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"Norambuena, Ximena"
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EULAR/PRINTO/PRES criteria for Henoch–Schönlein purpura, childhood polyarteritis nodosa, childhood Wegener granulomatosis and childhood Takayasu arteritis: Ankara 2008. Part II: Final classification criteria
2010
Objectives To validate the previously proposed classification criteria for Henoch–Schönlein purpura (HSP), childhood polyarteritis nodosa (c-PAN), c-Wegener granulomatosis (c-WG) and c-Takayasu arteritis (c-TA). Methods Step 1: retrospective/prospective web-data collection for children with HSP, c-PAN, c-WG and c-TA with age at diagnosis ≤18 years. Step 2: blinded classification by consensus panel of a representative sample of 280 cases. Step 3: statistical (sensitivity, specificity, area under the curve and κ-agreement) and nominal group technique consensus evaluations. Results 827 patients with HSP, 150 with c-PAN, 60 with c-WG, 87 with c-TA and 52 with c-other were compared with each other. A patient was classified as HSP in the presence of purpura or petechiae (mandatory) with lower limb predominance plus one of four criteria: (1) abdominal pain; (2) histopathology (IgA); (3) arthritis or arthralgia; (4) renal involvement. Classification of c-PAN required a systemic inflammatory disease with evidence of necrotising vasculitis OR angiographic abnormalities of medium-/small-sized arteries (mandatory criterion) plus one of five criteria: (1) skin involvement; (2) myalgia/muscle tenderness; (3) hypertension; (4) peripheral neuropathy; (5) renal involvement. Classification of c-WG required three of six criteria: (1) histopathological evidence of granulomatous inflammation; (2) upper airway involvement; (3) laryngo-tracheo-bronchial involvement; (4) pulmonary involvement (x-ray/CT); (5) antineutrophilic cytoplasmic antibody positivity; (6) renal involvement. Classification of c-TA required typical angiographic abnormalities of the aorta or its main branches and pulmonary arteries (mandatory criterion) plus one of five criteria: (1) pulse deficit or claudication; (2) blood pressure discrepancy in any limb; (3) bruits; (4) hypertension; (5) elevated acute phase reactant. Conclusion European League Against Rheumatism/Paediatric Rheumatology International Trials Organisation/Paediatric Rheumatology European Society propose validated classification criteria for HSP, c-PAN, c-WG and c-TA with high sensitivity/specificity.
Journal Article
The Chilean Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
by
Norambuena, Ximena
,
Consolaro, Alessandro
,
Bovis, Francesca
in
Arthritis
,
Patients
,
Quantitative psychology
2018
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Chilean Spanish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 49 JIA patients (12.2% systemic, 24.5% oligoarticular, 22.5% RF-negative polyarthritis, 40.8% other categories) and 70 healthy children, were enrolled. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Chilean Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Journal Article
Exploring the Relationships Between Academic Engagement and Professional Suitability in Social Work Students: The Mediating Role of Academic Satisfaction
by
Norambuena-Paredes, Ignacio
,
Briceño-Olivera, Ximena
,
Gálvez-Nieto, José Luis
in
academic engagement
,
academic satisfaction
,
Analysis
2025
Understanding the factors that influence academic engagement and the perception of ethical–practical suitability is essential for improving university training processes in Social Work. In this context, academic satisfaction plays a key role. This study, with a cross-sectional design and a structural equation modelling (SEM) approach, aimed to examine the direct and indirect relationships among academic engagement, ethical–practical suitability, and academic satisfaction in a sample of Social Work students in Chile. A total of 298 Social Work students participated in this study, from 9 public and private universities (23.1% men, 76.9% women), with a mean age of 21.74 years (SD = 3.470). The results, obtained from a structural equation model, confirm that academic satisfaction significantly and partially mediates the relationship between ethical–practical suitability and academic engagement. Likewise, positive direct effects were observed among the three variables. Confirming a partial mediating effect of academic satisfaction in the relationship between professional suitability and academic engagement. The results are discussed in terms of their relevance for designing training strategies aimed at strengthening academic engagement and the perception of professional readiness in higher education.
Journal Article
Percepción de apoyo social de personas en situación de calle en pandemia
La pandemia generada por el COVID-19 ha afectado a la humanidad no solo desde una perspectiva sanitaria (Sáez-Delgado, et. al, 2020), sino también en mayor o menor medida desde otras muchas aristas (Wang, et al., 2020; Lustig, & Tommasi, 2020; Servais, 2020). Particularmente en el ámbito económico, la pérdida de empleos ha impactado en el aumento de la cantidad de personas en situaciones de pobreza extrema y situación de calle (Fernández-Sánchez, Gómez-Calles, & Pérez, 2020). En este contexto y circunstancias actuales, los albergues para personas en situación de calle se han posicionado como agentes clave, pues han incorporado a sus objetivos habituales
Book Chapter