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"Papyan, Anna"
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‘If relevant, yes; if not, no’: General practitioner (GP) users and GP perceptions about asking ethnicity questions in Irish general practice: A qualitative analysis using Normalization Process Theory
by
MacFarlane, Anne
,
Papyan, Anna
,
Nurse, Diane
in
Census of Population
,
Cultural heritage
,
Data collection
2021
The use of ethnic identifiers in health systems is recommended in several European countries as a means to identify and address heath inequities. There are barriers to implementation that have not been researched.
This study examines whether and how ethnicity data can be collected in Irish general practices in a meaningful and acceptable way.
Qualitative case study data generation was informed by Normalization Process Theory (NPT) constructs about 'sense' making and 'engagement'. It consisted of individual interviews and focus group discussions based on visual participatory techniques. There were 70 informants, including 62 general practitioner (GP) users of diverse ethnic backgrounds recruited through community organisations and eight GPs identified through an inter-agency steering group. Data were analysed according to principles of thematic analysis using NPT.
The link between ethnicity and health was often considered relevant because GP users grasped connections with genetic (skin colour, lactose intolerance), geographic (prevalence of disease, early years exposure), behavioural (culture/food) and social determinant (housing) factors. The link was less clear with religion. There was some scepticism and questions about how the collection of data would benefit GP consultations and concerns regarding confidentiality and the actual uses of these data (e.g. risk of discrimination, social control). For GPs, the main theme discussed was relevance: what added value would it bring to their consultations and was it was their role to collect these data? Their biggest concern was about data protection issues in light of the European Union (EU) General Data Protection Regulation (GDPR). The difficulty in explaining a complex concept such as 'ethnicity' in the limited time available in consultations was also worrying.
Implementation of an ethnicity identifier in Irish general practices will require a strong rationale that makes sense to GP users, and specific measures to ensure that its benefits outweigh any potential harm. This is in line with both our participants' views and the EU GDPR.
Journal Article
318; Music, Migration and Misinformation: the potential of arts-based methods to increase social inclusion in multi-ethnic communities
2025
EP3.4, e-Poster Terminal 3, September 4, 2025, 11:35 - 13:00 Aim Mis- and disinformation about migration are increasingly being used to disrupt and create divisions in communities. Responses to information are shaped by personal, emotional, social and cultural influences and trust in the data source. The arts play an important role in regulating our responses to experiences and information. Music is biologically important for interpersonal attunement and is effective in developing social bonds and building trust. Its ability to engage, beyond the limits of language, makes it a valuable tool to support the health and well-being of multi-ethic communities. The aim of this study is to explore the potential of innovative, interdisciplinary and participatory research methods to combat disinformation and increase social inclusion in multi-ethnic communities. Methods This feasibility study recruited participants from multi-ethnic communities to a co-designed, 12-week intercultural song exchange and data literacy programme. Participants committed to learning about each other through song and data. Social inclusion and confidence in ability to recognise disinformation about migration were measured at baseline and at the end of the study. Evaluation was carried out using surveys and interviews and the study ended with a community-based performance of singing and data storytelling. Results Thirty-six participants from four continents, speaking 17 different languages, were recruited to the study. At baseline, one in five (21%) were not confident in their ability to recognise disinformation about migration which decreased to 8% by the end of the study. A quarter (24%) described themselves as not feeling settled and part of the community which decreased to 12% by the end of the study. Conclusions This study has demonstrated the innovative use of participatory, interdisciplinary research methods, combining the arts and data literacy, to combat disinformation and increase social inclusion in multi-ethnic communities. Further research is needed to explore the scalability of this project.
