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Objective. To identify the nursing guidelines for caregivers of children with congenital heart disease (CHD) after hospital discharge. Methods. This is an integrative literature review of articles published between 2016 and 2022. In order to select the studies, the controlled descriptors “Nursing Care”, “Nursing”, “Heart Defects, Congenital”, “Caregivers” and “Child” were used in four scientific databases – LILACS, SCIELO, PUBMED and BDENF. Results. The current integrative literature review analyzed 11 articles from the original sample. The main nursing care issues are those related to nutrition, oral health, leisure and physical activity, care with medication and the surgical wound, as well as the need to offer support to these children’s families. The authors emphasize that nurses are present at various moments in a child’s life, including at birth, but the approach to CHD is scarce in their basic training as nurses, as well as in their professional practice, and there is a shortage of continuing education proposals for the care of children with CHD. Conclusion. The study showed that nursing guidelines are focused on basic care and family support for these children. Lastly, this study highlighted the important role of nurses in terms of consolidating guidelines on the care needs of these children.

Nurses play a very important role in the organ donation and transplant team; therefore, they need to be qualified and trained for various tasks, including donor identification, notification to the intra-hospital donation coordination team, donor monitoring and maintenance. In Brazil, researchers highlight theimportance of nurses for the success of the organ donation process, but also identify several discrepancies in terms of knowledge and feelings that arisein the care of POD(8,9). [...]they consider it more important to care for those with a life prognosis, neglecting the necessary care for POD maintenance(9). In South Korea, in a survey conducted with nursing students, 85.1% reported not having received any training on organ donation in BD; 68% were willing to donate theirorgansifthey had BD; and 39.5% were willing to donate the organs of family members under these conditions(12). Study design, period and location This is a study of methodological approach and technological production, which corresponded to the validity, by health experts (nurses) and web designers, of a website called EMPDO website.

This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver's activity, social isolation, neglected self-care, and family conflicts impact caregivers' subjectivity. The elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.

ABSTRACT Objectives: to identify feelings, experiences, and expectations of kidney transplant patients, generated from the diagnosis of chronic renal disease until the post-transplant period, highlighting the challenges for nurses to incorporate individualized care to cope throughout the disease process. Methods: qualitative, descriptive research, carried with seven kidney transplant patients, in the city of Manaus, State of Amazonas. The data analysis followed the methodological referential of Bardin’s content analysis. Results: the diagnosis of the disease was experienced negatively, and hemodialysis was described as an imprisonment and health decline. The transplant meant an improvement in quality of life. The main difficulties were lack of a specialized hospital and low immunity. Conclusions: the nurses’ approach of chronic renal patient and with the renal transplantation favored the discovery of solutions facing the demands of the disease and allowed greater capacity to implement individualized care, surrounding a relationship of trust and respect. RESUMO Objetivos: identificar sentimentos, vivências e expectativas de indivíduos renais transplantados, gerados desde o diagnóstico de Doença Renal Crônica até o período pós-transplante, destacando os desafios para o enfermeiro na incorporação de cuidados individualizados de enfrentamento durante todo o processo da doença. Métodos: pesquisa qualitativa, descritiva, realizada com sete transplantados renais, na cidade de Manaus, Amazonas. A análise dos dados seguiu o referencial metodológico da análise de conteúdo de Bardin. Resultados: o diagnóstico da doença foi vivenciado de forma negativa, e a hemodiálise foi descrita como aprisionamento e declínio. O transplante significou melhora da qualidade de vida. As principais dificuldades foram falta de hospital especializado e baixa imunidade. Conclusões: a aproximação do enfermeiro com o doente renal crônico e com o transplantado renal favorece o encontro de soluções diante das exigências da doença e permite-lhe maior capacidade para implementar cuidados individualizados, envoltos em uma relação de confiança e respeito. RESUMEN Objetivos: identificar sentimientos, experiencias y expectativas de individuos renales trasplantados, generados desde el diagnóstico de enfermedad renal crónica hasta el postrasplante, destacando los desafíos para el enfermero en la incorporación de cuidados individualizados de enfrentamiento durante el proceso de la enfermedad. Métodos: investigación cualitativa, descriptiva, con siete trasplantados renales, en Manaus, Amazonas. El análisis de los datos siguió el referencial metodológico del análisis de contenido de Bardin. Resultados: el diagnóstico de la enfermedad ha vivido de forma negativa, y la hemodiálisis ha sido descripta como reclusión y declive. El trasplante significó mejora de la calidad de vida. Las principales dificultades fueron falta de hospital especializado y baja inmunidad. Conclusiones: el acercamiento del enfermero con el enfermo renal crónico y con el trasplantado renal favorece el encuentro de soluciones delante las exigencias de la enfermedad y le permite mayor capacidad para implementar cuidados individualizados, en una relación de confianza y respecto.

