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"Morsø, Lars"
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Pattern of unreported negative birth experiences in the maternity ward
by
Birkeland, Søren Fryd
,
Clausen, Mette Kring
,
Bogh, Søren Bie
in
Adult
,
Birth
,
birth experience
2025
Introduction Denmark is one of the safest places for childbirth, yet some women report dissatisfaction with their maternity care. However, some negative birth experiences may remain unreported due to thresholds for complaining. The study aimed to identify patterns of unreported negative birth experiences and to quantify the extent of these dark figures. Material and Methods A survey was distributed to 3081 women who gave birth at a Danish hospital in 2022, resulting in 1022 responses (response rate = 33.2%). The women reported their birth experiences in categories based on the Healthcare Complaints Analysis Tool (HCAT), specifying problems, harm caused, and whether they had filed a complaint or intended to. Dark figure ratios regarding problems and harm levels were calculated by comparing unreported negative experiences to formally filed complaints based on the survey responses, covering each problem type and harm level. Results Of the 1022 respondents, 336 (32.9%) women reported negative birth experiences, yet only 26 women had filed complaints. The remaining 310 unreported cases comprised 787 problems across HCAT categories. The most frequent problems were about communication and quality. The highest dark figure ratios were found within the management domain comprising institutional processes (13.0) and environment (9.9). The dark figure ratios showed an inverse relationship with harm severity, being highest for minimal (19.5) and minor (21.2) harm levels and decreasing for moderate (5.5), major (4.8) and catastrophic (0.3) harm levels. Conclusions This study demonstrates a substantial underestimation of negative birth experiences when relying solely on formal complaints, with dark figure ratios ranging from 4.8 to 13, depending on the issue. The inverse relationship between harm severity and dark figure ratios suggests a threshold for filing a complaint, as the likelihood of reporting increases with greater harm. These findings provide novel insights into unreported maternity care experiences, highlighting the need to integrate patient experiences into healthcare improvements. Patient complaints represent only a fraction of problems experienced during childbirth. Among 336 women with negative birth experiences, only 26 filed complaints, revealing a dark figure with up to 13 times more unreported issues. Integrating complaint data with dark figure estimates enables a more accurate assessment of the true scope and nature of patient‐perceived problems.
Journal Article
Patient perspectives on low back pain treatment in primary care: a qualitative study of hopes, expectations, and experiences
by
Hvidt, Elisabeth Assing
,
Madsen, Simon Dyrløv
,
Andersen, Merethe Kirstine
in
Adult
,
Aged
,
Back pain
2024
Background
Patients’ hopes and expectations for low back pain treatment influence their consultation experiences and treatment outcomes. These hopes and expectations may evolve over time, potentially leading to a shift in what patients consider important before and after a consultation. Understanding the distinction between hopes and expectations, and how they evolve is important for improving patient care. This study explored patients’ hopes and expectations prior to LBP consultations and examined how these were reflected in their post-consultation experiences.
Methods
We employed a qualitative design consisting of individual semi-structured pre- and post-consultation interviews with patients seeking care for low back pain from general practitioners, physiotherapists, and chiropractors in Denmark. A convenience sample of 18 patients (10 females and 8 males) aged between 28 and 79 years were interviewed about their hopes and expectations before a consultation and their experiences immediately following the consultation. Data were analysed employing Braun and Clarke’s thematic analysis.
Results
Two themes with five subthemes were developed: (1) “Something needs to be done,” which included subthemes related to life disruption, expectations of clinical assessment, and the clinicians as experts; and (2) “Experiences and emotional responses to the interaction with the clinician”, highlighting the importance of trust and the personal attributes of clinicians. Patients initially sought urgent help and clarity regarding their condition but shifted their focus post-consultation to the relational dynamics and emotional engagement experienced during interactions with clinicians.
Conclusions
This study contributes to the understanding of how patients’ hopes and expectations regarding low back pain consultations evolve, shifting from a focus on clinical actions and outcomes to valuing interpersonal relationships and emotional support from clinicians. Recognising these shifts can enhance clinician-patient interactions and improve overall patient satisfaction and treatment outcomes.
Clinical trial number
Not applicable.
