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The Edinburgh Companion to the Critical Medical Humanities
This is the first volume to comprehensively introduce the ways in which interdisciplinary thinking across the humanities and social sciences might contribute to, critique and develop medical understanding of the human individually and collectively.
eBook
Does medical humanities matter? The challenge of COVID-19
Medical humanities has tended first and foremost to be associated with the ways in which the arts and humanities help us to understand health. However, this is not the only or necessarily the primary aim of our field. What the COVID-19 pandemic has revealed above all is what the field of critical medical humanities has insisted on: the deep entanglement of social, cultural, historical life with the biomedical. The pandemic has been a time for reinstating the power of expertise of a particular kind, focusing on epidemiology, scientific modelling of potential outcomes and vaccine development. All of this delivered by science at speed.It has been challenging for medical humanities researchers to find purchase in these debates with insights from our more contemplative, ‘slow research’ approaches. However, as the height of the crisis passes, our field might now be coming into its own. The pandemic, as well as being productive of scientific expertise, also demonstrated clearly the meaning of culture: that it is not a static entity, but is produced and evolves through interaction and relationship. Taking a longer view, we can see the emergence of a certain ‘COVID-19 culture’ characterised by entanglements between expert knowledge, social media, the economy, educational progress, risk to health services and people in their socio-economic, political ethnic and religious/spiritual contexts. It is the role of medical humanities to pay attention to those interactions and to examine how they play out in the human experience and potential impact of the pandemic. However, to survive and grow in significance within the field of healthcare research, we need to engage not just to comment. There is a need for medical humanities scholars to assert our expertise in interdisciplinary research, fully engaged with experts by experience, and to work proactively with funders to demonstrate our value.
Journal Article
Reimagining illness through post-COVID-19 condition: the need for radically interdisciplinary health research
The project therefore aims for a better understanding of post-COVID-19 condition as a complex health challenge through interdisciplinary research. [...]this approach is expected to contribute to growing work in our own centres and elsewhere to show that studies of experience, context, and co-production in science, medicine, and society have legitimate traction in interdisciplinary knowledge production about health and illness. Post-COVID-19 condition is also an important index case because of its origins in patient experience followed by the rapid development of clinical research. In one subproject we examine lived experiences, characteristics, and pathophysiology of fatigue associated with post-COVID-19 condition through an analytic design that combines a clinical assessment in rehabilitation medicine, a neuroradiological assessment, an immunological assessment, and a qualitative phenomenological analysis based on interviews with people with post-COVID-19 condition and severe fatigue.
Journal Article
The art of medicine: The dangerous practice of empathy
Both of these concerns-about definition and measurement-derive from a fundamental problem with the philosophy of human nature espoused by traditional medical practice: that of regarding the patient as an object whose physical being, psychological responses, and emotional experiences can all be broken down, accessed, and recorded. In her autobiographical novel, The Bell Jar, Sylvia Plath's character, Esther, describes a severe depressive episode, unrelieved by sleep: I saw the days of the year stretching ahead like a series of bright, white boxes, and separating one box from another was sleep, like a black shade.
Journal Article
Dance for people with chronic breathlessness: a transdisciplinary approach to intervention development
ObjectivesA transdisciplinary research approach was used to develop a holistic understanding of the physical and psychosocial benefits of dance as an intervention for people living with chronic breathlessness.MethodsThe dance programme was developed in collaboration with British Lung Foundation Breathe Easy members in NE England (Darlington) and London (Haringey). Members of the Darlington group were invited to participate in the programme. An exercise instructor, trained and mentored by a dance facilitator delivered 60–90 min dance classes for 10 consecutive weeks. Exercise capacity, mobility, quadriceps strength, health status, mood and interoceptive awareness were assessed at baseline and after the 10-week programme. Second-to-second heart rate (HR) monitoring was conducted during one of the classes.ResultsTen individuals were enrolled (n=8 women). Mean (SD) age was 70 (24); Body Mass Index 29.7 (8.1) kg/m2; one participant used oxygen and one a walking aid. Seven completed the dance programme. Improvements in all outcome measures were detected, with the exception of the Multidimensional Assessment of Interoceptive Awareness, which individuals found hard to comprehend. Eight participants wore HR monitors during one dance class and spent on average 43.5 (21.8) min with HR corresponding to at least moderate intensity physical activity (≥64% HRmax). People found the dance classes enjoyable and those with relevant past experiences who are optimistic, committed to staying well and playful readily adopted the programme.ConclusionA dance programme bringing both physical and psychosocial benefits for people with chronic breathlessness is acceptable when coproduced and evaluated through a transdisciplinary approach.
Journal Article
‘To more than I can be’: A phenomenological meta-ethnography of singing groups for people with chronic obstructive pulmonary disease
Anecdotal experience and qualitative accounts suggest that singing groups, classes or choirs specifically for people with COPD (henceforth referred to as COPD-SGs) are effective in improving health. However, this is not reflected in the quantitative evidence. This meta-ethnography deployed phenomenological methods to explore this discrepancy. Analysis identified the phenomena of being together, being uplifted and being involved as central benefits of COPD-SGs. When viewed through the phenomenological lens of body-social as distinct from body-subject and body-object, findings demonstrated that the qualitative effectiveness of COPD-SGs is greatest on a collective basis. Qualitative research into the effectiveness of COPD-SGs offers more favourable results because phenomenological approaches can identify collective benefits that quantitative methods cannot. COPD-SGs should seek to maximise these collective benefits by rediscovering their cultural and artistic heritage within the national and global Arts in Health (AiH) movement, which has long emphasised the radical creative and healing power of group activity.
Journal Article
The art of medicine: \How do you feel?\: oscillating perspectives in the clinic
[...]this reconciliation may also create a shared world of meaning in another way. By bringing closer the objective and subjective points of view and recognising the constant oscillation from one to the other, we may also bridge the gap between the view of illness as a pathology and illness as a way of being, and so reduce the distance between these two contrasting perspectives present in the clinic.
Journal Article