in high-income countries live with a substance misusing parent, the majority of which is below dependent levels. However, little is understood about the impact of nondependent parental substance misuse upon children.
Methods:
We searched the international literature using rigorous systematic methods to identify studies examining parental substance misuse and adverse outcomes in children. The inclusion criteria were cross-sectional, longitudinal, case-control, and cohort studies; of children aged 0–18 years whose parents are high-risk substance misusers; reporting on their health, psychological, substance use, educational, and social outcomes.
Results:
We identified 36 papers (from 33 unique studies), most of which were assessed as being of medium to high methodological quality (N= 28). Parental nondependent substance misuse was found to be associated with adversity in children, with strong evidence of an association with externalizing difficulties (N = 7 papers, all finding an association) and substance use (N = 23 papers, all finding an association) in adolescents and some evidence of adverse health outcomes in early childhood (N = 6/8 papers finding an association). There is less evidence of an association between parental substance misuse and adverse educational and social outcomes. The body of evidence was largest for parental alcohol misuse, with research examining the impact of parental illicit drug use being limited.
Conclusion:
Methodological limitations restrict our ability to make causal inference. Nonetheless, the prevalence of adverse outcomes in children whose parents are nondependent substance misusers highlights the need for practitioners to intervene with this population before a parent has developed substance dependency.
Journal Article
Perceptions of oral health promotion in primary schools among health and education officials, community leaders, policy makers, teachers, and parents in Gulu district, northern Uganda: A qualitative study
by
Schutte, Aletta E.
,
Richmond, Robyn
,
Hodgins, Michael
in
Biology and Life Sciences
,
Care and treatment
,
Community
2023
One in every two cases of caries in deciduous teeth occurs in low- and middle-income countries (LMICs). The aim of the World Health Organisation's (WHO) Healthy Schools Program is to improve the oral health of children. This study explored perceptions of implementation of the Ugandan oral health schools' program in Gulu district, northern Uganda. Semi-structured interviews were conducted with a purposive sample of 19 participants including health and education officials, community leaders, policy makers, teachers, and parents. All interviews were transcribed verbatim and analysed thematically. Our study identified three themes: (1) components of oral health promotion, (2) implementation challenges of oral health promotion, and (3) development of an oral health policy. The components of oral health promotion in schools included engagement of health workers, the community, companies, skills-based education, and oral health services. Participants were concerned about insufficient funding, unsatisfactory skills-based education, and inadequate dental screening. Participants reported that there was an urgent need to develop oral health policy to guide implementation of the program at scale. Schools provided oral health promotion that aligned with existing features of the WHO's health-promoting school framework. Implementation of this strategy could be enhanced with increased resources, adequate oral health education, and explicit development of oral health policy.
Journal Article
Rural-urban differences in the mental health of perinatal women: a UK-based cross-sectional study
by
Ginja, Samuel
,
Newham, James J.
,
Jackson, Katherine
in
Adult
,
Antenatal
,
Anxiety - epidemiology
2020
Background
International data suggest that living in a rural area is associated with an increased risk of perinatal mental illness. This study tested the association between rurality and risk for two mental illnesses prevalent in perinatal women - depression and anxiety.
Methods
Using a cross-sectional design, antenatal and postnatal women were approached by healthcare professionals and through other networks in a county in Northern England (UK). After providing informed consent, women completed a questionnaire where they indicated their postcode (used to determine rural-urban status) and completed three outcome measures: the Edinburgh Postnatal Depression Scale (EPDS), the Whooley questions (depression measure), and the Generalised Anxiety Disorder 2-item (GAD-2). Logistic regression models were developed, both unadjusted and adjusted for potential confounders, including socioeconomic status, social support and perinatal stage.