Journal Article
From systematic complaint analysis to quality improvement in healthcare
by
Bogh, Søren Bie
,
Birkeland, Søren
,
Morsø, Lars
in
Access to information
,
Artificial intelligence
,
Autopsies
2024
Correspondence to Dr Søren Birkeland; sbirkeland@health.sdu.dk Introduction The potential of using patient complaints as an indicator of possible breaches of healthcare quality attracts increasing attention.1–3 Patient complaints may reveal problems in healthcare not captured through other safety and quality monitoring systems.4 Even if complaints may be unequally distributed among healthcare users, patients and relatives have privileged access to information on continuity of care and observe a great amount of data about healthcare provision.4 5 In addition, they are more free than healthcare staff to speak up and may provide a more independent assessment of healthcare performance.4 Instruments such as the ‘Healthcare Complaints Analysis Tool’ (HCAT) can systematically and reliably extract core elements from patient complaint letters related to quality and safety.2 3 While efforts are ongoing to research the applications of complaint analysis measures, including the use of artificial intelligence, it is important that we think through how we can use systematic analysis of patient complaints to understand safety risks and quality gaps and then guide improvement efforts. Diagnostic error In 2015, the National Academy of Medicine published the report ‘Improving Diagnosis in Health Care’, presenting diagnostic errors as a major challenge to patient safety.6 Leape et al found that 8% of disabling injuries in the hospital stem from diagnostic mishaps (improper or delayed diagnosis), showing this type of adverse event being associated with the highest rate of severe disability.7 Shojania et al later suggested that up to one in ten deaths in US hospitals annually involve clinically undetected major diagnoses,8 and Newman-Toker et al recently estimated that 795 000 Americans become permanently disabled or die annually because dangerous diseases are misdiagnosed.9 Diagnostic error information can come from autopsy data, normal communication in healthcare organisations, peer review and adverse event reporting.7 8 Patient complaints related to diagnostic errors can be an additional source of data. [...]early studies by Beckman et al suggested that the decision to initiate malpractice litigation is often associated with poor information delivery and lack of collaboration with patients in healthcare.14 Likewise, later studies have underscored the significance of poor communication in patient complaints.15 Well-established approaches are available for training healthcare professionals’ skills for communicating with patients,16 and it could be tempting to seek to upgrade healthcare professionals’ communication skills more generally. [...]analyses can deepen our understanding of the effects of miscommunication, like, for example, deficient listening to patients’ symptoms and worries eventually leading to diagnostic errors. [...]organisations must systematically integrate learning from complaints into clinical practice through well-established improvement models.
Journal Article
Does changed referral options affect the use of MRI for patients with low back pain? Evidence from a natural experiment using nationwide data
by
Olsen, Kim Rose
,
Schiøttz-Christensen, Berit
,
Søndergaard, Jens
in
Analgesics
,
Back pain
,
Experiments
2019
This study reports lumbar MRI referral patterns in the Region of Southern Denmark (RSD) and investigates the hypothesis that we will see an increase in imaging rates (MRI rates) following new referral options to lumbar MRI in the RSD in comparison with the other regions in Denmark from 2010 to 2013.
A difference-in-difference (DD) analysis, using general practitioners (GPs) in other regions as control, was used to test if the new referral options had an effect on the MRI rates.
In 2010, RSD introduced organisational changes affecting the referral options for lumbar MRI. First, the possibility for direct referral to lumbar MRI was introduced GPs, and second, the region gathered all local spine departments into one specialist hospital called the Spine Centre.
We retrieved all lumbar MRIs performed on patients aged 18+ performed on Danish hospitals from 2008 to 2013 using the registries from Statistics Denmark. We use sociodemographic information from all Danish citizens aged 18+ aggregated to GP level. Primary and secondary outcome measures: lumbar MRI scans per 1000 capita enlisted with a GP (MRI rates) were calculated based on GPs patient list. Four referral types were made to describe changes in referral patterns.
In total 183 389 patients received 240 760 lumbar MRIs in the period. The use of the direct referral option by GPs in the RSD increased by 115% in the period from 2010 to 2013 and accounted for 34% of all referrals (n=6545) in 2013. MRI rates were significantly higher in RSD following the organisational changes (DD 1.389(0.925-1.852) lumbar MRI per 1.000 enlisted with a GP).
Introduction of organisational changes in RSD as direct referral to lumbar MRI from GPs and chiropractors as well as establishing a Spine Centre increase the lumbar MRI rate in comparison with other regions in Denmark.
Journal Article
Assessing nourishment problems at a hospital: what can we learn from them?
2024
IntroductionPatient safety is a high priority in the Danish health care system, including that hospital patients get the proper nutrition during their stay. A Nutrition Committee at Odense University Hospital is responsible for policy regarding nourishment at the hospital. If patients experience suboptimal treatment, i.e. improper nourishment, in the Danish health care system, they have the right to file a complaint. These complaints enable the improvement potentials based on the patients’ first hand experiences. Therefore, our aim was to examine the nutrition complaint pattern and to get a deeper understanding of the context surrounding nutrition problems, allowing the extraction of learning potentials.MethodsWe analysed complaints submitted to Odense University Hospital between 2018 and 2022 using the Healthcare Complaint Analysis Tool. The complaints were categorised into categories, levels of severity and overall patient harm. The complaints containing a high-severity nutrition problem were read through and thematised into aspects not defined in the Healthcare Complaint Analysis Tool.ResultsBetween 2018 and 2022, 60 complaint cases containing 89 nutrition problems were filed to Odense University Hospital. Most (58.3%) of these were filed by the patients’ relatives. The nutrition problems were mostly of low severity (56.2%), while 23.6% were severe, and 20.2% were very severe. The reading of 18 very severe nutrition complaints revealed a cascade of problems triggered by the nutrition problem in six cases. Moreover, we saw that two high-severity nutrition problems led to catastrophic harm.DiscussionA low proportion of nutrition problems may express an underestimation regarding nourishment at the hospital. A patient’s threshold may not be exceeded by suboptimal nutrition and therefore does not file a complaint. However, complaints contain important insights contributing to wider learning, given that improvements at the hospital so far are based on clinicians’ reporting, overlooking the patient perspective.
