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result(s) for
"Mwale, Shadreck"
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Campus closures and the devaluing of emplaced Higher Education: widening participation in neoliberal times
2021
Widening participation (WP) in Higher Education (HE) is often positioned as key to resolving social inequality; it underpins arguments that increasing levels of education lead to reduced levels of poverty. Located within the tension of duty and need, WP is positioned as both the responsibility of the University and a financial imperative. This paper considers the student experience of this tension, specifically the contradictions between discourses of equality and diversity and neoliberal conceptualisations of HE as market. Drawing upon qualitative research conducted during the closure of a WP satellite campus, the paper explores the consequences of the withdrawal of HE provision for ‘local’ students. Utilising focus group methodologies to develop an approach for ‘thinking with’ seven WP students, the paper explores the material, social and affective contexts within which students experience university in their ‘hometown’. Foregrounding participants’ critical understanding of their ‘place’ within a marketised HE sector, we consider the formation of student identity as a site of struggles for value. We argue, the closure of satellite campuses must be understood within the context of deepening social-spatial inequalities. Developing a critique of individualised constructions of ‘social mobility’, we outline an alternative imaginary of HE as an intergenerational community resource.
Journal Article
Family interventions in dementia mental health environments (FIND ME): a mixed-methods protocol
by
Gillam, Juliet
,
Dunn, Rosie
,
Featherstone, Katie
in
Caregivers
,
Caregivers - psychology
,
Co-design
2026
IntroductionAdmission to a mental health ward can be distressing for people living with dementia and their carers. While carer involvement is associated with improved outcomes, carers often report feeling excluded from decision-making and support during admissions. There is limited understanding of how wards engage with carers and what strategies might enhance involvement. This study seeks to address this gap by exploring carer and patient experiences during and after admission and co-producing evidence-based strategies for improved support and involvement.Methods and analysisThe FIND ME study uses a convergent parallel mixed-methods design. A national online survey will map provision of mental healthcare for people with dementia across the UK. Narrative interviews will be undertaken with carers of current inpatients (n=24) and recently discharged individuals (n=24), with opportunities for dyadic interviews with people with dementia. Ethnographic fieldwork across three wards (30 days per site) will provide insight into organisational cultures, staff practices and carer involvement. Evidence-based co-design workshops with carers, people with dementia and staff will use these findings to identify priorities and develop practical strategies for service improvement. Finally, a feasibility study will test the acceptability, relevance and potential for implementation of these co-designed strategies. Quantitative data will be analysed descriptively, while qualitative data will undergo narrative and thematic analysis. Triangulation across datasets will ensure rigour.Ethics and disseminationEthical approval has been granted by London Camberwell St Giles Research Ethics Committee and the Health Research Authority (REC Ref: 25/LO/0040). Informed consent will be obtained from all participants, with capacity assessed in line with the Mental Capacity Act (2005). Dissemination will include peer-reviewed publications, conference presentations and freely available multilingual resources for carers, people with dementia and ward staff, supported by NHS and third-sector partners.Trial registration numberNIHR161439
Journal Article
The use of restrictive practice in the care of people living with dementia during a hospital admission in the UK: Results of an ethnographic study
by
Northcott, Andy
,
Featherstone, Katie
,
Mwale, Shadreck
in
Alternative approaches
,
Attitudes
,
Containment
2025
Background People living with dementia are at significant risk of experiencing restrictive practice or restraint during an unscheduled acute hospital admission, however it has remained an unexplored feature of routine care. In the UK hospital data recording the use of restrictive practice is poor, highlighting that these practices are poorly recognised and under reported, to the detriment of high‐quality care. Method This paper draws on 225 days of ethnographic (observational) research exploring the use of restrictive practice in the care of people living with dementia across a hospital admission. Our observational data was collected over 18 months from nine wards in three regions of England, covering a range of geographies and socio‐economic demographics. In each region an assessment unit (30 days), an older persons care ward (30 days) and a specialist mental health ward (15 days) were observed, alongside in‐situ interviews with patients and staff delivering care. Result This study identified restrictive practice as an invisible but everyday feature of care experienced by all people living with dementia within hospital wards. While quantifiable and visible restraint (physical restraint, pharmaceutical sedation, legal frameworks) was observed, our findings highlight that hidden, unrecognised, and unrecorded, restraint was experienced by all people living with dementia admitted to hospital. This encompassed a wider range of routine practices, staff attitudes, and ward cultures of control and containment, during care. Conclusion People living with dementia are expected to remain in bed or at the bedside across an acute hospital admission, with opportunities to leave the bedside further reduced when restrictive practices were applied, with significant impact on the person, causing high levels of distress, and poor outcomes. Changes to cultures of care and alternative approaches to care are needed to improve the experiences and outcomes of a hospital admission for this significant and vulnerable population within our hospitals.
