Explore the vast range of titles available.

Although critical to enacting change, effectively communicating clinical and public health research results remains a challenge. In a webinar that occurred on December 7, 2023, a group of clinical and public health researchers and communications specialists convened to share their experiences using plain language materials to communicate research results. Herein, they provide practical guidance and case examples of lay summaries, infographics, data dashboards, and zines, along with challenges and potential solutions. Discussion illuminated the critical importance of partnering with communities who represent the intended beneficiaries of the research to plan, create, and disseminate materials. Accordingly, researchers should plan early, prepare, and dedicate resources for results dissemination. Researchers can use this guidance to develop plain language research dissemination materials, help connect with their audiences to inform and influence their understanding, and empower action to ultimately improve health and well-being.

Providing patients, parents, and families high-quality healthcare in the language of their choice is a fundamental component of patient-centered care in pediatric settings. However, language needs may be complex and dynamic, creating clinical and ethical challenges in cases of provider-parent discordance regarding the need for an interpreter. In this perspectives article, we use a clinical encounter as a foundation to discuss the intricacies of addressing language needs in pediatrics. We also describe the urgent need for further innovation and improvement in linguistic supports available to diverse patients and families.

Relatively few studies have considered the impact of the COVID-19 pandemic on intimate partner violence (IPV) advocates or the agencies where they work. In this study, based on United States IPV advocates’ experiences working with survivors during the COVID-19 pandemic, we conducted interviews to explore: 1) personal challenges and resilience working as IPV advocates during the COVID-19 pandemic; 2) how agencies adapted to the pandemic to support IPV survivors and advocates; and 3) specific needs and challenges of culturally-specific agencies. We conducted semi-structured interviews with 53 IPV advocates from June to November 2020. Participants were included if they worked directly with survivors, identified as an IPV advocate, worked at a US-based agency, and spoke and understood English. We created a sampling matrix to ensure adequate representation from IPV advocates serving survivors from communities which have been marginalized. Interviews were conducted through a virtual platform by a trained member of the research team. We used an inductive thematic analysis approach, with weekly coding meetings to resolve discrepancies in coding. Five themes emerged from the data: 1) IPV advocates described how working as an IPV advocate during the COVID-19 pandemic impacted them personally; 2) agencies developed new methods of addressing IPV advocates’ needs; 3) agencies developed new solutions to address pandemic-related client needs; 4) transitioning advocacy work to virtual formats created challenges but also opportunities and; 5) pandemic limitations and impacts compounded pre-pandemic challenges for culturally specific agencies. IPV advocates are frontline workers who have played essential roles in adjusting services to meet survivor needs during the COVID-19 pandemic while simultaneously coping with pandemic impacts on themselves and their agencies. Developing inter-agency collaborations and promoting advocates’ safety and wellbeing during future public health crises will help support IPV survivors.

Community-based participatory research (CBPR) is a methodological approach where community–academic teams build equitable relationships throughout the research process. In the domestic violence (DV) field, CBPR may be particularly important when conducting research with racial and ethnic minority DV survivors, as this group faces concurrent oppressions that inform their lived experiences. To our knowledge, no systematic review has synthesized articles using a CBPR approach to explore the needs and lived experiences of racial and ethnic minority DV survivors. Using PRISMA guidelines, we conducted a systematic review of the literature, retrieving articles that used a CBPR approach to understand the needs and/or lived experiences of female racial and ethnic minority DV survivors residing in the United States. Articles were identified from peer-reviewed databases, bibliographies, and experts. Thirteen of the 185 articles assessed for eligibility were included. Articles focused on a variety of racial and ethnic minority groups, the majority identifying as African American or Latina. Collaboration occurred in multiple ways, primarily through equitable decision-making and building team members’ strengths. Several needs and lived experiences emerged including gender identity and patriarchal attitudes, racism and discrimination, the immigrant experience informing DV, poverty, shame and stigma, and the need for social support. This is the first systematic review of articles using a CBPR approach to explore the needs and lived experiences of racial and ethnic minority survivors. Implications include promoting community-based dissemination, conducting quantitative studies with larger sample sizes of DV survivors, and encouraging culturally specific services that address DV survivors’ intersectional needs.

Intimate partner violence (IPV) has well-documented adverse impact on survivors and their children. In this article, we describe the development and formative evaluation of a trauma-informed, user-friendly Smartphone-based mobile application (app) to address the unmet health needs and improve the well-being of mothers who have experienced IPV. A multidisciplinary team of IPV experts developed the app (called Thrive) in partnership with software developers. Thrive includes three sections: Myself (maternal self-care, stress coping skills), My Child (stress signs in children, talking to children about IPV, mother–child dyadic communication), and My Life (hospital- and community-based resources). Sixteen providers (social workers, IPV advocates, and health care providers) and eight IPV survivors provided feedback about Thrive via structured interviews. Participants found Thrive to be user-friendly, informative, trauma-informed, and a potential alternative to handouts. Participants had several recommendations including allowing users to add their own content and providing social support mechanisms. Initial feedback sessions have demonstrated preliminary acceptability of one of the first health education apps for mothers who have experienced IPV. Next steps include revising Thrive based on user feedback, testing Thrive via a longitudinal outcome evaluation, and working with hospital and community-based partners to disseminate Thrive to IPV survivors around the country.

The Child Opportunity Index (COI) is a validated measurement that uses a composite index of 29 indicators of social determinants of health linked to the US Census. Patients post-Fontan palliation for single ventricle physiology often have reduced exercise capacity compared to the general population. Our hypothesis is that COI levels are directly associated with exercise capacity and inversely with late outcomes. A retrospective, single-center study was performed, including 99 patients post-Fontan procedure who had cardiac magnetic resonance imaging at our institution from January 2010 to July 2023, of which 78 had undergone an exercise test. Univariate analysis was performed with Pearson correlational testing and multivariable linear regression was then used to evaluate independent predictors of % predicted VO . The mean age and sex were not different between the low and high COI groups (24.1 ± 8.5 y vs 22.5 ± 9.7 y; 34.5% vs 29.3% female). Patients with low COI had lower peak VO2 (25.7 vs 31.0 L/min/kg, p = 0.002) and % predicted peak VO2 (61.9 vs 71.4%, p = 0.003). At follow-up post-Fontan (mean of 17.9 ± 7.4 y) there was one mortality and two heart transplants. There were more interventions in the low COI group (1.5 vs 0.9 intervention occurrence/patient, p = 0.038). There was no difference in hospital admissions or significant comorbidities between COI groups. Lower COI was associated with worse exercise capacity in Fontan patients and may negatively impact the need for late interventions. This highlights the need for efforts to provide community resources to promote equity in cardiac outcomes.Please check and confirm that the authors and their respective affiliations have been correctly identified and amend if necessary.Confirmed as correct. Thank you!

The coronavirus disease 2019 (COVID-19) pandemic has disproportionately affected communities of color. To dismantle these disparities, it is critical to promote COVID-19 vaccine equity, both through increasing vaccine access and addressing vaccine mistrust. This article describes a community–academic collaboration (the Community Vaccine Collaborative [CVC]), whose mission is to ensure COVID-19 vaccine equity among marginalized communities. Based in Pittsburgh, Pennsylvania, our group has focused on inclusion of marginalized groups into vaccine clinical trials, addressing vaccine mistrust, and building systems to ensuring equitable access to the COVID-19 vaccine. We review formation of the CVC, activities to-date, and recommendations for other communities interested in developing similar collaboratives.