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"Wilkinson, Colin"
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Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned
Introduction The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a 4‐year UK university collaboration investigating how thoughts and feelings, personal relationships and lifestyle can affect chronic pain. Patient and public involvement in research recognises that researchers' conceptions of health and illness can be enriched and sense‐checked by those of people experiencing a health condition. Published literature reports a gap in meaningful patient and public involvement in research into chronic pain, for example, during early study design. Input in this formative stage aimed to ensure the research proposed had a patient‐centred focus which may benefit study implementation. We describe how the authors sought to address this gap and established a diverse public involvement (PI) network to support the CRIISP research. Methods Thirty‐six adult public contributors were appointed to work alongside the research teams. Lessons learned are presented under the themes: optimising collaborative working, recruitment of public contributors, supporting public involvement throughout CRIISP and the retention of public contributors. Throughout this paper, we refer to the term ‘public involvement’ rather than ‘patient and public involvement’ in accordance with the NIHR definition which incorporates people with a range of experiences. Results Working in partnership with our public contributors, we have embedded PI throughout a chronic pain research programme using an innovative and collaborative process. Conclusion This model may inform others to maximise the potential of PI within their research. Patient or Public Contribution The paper reports the collaboration between public contributors with a lived experience of chronic pain and the Consortium to Research Individual, Interpersonal and Social influences in Pain (CRIISP) researchers, by means of a large public involvement network.
Journal Article
Mobile platforms : getting information on the go
Describes the evolution of mobile computing from bulky wireless telephones to a wide range of mobile devices and applications, and details how daily life has changed due to these technological advances.
Book
Rethinking use of medicines for chronic pain
Compassionate relationships with clinicians, not medicines, are the foundation of effective care
Journal Article
Gaming : playing safe and playing smart
This book celebrates the experiences, environments, and simulations modern gaming offers as well as the cognitive and developmental benefits they convey, while also highlighting the very real dangers that arise from excessive or inappropriate play.
Book
Chronic pain (primary and secondary) in over 16s: summary of NICE guidance
The guideline is consistent with the ICD-11 definition of chronic primary pain: “Chronic primary pain is chronic pain in one or more anatomical regions that is characterised by significant emotional distress (anxiety, anger/frustration or depressed mood) or functional disability (interference in daily life activities and reduced participation in social roles). Lifestyle and day-to-day activities, including work and sleep disturbance Physical and psychological wellbeing Stressful life events, including previous or current physical or emotional trauma Current or past history of substance misuse Social interaction and relationships Difficulties with employment, housing, income and other social concerns. [Based on moderate to very low quality randomised trial data with a large number of participants and original economic modelling] Do not offer any of the following to people aged 16 years and over to manage chronic primary pain because there is no evidence of benefit: TENS (transcutaneous electrical nerve stimulation) Ultrasound therapy Interferential therapy. [Based on high to very low quality randomised trial data with a small number of participants and the experience and opinion of the GC] Consider an antidepressant—either amitriptyline, citalopram, duloxetine, fluoxetine, paroxetine, or sertraline—for people aged 18 years and over to manage chronic primary pain, after a full discussion of the benefits and harms.
Journal Article
John Wilkinson
Jack studied medicine at Edinburgh, sponsored by the Edinburgh Medical Missionary Society (EMMS), whose history he later wrote under the title of The Coogate Doctors while a director of the EMMS. Being clerk to the Overseas Presbytery of Kenya gave him considerable experience of the problems of mission hospital management and church administration.
Journal Article
