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"Schaefer, Jenni"
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Trauma-informed care and practice for eating disorders: personal and professional perspectives of lived experiences
Background
Learning about the life stories of patients who have experienced a severe eating disorder (ED), but also traumas that led to PTSD, dissociative disorders, and other comorbidities, has great value to clinicians in their efforts to deliver trauma-informed care (TIC). Many investigators have been researching and writing about these issues for years, and strong scientific evidence has emerged, indicating that trauma is a significant risk factor for the development of EDs, particularly in its bulimic forms.
Purpose
Peer-reviewed literature contains scarce input from people with “lived experiences”. Hearing and “sitting with” such individuals are extremely useful in clinical practice and research. Further, encouraging patients to put words to their pain has recognized therapeutic effects. These lived experiences are often demonstrative of key elements of what professionals need to know about evaluating and treating patients with EDs and co-occurring trauma-related disorders.
Method/results
The principal author invited two courageous recovered ED advocates and writers (June Alexander and Jenni Schaefer), who have gone public about their ED–PTSD experiences, to recount their life stories and treatment experiences (both positive and negative). Dr. Brewerton then offers his professional perspectives on the course of their treatment experiences put in the context of ongoing relevant clinical research.
Conclusion
Their and other patients’ experiences have great power to guide professionals toward trauma-informed care, more integrated practice, and theoretically improved outcomes.
Level of evidence
Level V.
Journal Article
(5/2010) Eating Disorder Recovery: Easier On The Other Side
If you are active in an online recovery community, use the positive support from online pals to hold yourself accountable to taking real action in your recovery. In my personal experience, pain and discomfort have most often been the motivating factors to get me to change.
Newsletter
THE MYTH of Eating Disorders
Do you think I'm fat?\" I would ask people when I was only 4 years old. I asked this same question when I was 5, 10, 15, and every age in between. The answer was always \"No.\" I was at a normal weight, and everyone thought I was silly for asking. No one knew that my question was a sign that I was struggling with body image issues. No one noticed that I divided food into good and bad categories, often skipped meals, and by high school, had begun to binge and purge.
Magazine Article
The lost boys
We started dating, and it really seemed that his eating disorder wasn't a big deal. We'd go to movies and out to dinner like any other couple, and we always had so much fun. But over the next couple of months, I started noticing certain things. Like, [Tanner] usually ate a lot less than I did. And when he did eat his whole meal, he'd go to the bathroom afterward and turn on the vent. He also exercised a lot, running and lifting weights every day after school.
Magazine Article
The Lost Boys
\"It's no secret that girls struggle with weight issues. Models and actresses are called out in magazines for being scarily thin--and with as many as 10 million girls suffering from eating disorders in the United States, chances are you know someone with anorexia or bulimia. But what you don't hear much about is this: Guys can have eating disorders too.\" (CosmoGIRL!) Read the stories of two teenage guys who got help for their eating disorders.
Magazine Article