Journal Article
How to Ensure Referral and Uptake for COPD Rehabilitation—Part 1: Disentangling Factors in the Cross-Sectorial Workflow of Patients with COPD to Understand why Most Patients are not Referred to Rehabilitation
by
Hansen, Michael Skriver
,
Thude, Bettina Ravnborg
,
Brink, Anette
in
copd
,
cross-sectorial
,
fram
2021
Chronic obstructive lung disease (COPD) is one of the most serious and common chronic conditions. Patients having COPD can greatly benefit from rehabilitation initiatives. However, not all patients having COPD are referred to rehabilitation. Literature does not clearly explain why only some patients with COPD are referred to rehabilitation, and only very few successful solutions to address the complexity of cross-sectorial organisations are described. The overall objective of this research project is to ensure referral and uptake for COPD rehabilitation. We focus on detangling the processes in the cross-sectorial workflow of patients with COPD to understand why most patients are not referred to rehabilitation.
Based on semi structured interviews and observations a FRAM analysis was conducted to map the referring routines from hospital to municipality.
We found that the hospital and the municipality have different understandings of what rehabilitation is, they use different words and hospital staff lack knowledge of offers at the municipality.
The FRAM analysis was useful to detangle factors important to cross-sectorial collaboration and resulted in a series of focus areas that were disseminated at a workshop. The municipality and the hospital agreed to initiate activities to develop and coordinate the cross-sectorial relations.
Journal Article
Identification of interventions to improve patient experienced quality of care in transitions between healthcare settings: a scoping review
2024
Background
Transitions in healthcare settings can be a challenge for patients and they express a need for guidance and support to cope with these transitions. The aim of this scoping review was to investigate if interventions can improve patients’ experiences when transitioning between healthcare settings.
Methods
This review was conducted following the Johanna Briggs Institute’s methods and reported according to the PRISMA-ScR Checklist. Included articles were published and peer-reviewed, and reported qualitative and quantitative findings on patient experiences with interventions when transitioning between healthcare settings. The search was conducted in May 2024 in Medline Ovid, Embase Ovid, and Cinahl.
Results
Twenty-three studies were included. Factors extracted from the studies were: author(s), year of publication, country of origin, study design, theoretical methods, population description, intervention, phenomena of interest(s), and key findings. There has been an increase in published studies on the subject in the last few years, and most of the included studies originated from Western countries. Most studies were quantitative, primarily RCTs, and the theoretical methods were thus mainly statistical analysis. The study populations were found to be heterogeneous. The interventions were categorized: care coordinator, program, integrated care, online communication platform, coaching, discharge care plan, and miscellaneous interventions.
Conclusions
Overall, interventions were found to improve the patient experience. Centralization of healthcare has increased the number of transitions, and patients express that the coordination of healthcare transitions can be improved. This review’s findings should be used alongside other research on interventions’ effect on factors like hospital readmissions and mortality to determine the optimal intervention to implement.
Journal Article
How to Ensure Referral and Uptake for COPD Rehabilitation – Part 2: A Case of Integrated Care on How to Translate Findings of Cross-Sectorial Workflow to Improve Cross-Sectorial Rehabilitation
by
Hansen, Michael Skriver
,
Thude, Bettina Ravnborg
,
Brink, Anette
in
cross-sectorial referrals
,
Integrated Care Case
,
network groups
2021
Patients with chronic obstructive pulmonary disease (COPD) can greatly benefit from rehabilitation initiatives, but referral to rehabilitation is sparse. Before we initiated activities to ensure hospital referrals for prevention initiatives at the municipality, we investigated referral patterns and relevant factors in the cross-sectorial workflow.
To ensure referral to municipality COPD rehabilitation, by simplifying the referral procedures, and by facilitating relational coordination across the two health care settings.
We simplified the referral procedure by initiating all referrals to contain standard wording, all send to the same electronic location, and assuring that all patients were referred to the same initial interview. We facilitated cross-sectorial relational coordination by establishing local- and cross-sectional network groups. We monitored the network groups, and send questionnaires to obtain knowledge of network activities. We used indicators to measure the cross-sectorial quality and questionnaires to measure the patient experienced quality.
We detected flaws in the referral system that meant that several referrals were neglected. Based on knowledge and experiences the networks called for adjustments. This led to adjustments in patient inclusion and data collection.
We succeeded in simplifying referral procedures and facilitated cross-sectorial relational coordination. We had to make ongoing adjustments of procedures, information, content, population and data infrastructure.in simplifying referral procedures and facilitated cross-sectorial relational coordination. We had to make ongoing adjustments of procedures, information, content, population and data infrastructure.
Journal Article