Journal Article
325; Music and singing as arts-based methods to build capacity for and migrant involvement in health research: a mixed-methods study
by
MacCarron, Padraig
,
Garry, Frances
,
MacFarlane, Anne
in
Arts
,
Cafes
,
Capacity building approach
2025
PTH 8: Miscellaneous 1, B304 (FCSH), September 5, 2025, 11:30 - 12:30 Introduction The World Health Organisation calls for evidence-based policy and practice about the specific health needs of refugees and migrants. Refugees and migrants need to be meaningfully involved as partners in the co-production of that evidence. However, there are challenges that inhibit partnership development e.g., linguistic barriers, mistrust. Culturally attuned methods, such as arts-based methods, support trust-building in intercultural social groups and, thus, may create participatory spaces that facilitate new inter-sectoral research partnerships. Aims Explore inter-sectoral, inter-cultural partnership development for refugee and migrant health research using an arts-based method known as the Irish World Music Cafe. Methods Following the principles of purposeful sample, twenty-five participants from the community (n = 9), health (n = 4) and arts or health academic sectors (n = 12) were recruited for five 2 hour music cafes (four on-line and one in-person). A questionnaire administered at the end of each music café evaluated participants’ enjoyment of the music cafes and their networking opportunities. These data were analysed using frequency analysis and social network analysis to see if health, community or academic sector actors were most central in the participant group. Semi-structured interviews were conducted after the cafes ended to complement the quantitative date. These were analysed using inductive, thematic analysis. Results The overall rates of enjoyment of music cafes were very high. Participants from the health sector were most central in the network at the first two music cafes. However, their centrality decreased and migrants from community-based organisations emerged as the more central actors in the network by the end of the fifth music café. Participants described several examples of how specific characteristics of music and singing shaped interactions and partnership building in the music cafes. Conclusions Music cafes as arts-based methods warrant further investigation as methods to optimise inter-sectoral, inter-cultural partnership development for refugee and migrant health research.
Journal Article
'If relevant, yes; if not, no': General practitioner
2021
The use of ethnic identifiers in health systems is recommended in several European countries as a means to identify and address heath inequities. There are barriers to implementation that have not been researched. This study examines whether and how ethnicity data can be collected in Irish general practices in a meaningful and acceptable way. Qualitative case study data generation was informed by Normalization Process Theory (NPT) constructs about 'sense' making and 'engagement'. It consisted of individual interviews and focus group discussions based on visual participatory techniques. There were 70 informants, including 62 general practitioner (GP) users of diverse ethnic backgrounds recruited through community organisations and eight GPs identified through an inter-agency steering group. Data were analysed according to principles of thematic analysis using NPT. The link between ethnicity and health was often considered relevant because GP users grasped connections with genetic (skin colour, lactose intolerance), geographic (prevalence of disease, early years exposure), behavioural (culture/food) and social determinant (housing) factors. The link was less clear with religion. There was some scepticism and questions about how the collection of data would benefit GP consultations and concerns regarding confidentiality and the actual uses of these data (e.g. risk of discrimination, social control). For GPs, the main theme discussed was relevance: what added value would it bring to their consultations and was it was their role to collect these data? Their biggest concern was about data protection issues in light of the European Union (EU) General Data Protection Regulation (GDPR). The difficulty in explaining a complex concept such as 'ethnicity' in the limited time available in consultations was also worrying. Implementation of an ethnicity identifier in Irish general practices will require a strong rationale that makes sense to GP users, and specific measures to ensure that its benefits outweigh any potential harm. This is in line with both our participants' views and the EU GDPR.
Journal Article
396; WHO collaborating centre for participatory health research with refugees and migrants: values, methodologies and resources
by
Garry, Fran
,
Walsh, Jim
,
Orcutt, Miriam
in
Academic staff
,
Capacity building approach
,
Capacity development
2025
WKS 29:WHO Collaborating Centre for Participatory Health Research with Refugees and Migrants: values, methodologies and resources., B203 (FCSH), September 5, 2025, 10:15 - 11:15 Background and Objectives The field of migration health research is growing exponentially but refugees and migrants are rarely involved in decisions about research about their health. There are calls for a paradigm shift in the field to normalise participatory health research, i.e., doing research “with” not “on” refugees and migrants. This workshop will showcase capacity building initiatives a World Health Organisation Collaborating Centre for Participatory Health Research for Refugee and Migrant Health in the University of Limerick Ireland. The objectives are to stimulate critical thinking about participatory health research values and share methodologies and resources for doing participatory health research. Workshop Plan Seminar with experiential learning via small group discussions and an opportunity to experience some participatory methodologies Welcome and ice breaker - 10 mins UL and WHO Presentation 1 on PHR values and principles - 10 mins UL Interactive session about using two arts based participatory methodologies: photovoice and music and singing in the Irish Dept of Health funded ‘Refugee and Migrant Health Partnership’– 40 mins UL Academics and Community Partners Presentation 2 on WHO PHR resources and experiences of bring participatory principles to Migration Health Programme– 20 mins WHO and UL RE: WHO Copenhagen re. the PHR Country implementation guide and PHR pilot and WHO Geneva re. bringing participatory principles to the development of the 1st Global Research Agenda process Closing round and evaluation - 10 mins UL Main Messages Workshop participants will (i) gain knowledge of participatory health research values, methodologies and resources (ii) experience culturally attuned methods to stimulate new ways of working in their own research that will support doing research with, not on, refugees and migrants.