Journal Article
Examining the support needs of African and African‐Caribbean people living with dementia within Adult Social Care Services: an ethnographic study in the UK
by
Featherstone, Katie
,
Mwale, Shadreck
,
Hoe, Juanita
in
Adult care services
,
Adults
,
African cultural groups
2025
Background The UK population of ethnic minority people living with dementia is likely to increase sevenfold by 2050. For decades attempts to understand experiences of minority ethnic communities have typically grouped ‘minority ethnic communities’ together and have failed to recognise difference and diversity within and between communities. These approaches have further reinforced stereotypical narratives for understanding access to services, typically reporting ‘lack of knowledge’, cultural and religious beliefs, and language barriers among others, with findings typically placing the onus for change on marginalised communities themselves rather than services. Research addressing specific needs of African and African Caribbean people living with dementia is currently minimal, but suggests they are a population least likely to be recognised by services, experience historical discrimination, and significant health inequalities. Methods This paper draws on ethnographic research informed by an intersectional approach. Intersectionality proffers making sense of and illustrating how forms of subjugation exist for marginalised vulnerable adults within institutional settings, therefore useful for analysing how class, gender and ethnicity intersect in people living with dementia, itself a stigmatised and silenced condition. The paper draws on data from discussion groups with a research steering group. Result We will discuss findings from a recently established steering group of African and African Caribbean older people and people living with dementia to identify research priorities and outline the research co‐produced with them. This will examine the experiences of African and African Caribbean people living with dementia across a number of Local Authority sites in England. This in‐depth ethnographic study will follow the experiences of a group of African and African Caribbean people living with dementia and their care partners through a series of interviews and while also examining how social care staff recognize and respond to the needs of this population. This knowledge is vital to improving services, support the provision of culturally specific services, and to meet the needs of this population. Conclusion We argue that rather than aggregating ethnic minority groups together, a focussed approach informed by intersectionality is required to better understand the diverse and complex needs of ethnic minority populations across the UK and Europe.
Journal Article
Public Health
by
Featherstone, Katie
,
Mwale, Shadreck
,
Northcott, Andy
in
Aged
,
Aged, 80 and over
,
Anthropology, Cultural
2025
People living with dementia are at significant risk of experiencing restrictive practice or restraint during an unscheduled acute hospital admission, however it has remained an unexplored feature of routine care. In the UK hospital data recording the use of restrictive practice is poor, highlighting that these practices are poorly recognised and under reported, to the detriment of high-quality care.
This paper draws on 225 days of ethnographic (observational) research exploring the use of restrictive practice in the care of people living with dementia across a hospital admission. Our observational data was collected over 18 months from nine wards in three regions of England, covering a range of geographies and socio-economic demographics. In each region an assessment unit (30 days), an older persons care ward (30 days) and a specialist mental health ward (15 days) were observed, alongside in-situ interviews with patients and staff delivering care.
This study identified restrictive practice as an invisible but everyday feature of care experienced by all people living with dementia within hospital wards. While quantifiable and visible restraint (physical restraint, pharmaceutical sedation, legal frameworks) was observed, our findings highlight that hidden, unrecognised, and unrecorded, restraint was experienced by all people living with dementia admitted to hospital. This encompassed a wider range of routine practices, staff attitudes, and ward cultures of control and containment, during care.
People living with dementia are expected to remain in bed or at the bedside across an acute hospital admission, with opportunities to leave the bedside further reduced when restrictive practices were applied, with significant impact on the person, causing high levels of distress, and poor outcomes. Changes to cultures of care and alternative approaches to care are needed to improve the experiences and outcomes of a hospital admission for this significant and vulnerable population within our hospitals.
Journal Article
Public Health
by
Featherstone, Katie
,
Mwale, Shadreck
,
Hoe, Juanita
in
Anthropology, Cultural
,
Black People
,
Dementia - ethnology
2025
The UK population of ethnic minority people living with dementia is likely to increase sevenfold by 2050. For decades attempts to understand experiences of minority ethnic communities have typically grouped 'minority ethnic communities' together and have failed to recognise difference and diversity within and between communities. These approaches have further reinforced stereotypical narratives for understanding access to services, typically reporting 'lack of knowledge', cultural and religious beliefs, and language barriers among others, with findings typically placing the onus for change on marginalised communities themselves rather than services. Research addressing specific needs of African and African Caribbean people living with dementia is currently minimal, but suggests they are a population least likely to be recognised by services, experience historical discrimination, and significant health inequalities.
This paper draws on ethnographic research informed by an intersectional approach. Intersectionality proffers making sense of and illustrating how forms of subjugation exist for marginalised vulnerable adults within institutional settings, therefore useful for analysing how class, gender and ethnicity intersect in people living with dementia, itself a stigmatised and silenced condition. The paper draws on data from discussion groups with a research steering group.
We will discuss findings from a recently established steering group of African and African Caribbean older people and people living with dementia to identify research priorities and outline the research co-produced with them. This will examine the experiences of African and African Caribbean people living with dementia across a number of Local Authority sites in England. This in-depth ethnographic study will follow the experiences of a group of African and African Caribbean people living with dementia and their care partners through a series of interviews and while also examining how social care staff recognize and respond to the needs of this population. This knowledge is vital to improving services, support the provision of culturally specific services, and to meet the needs of this population.
We argue that rather than aggregating ethnic minority groups together, a focussed approach informed by intersectionality is required to better understand the diverse and complex needs of ethnic minority populations across the UK and Europe.
Journal Article