Objective. To describe the importance of the Statement of Assent for children and adolescents invited to participate in a clinical study and their main reactions to its explanation. Methods. This is an exploratory descriptive qualitative study of 17 children and adolescents, who were invited to participate in a clinical study in the field of oncology in a hospital located in Rio de Janeiro (Brazil). Data were analyzed using thematic analysis. Results. Two thematic units were generated after data interpretation: signing the statement of assent, in which participants felt their main role when faced with the possibility of expressing their agreement or not to take part in the study; and understanding of the study, when they showed that they understood the steps of the study by asking pertinent questions to clarify their doubts. Children and adolescents understood the steps of the study contained in the Statement of Assent, were interested and asked questions to clarify their doubts about the study. Conclusion. The Statement of Assent was important for participants understanding the study and having autonomy over their participation. As the statement strengthened the main role of children and adolescents in the research process, the conclusion was that its use in studies involving the pediatric population should be encouraged.

Descritores: comités de ética em pesquisa; termos de consentimento; consentimento informado por menores; criança; adolescente. Descriptors: ethics committees, research; consent forms; informed consent by minors; child; adolescent.

Resumo O objetivo do presente estudo foi compreender os sentidos subjetivos atribuídos pelos cuidadores familiares de idosos dependentes do cuidado ofertado no domicílio, por meio de uma investigação qualitativa multicêntrica que reúne entrevistas em profundidade com 84 cuidadores familiares em oito localidades no Brasil. Utilizou-se o referencial teórico metodológico hermenêutico-dialético. Na leitura das entrevistas emergiram as seguintes categorias que serviram de base para as análises: 1. Movimentos de inibição de emoções e sentimentos; 2. Presença de processos de simbiose e de dependência emocional na relação entre idoso e familiar; 3. Contentamento em cuidar do idoso dependente; e 4. Renúncia a projetos de vida atuais e futuros. Os resultados apontam vivências marcadas por processos de simbiose, dependência emocional e estresse psíquico. A dependência gera sofrimento e sentimentos de desespero, impotência, impaciência, mas também de solidariedade e empatia. A renúncia ao trabalho profissional, a desvalorização social da atividade de cuidador familiar, o isolamento social, o cuidado “descuidado” de si e os conflitos familiares influenciam a subjetividade dos cuidadores. A formulação de políticas públicas precisa considerar as vivências socioafetivas dos cuidadores familiares de idosos dependentes, para nelas incluir o cuidado de quem cuida. Abstract This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver’s activity, social isolation, neglected self-care, and family conflicts impact caregivers’ subjectivity. The elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.

Resumo Objetivo: Analisar as evidências científicas da violência praticada contra a pessoa idosa, com destaque para a prevalência, o perfil da vítima e os fatores de risco. Métodos: Revisão integrativa de artigos disponíveis nas bases de dados da PubMed®, Cumulative Index to Nursing and Allied Health Literature (CINAHL), Banco de Dados em Enfermagem (BDENF), Scientific Electronic Library Online (SciELO) e Literatura Latino-Americana e do Caribe em Ciências da Saúde (LILACS), publicados entre 2015 a 2019, a partir dos descritores: “idoso”, “ elderly ”, “ older person ” , “ aged ”, “ old ”, “ exposure to violence ”, “exposição à violência”, “ aging ”, envelhecimento”, “ elder abuse ” , “ domestic violence ” , “ violence ”, “violência”, “maus-tratos ao idoso” e “violência doméstica”. Para refinamento, foram utilizadas as quatro fases do diagrama de fluxo de seleção de artigos do PRISMA. Resultados: Foram identificados 17 artigos que apresentaram como fatores de risco aumentados para a violência contra a pessoa idosa idade avançada, disfuncionalidade familiar, falta de acesso a direitos sociais e condições crônicas de incapacidade. Conclusão: O estudo traz contribuições diretas para os profissionais e setores interessados no enfrentamento da violência contra a pessoa idosa, a qual possui alta prevalência na sociedade atual.