Results
Two hundred ninety-five participants provided valid data. Women in rural areas (
n
= 130) were mostly comparable to their urban counterparts (
n
= 165). Risk for depression and/or anxiety was found to be higher in the rural group across all models: unadjusted OR 1.67 (0.42) 95% CI 1.03 to 2.72,
p
= .038. This difference though indicative did not reach statistical significance after adjusting for socioeconomic status and perinatal stage (OR 1.57 (0.40), 95% CI 0.95 to 2.58,
p
= .078), and for social support (OR 1.65 (0.46), 95% CI 0.96 to 2.84,
p
= .070).
Conclusions
Data suggested that women in rural areas were at higher risk of depression and anxiety than their urban counterparts. Further work should be undertaken to corroborate these findings and investigate the underlying factors. This will help inform future interventions and the allocation of perinatal services to where they are most needed.
Journal Article
Changing landscape of paediatric refugee health in South Western Sydney, Australia: a retrospective observational study
by
Hu, Nan
,
Zwi, Karen
,
Raman, Shanti
in
Child & adolescent psychiatry
,
Child protection
,
Clinics
2023
ObjectivesTo examine the changing health needs of refugee children and young people (CYP) entering Australia, in relation to key government policy changes.Study designRetrospective analysis of health service use data over 11 years.SettingPaediatric refugee clinics in South Western Sydney (SWS), the Australian region with the largest annual resettlement of refugees.ParticipantsRefugee CYP (≤25 years) attending the SWS paediatric refugee clinics for their first visit between 2009 and 2019.MeasuresClinician defined health conditions categorised as communicable and non-communicable disease (NCD).ResultsData were analysed for 359 CYP, mean age 9.3 years; 212 male (59.1%). Most CYP (n=331, 92.2%) had health problems identified; 292 (81.3%) had ≥1 NCD and 24 (6.7%) had ≥1 communicable disease. The most frequent individual NCDs were dental disease (n=128, 35.7%) and vitamin D deficiency (n=72, 20.1%). Trend analysis showed increased odds of identifying an NCD from 2013 onwards (crude OR 1.77, 95% CI 1.06 to 2.96). Neurodevelopmental problems, especially Global Developmental Delay (n=31, 8.6%), emerged as more prevalent issues in the latter half of the decade. There were significantly increased odds of identifying a neurodevelopmental problem in 2016–2019, especially in 2016–2017 (adjusted OR 2.93, 95% CI 1.34 to 6.40). Key policy changes during this period included acceptance of refugees with disabilities from 2012, additional Australian Humanitarian Programme intake from the Eastern Mediterranean region and mandatory offshore processing for those seeking asylum by boat from 2013. In response to the changing needs, local health services adopted nurse-led primary healthcare screening, early childhood services, youth and disability clinics.ConclusionsRefugee CYP in Australia are presenting with a growing burden of NCDs, with neurodevelopmental problems contributing. Government policy changes affect the sociodemographics of resettled populations, influencing health profiles. Paediatric refugee health services need to be responsive to the changing needs of these populations to optimise well-being.
Journal Article
Effectiveness of primary school-based interventions in improving oral health of children in low- and middle-income countries: a systematic review and meta-analysis
2022
Background
Risk factors for oral disease can potentially be ameliorated by school-based interventions. This review evaluates the effectiveness of primary school-based interventions in improving oral health among children in low-and middle-income countries (LMICs).
Methods
Our systematic review was conducted in accordance with the Joanna Briggs Institute methodology for systematic reviews of effectiveness. Medline, Embase, Global Health, CINAHL, Emcare, Scopus, Web of Science, WHO website, Google Advanced and Google Scholar were searched for experimental and observational studies published between 1995 and 2021 in English. Quality assessment and data extraction of the articles were performed by two independent reviewers. The primary outcome was decayed, missing, and filled teeth/surfaces [dmft(s)/DMFT(S)] scores. Seven meta-analyses were conducted.
