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"Perry, Anne"
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Rutland Place : a Charlotte and Thomas Pitt novel
When Charlotte learns of her mother's distress in losing a locket with a compromising picture, she has no idea that it's just the beginning of a series of bizarre events that will end in sudden death.
Book
CONSORT to community: translation of an RCT to a large-scale community intervention and learnings from evaluation of the upscaled program
Background Translation encompasses the continuum from clinical efficacy to widespread adoption within the healthcare service and ultimately routine clinical practice. The Parenting, Eating and Activity for Child Health (PEACH™) program has previously demonstrated clinical effectiveness in the management of child obesity, and has been recently implemented as a large-scale community intervention in Queensland, Australia. This paper aims to describe the translation of the evaluation framework from a randomised controlled trial (RCT) to large-scale community intervention (PEACH™ QLD). Tensions between RCT paradigm and implementation research will be discussed along with lived evaluation challenges, responses to overcome these, and key learnings for future evaluation conducted at scale. Methods The translation of evaluation from PEACH™ RCT to the large-scale community intervention PEACH™ QLD is described. While the CONSORT Statement was used to report findings from two previous RCTs, the REAIM framework was more suitable for the evaluation of upscaled delivery of the PEACH™ program. Evaluation of PEACH™ QLD was undertaken during the project delivery period from 2013 to 2016. Results Experiential learnings from conducting the evaluation of PEACH™ QLD to the described evaluation framework are presented for the purposes of informing the future evaluation of upscaled programs. Evaluation changes in response to real-time changes in the delivery of the PEACH™ QLD Project were necessary at stages during the project term. Key evaluation challenges encountered included the collection of complete evaluation data from a diverse and geographically dispersed workforce and the systematic collection of process evaluation data in real time to support program changes during the project. Conclusions Evaluation of large-scale community interventions in the real world is challenging and divergent from RCTs which are rigourously evaluated within a more tightly-controlled clinical research setting. Constructs explored in an RCT are inadequate in describing the enablers and barriers of upscaled community program implementation. Methods for data collection, analysis and reporting also require consideration. We present a number of experiential reflections and suggestions for the successful evaluation of future upscaled community programs which are scarcely reported in the literature.
Journal Article
Qualitative Studies on the Patient's Experience of Weaning From Mechanical Ventilation
In contrast to primarily deductive quantitative research, qualitative research aims to interpret data to develop theoretical insights that describe and explain phenomena such as interactions, experiences, roles, perspectives, and organizations. In this review, we summarize qualitative studies that used primarily in-depth personal interviews as a data collection method and a grounded theory analytic approach. The liberal use of illustrative excerpts and interpretive descriptions offer clinicians vicarious accounts of patient experiences of weaning from mechanical ventilation. Important experiences of patients during their weaning from mechanical ventilation included frustration, uncertainty, hopelessness, fear, and lack of mastery. The extent to which, in at least some patients, these experiences were determinants of weaning failure, consequences of weaning failure, or both, was difficult to establish. An assumption of this genre of research is that if clinicians understand the lived experiences of patients, they can better appreciate patient needs during the weaning process, and by inference, their role as clinicians during weaning from mechanical ventilation.
Journal Article
Anne Gould Hauberg and Mark Tobey
Seattle art patron Anne Gould Hauberg (1917–2016) and Seattle-based painter Mark Tobey (1890–1976) shared a common interest in art and faith. Their friendship spanned decades, with Hauberg providing patronage for Tobey, who, along with creating significant works of art for her and other Northwest collectors, taught her about the Bahá’í Faith, which guided her for the rest of her life. Following the recent death of Hauberg, the author reflects on her visits with the two art lovers—visits that occurred forty years apart—and pays tribute to them as individuals and as friends who nurtured and helped to sustain each other.
Journal Article
Anne Gould Hauberg and Mark Tobey: Lives Lived for Art, Cultivated by Spirit
Seattle art patron Anne Gould Hauberg (1917-2016) and Seattle-based painter Mark Tobey (1890-1976) shared a common interest in art and faith. Their friendship spanned decades, with Hauberg providing patronage for Tobey, who, along with creating significant works of art for her and other Northwest collectors, taught her about the Bahá'í Faith, which guided her for the rest of her life. Following the recent death of Hauberg, the author reflects on her visits with the two art lovers-visits that occurred forty years apart-and pays tribute to them as individuals and as friends who nurtured and helped to sustain each other.
Journal Article