Objective. To identify the nursing guidelines for caregivers of children with congenital heart disease (CHD) after hospital discharge. Methods. This is an integrative literature review of articles published between 2016 and 2022. In order to select the studies, the controlled descriptors \"Nursing Care\", \"Nursing\", \"Heart Defects, Congenital\", \"Caregivers\" and \"Child\" were used in four scientific databases--LILACS, SCIELO, PUBMED and BDENF. Results. The current integrative literature review analyzed 11 articles from the original sample. The main nursing care issues are those related to nutrition, oral health, leisure and physical activity, care with medication and the surgical wound, as well as the need to offer support to these children's families. The authors emphasize that nurses are present at various moments in a child's life, including at birth, but the approach to CHD is scarce in their basic training as nurses, as well as in their professional practice, and there is a shortage of continuing education proposals for the care of children with CHD. Conclusion. The study showed that nursing guidelines are focused on basic care and family support for these children. Lastly, this study highlighted the important role of nurses in terms of consolidating guidelines on the care needs of these children. Descriptors: nursing care; nursing; heart defects, congenital; caregivers; children. Objetivo. Identificar las orientaciones de enfermeria para los cuidadores de ninos con cardiopatia congenita (CC) despues del alta hospitalaria. Metodos. Se trata de una revision bibliografica integradora de los articulos publicados entre 2016 a 2022. Se utilizaron los descriptores controlados \"Nursing Care\", \"Nursing\",\"Heart Defects, Congenital\", \"Caregivers\" y \"Child\" para seleccionar los estudios en cuatro bases de datos cientificas--LILACS, SCIELO, PUBMED y BDENF. Resultados. Se analizaron 11 articulos de la muestra original en esta revision. Los principales tipos de cuidados de enfermeria son los aspectos relacionados con la nutricion, la salud bucodental, el ocio y la actividad fisica, los cuidados con la medicacion y la herida quirurgica, asi como la necesidad de ofrecer apoyo a las familias de estos ninos. Los autores enfatizan que, aunque, las enfermeras estan presentes en diversos momentos de la vida del nino, incluyendo el nacimiento, el abordaje de la ECC es escaso en su formacion basica como enfermeras, asi como en su practica profesional, y faltan propuestas de formacion continua en el cuidado de estos ninos. Conclusion. El estudio mostro que las orientaciones de enfermeria se centran en los cuidados basicos y en el apoyo familiar a ninos con ECC. Por ultimo, este estudio se evidencio el importante papel de las enfermeras en la consolidacion de las orientaciones para las necesidades de atencion de estos ninos. Descriptores: atencion de enfermeria; enfermeria; cardiopatias congenitas; cuidadores; ninos. Objetivo. Identificar as orientacoes de enfermagem para cuidadores de criancas com cardiopatias congenitas (CC) apos alta hospitalar. Metodos. Trata-se de uma revisao integrativa da literatura de artigos publicados entre 2016 e 2022. Para selecao dos estudos, foram utilizados os descritores controlados \"Nursing Care\", \"Nursing\", \"Heart Defects, Congenital\", \"Caregivers\"), y \"Child\" em duas bases de dados cientificos--LILACS, SCIELO, PUBMED e BDENF. Resultados. Na presente revisao integrativa da literatura, foram analisados onze artigos da amostra original. Os principais cuidados de enfermagem sao os relacionados com a alimentacao, saude bucal, lazer e atividade fisica, cuidados com medicamentos e com a ferida operatoria, como tambem a necessidade de oferecer apoio a familia dessas criancas. Os autores ressaltam que o enfermeiro esta presente em diversos momentos da vida da crianca, inclusive, no nascimento, porem a abordagem sobre CC e escassa na sua formacao basica como enfermeiro, assim como em sua atuacao profissional, percebendo-se escassez de propostas de educacao continuada para o cuidado de criancas com CC. Conclusao. O estudo apontou que as orientacoes de enfermagem estao voltadas ao cuidados basicos da assistencia e ao apoio familiar dessas criancas. Por fim, foi evidenciado nessa pesquisa o importante papel do enfermeiro para a consolidacao das orientacoes das necessidades voltadas ao cuidar dessas criancas. Descritores: cuidados de enfermagem; enfermagem; cardiopatias congenitas; cuidadores; criancas.