Journal Article
Trends in pediatric CNS tumors in Armenia: a multicenter retrospective study
by
Harutyunyan, Martin
,
Hovhannisyan, Saten
,
Hoveyan, Julieta
in
Armenia - epidemiology
,
Central Nervous System Neoplasms - epidemiology
,
Central Nervous System Neoplasms - therapy
2024
Purpose
Central nervous system (CNS) tumors are the most common solid malignancies in children worldwide, including in Armenia. The current study aims to analyze epidemiological data, treatment, and outcomes of children and young adults (≤25 years) with CNS tumors in Armenia during the last 26 years.
Methods
We collected data from pediatric and young adult patients treated in selected sites in Armenia from 1
st
January 1995 to 31
st
December 2020. Incidence by sex, age at diagnosis, time from first complaints to diagnosis, histopathology results, treatment strategies, complications, and overall survival (OS) rates were calculated.
Results
The multicenter data analysis revealed 149 patients with diagnosed primary CNS tumors over 26 years. Among them, 84 (56.4%) were male. The median age at diagnosis was 7 years (range, 3 months to 25 years), and the median time from the first complaints to diagnosis was 2 months (range, 1 week to 70 months). Medulloblastomas and other embryonal tumors (47), low-grade gliomas (32), and high-grade gliomas (22) were the most commonly diagnosed malignancies. Ependymomas, craniopharyngiomas, germ cell tumors, and other malignancies were observed in 22 patients. For 26 patients, no histopathological or radiological diagnosis was available. Follow-up information was available for 98 (65.8%) patients. The 5-year OS rate for the whole study group was 67.7%.
Conclusion
Consistent with international data, embryonal tumors, and gliomas were the most commonly diagnosed CNS malignancies in Armenia. Multimodal treatment was often not available in Armenia during the study period, especially for early cases.
Journal Article
Pediatric Locally Advanced Synovial Sarcoma: What Would Be the Best Treatment Option?
2021
KEY POINTS • Synovial sarcomas are often mistreated with unplanned tumor resection. • Attention from specialists early in the course of SS can minimize the risk of recurrence, metastases, and the necessity for resurgery, all of which are increased with unplanned tumor resection. • Chemotherapy alone does not provide sufficient local control of the tumor. • Resurgery, in conjunction with radiotherapy and chemotherapy, is the best choice of management for this patient.
Journal Article
Advanced Radio Frequency Timing AppaRATus (ARARAT) Technique and Applications
by
Ghalumyan, Arsen
,
Aprahamian, Ani
,
Yvon, Dominique
in
Biological properties
,
Correlation
,
Depletion
2022
The development of the advanced Radio Frequency Timer of electrons is described. It is based on a helical deflector, which performs circular or elliptical sweeps of keV electrons, by means of 500 MHz radio frequency field. By converting a time distribution of incident electrons to a hit position distribution on a circle or ellipse, this device achieves extremely precise timing. Streak Cameras, based on similar principles, routinely operate in the ps and sub-ps time domain, but have substantial slow readout system. Here, we report a device, where the position sensor, consisting of microchannel plates and a delay-line anode, produces ~ns duration pulses which can be processed by using regular fast electronics. A photon sensor based on this technique, the Radio Frequency Photo-Multiplier Tube (RFPMT), has demonstrated a timing resolution of ~10 ps and a time stability of ~0.5 ps, FWHM. This makes the apparatus highly suited for Time Correlated Single Photon Counting which is widely used in optical microscopy and tomography of biological samples. The first application in lifetime measurements of quantum states of graphene, under construction at the A. I. Alikhanyan National Science Laboratory (AANL), is outlined. This is followed by a description of potential RFPMT applications in time-correlated Diffuse Optical Tomography, time-correlated Stimulated Emission Depletion microscopy, hybrid FRET/STED nanoscopy and Time-of-Flight Positron Emission Tomography.