Results
The search yielded 1178 publications and after removing duplicates, 753 remained. A further 648 publications were excluded after screening titles and abstracts. 105 publications were reviewed in full and 34 were included. Narrative synthesis showed school-based interventions had a positive effect on oral health outcomes. Meta-analysis showed a significant positive effect on dental caries measured by DMFT scores (standardised mean difference (SMD) = − 0.33; 95% CI − 0.56 to − 0.10;
P
= 0.005), net increment in DMFS scores (SMD = − 1.09; 95% CI − 1.91 to − 0.27;
P
= 0.009), dmft and DMFT/S score > 1 (Risk Ratio = 0.70; 95% CI 0.53 to 0.94;
P
= 0.02) and plaque scores (SMD = − 0.32; 95% CI − 0.46 to − 0.18;
P
< 0.00001). Non-significant positive effect was observed for dental caries measured by net increment in DMFT scores (SMD = − 0.34; 95% CI − 0.69 to 0.02;
P
= 0.06) and DMFS scores (SMD = − 0.26; 95% CI − 0.70 to 0.18;
P
= 0.24), and gingival health (SMD = 0.12; 95% CI − 0.32 to 0.55;
P
= 0.60). Certainty of evidence was assessed as very low for all oral health outcomes.
Conclusion
School-based interventions can be effective in reducing the burden of oral disease among primary school children in LMICs, with skills-based education, teacher training, provision of access to oral health services and parental engagement emerging as particularly promising. Further research is required to provide evidence of effectiveness of primary school-based interventions to improve oral health.
Systematic review registration
The title of this review was registered with PROSPERO (registration number: CRD42020202599).
Journal Article
Associations between social support, mental wellbeing, self-efficacy and technology use in first-time antenatal women: data from the BaBBLeS cohort study
2018
Background
Information and communication technologies are used increasingly to facilitate social networks and support women during the perinatal period. This paper presents data on how technology use affects the association between women’s social support and, (i) mental wellbeing and, (ii) self-efficacy in the antenatal period.
Methods
Data were collected as part of an ongoing study - the BaBBLeS study - exploring the effect of a pregnancy and maternity software application (app) on maternal wellbeing and self-efficacy. Between September 2016 and February 2017, we aimed to recruit first-time pregnant women at 12–16 gestation weeks in five maternity sites across England and asked them to complete questionnaires. Outcomes included maternal mental wellbeing (Warwick-Edinburgh Mental Wellbeing Scale), and antenatal self-efficacy (antenatal version of the Tool to Measure Parenting Self-Efficacy). Other variables assessed were perceived social support (Multidimensional Scale of Perceived Social Support), general technology use (adapted from Media and Technology Usage and Attitudes Scale). Potential confounders were age, ethnicity, education, socioeconomic deprivation, employment, relationship status and recruitment site. Linear regression models were developed to analyse the relationship between social support and the outcomes.
Results
Participants (
n
= 492, median age = 28 years) were predominantly white British (64.6%). Half of them had a degree or higher degree (49.3%), most were married/living with a partner (83.6%) and employed (86.2%). Median (LQ-UQ) overall scores were 81.0 (74.0–84.0) for social support (range 12–84), 5.1 (4.7–5.4) for technology use (range 1–6), 54.0 (48.0–60.0) for mental well-being (range 14–70), and 319.0 (295.5–340) for self-efficacy (range 0–360). Social support was significantly associated with antenatal mental well-being adjusting for confounders [adj R
2
= 0.13,
p
< .001]. The addition of technology use did not alter this model [adj R
2
= 0.13,
p
< .001]. Social support was also significantly associated with self-efficacy after adjustment [adj R
2
= 0.14,
p
< .001]; technology had limited impact on this association [adj R
2
= 0.13,
p
< .001].
Conclusions
Social support is associated with mental well-being and self-efficacy in antenatal first-time mothers. This association was not significantly affected by general technology use as measured in our survey. Future work should investigate whether pregnancy-specific technologies yield greater potential to enhance the perceived social support, wellbeing and self-efficacy of antenatal women.
Journal Article