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The ethics of ability and enhancement
This book explores our ethical responsibilities regarding health in general and disabilities in particular. Disability studies and human enhancement stand out as two emerging areas of research in medical ethics, prompting debates into ethical questions of identity, embodiment, discrimination, and accommodation, as well as questions concerning distributive justice and limitations on people's medical rights. Edited by two ethicist philosophers, this book combines their mastery of the theoretical debates surrounding disability and human enhancement with attention to real world questions that health workers and patients may face. By including a wide range of high-quality voices and perspectives, the book provides an invaluable resource for scholars who are working on this important and emerging area of leadership and health care ethics.
Book
Four ethical priorities for neurotechnologies and AI
Current BCI technology is mainly focused on therapeutic outcomes, such as helping people with spinal-cord injuries. It might take years or even decades until BCI and other neurotechnologies are part of our daily lives. Such advances could revolutionize the treatment of many conditions, from brain injury and paralysis to epilepsy and schizophrenia, and transform human experience for the better. But the technology could also exacerbate social inequalities and offer corporations, hackers, governments or anyone else new ways to exploit and manipulate people.
Journal Article
The battle for your brain : defending the right to think freely in the age of neurotechnology
\"A rock star academic explores the final frontier of personal privacy: your mind. Imagine a world where your brain can be interrogated to learn your political beliefs, thought crimes are punishable by law, and your own feelings can be used against you. Where perfumers create customized fragrances to perfectly suit your emotions, and social media titans bypass your conscious mind to hook you to their products. A world where people who suffer from epilepsy receive alerts moments before a seizure, and the average person can peer into their own mind to eliminate painful memories or cure addictions. Neuroscience has already made all of the above possible today, and neurotechnology will soon become the \"universal controller\" for all of our interactions with technology. This can benefit humanity immensely, but without safeguards, it can severely threaten our fundamental human rights to privacy, freedom of thought, and self-determination. Companies, governments, and militaries are all in: from contemplative neuroscience to consumer-based EEG technology, there have never been more ways to hack and track our brains. But access is just the beginning. Our brains can be changed with performance-boosting drugs, electrical stimulation, and even surgical interventions. Soon neuro-cinema, neuro-monitoring, and even cognitive warfare will be commonplace -- the brain is the next battleground for humanity. The Battle for Your Brain by Nita A. Farahany dives deeply into the promises and perils of the coming dawn of brain access and alteration. Written by one of the world's foremost experts on neuroscience as it intersects with law and ethics, this highly original book offers a pathway forward to navigate the complex ethical dilemmas that neurotechnology presents, which will fundamentally impact our freedom to understand, shape, and define ourselves\"-- Provided by publisher.
Book
Ethical principles for the use of human cellular biotechnologies
A group of interdisciplinary delegates drawn from the top biotech-producing countries of the world offers a consensus statement outlining a set of principles important to consider in the ethical conversation about human cellular biotechnological research moving forward.
Recent developments in bioengineering promise the possibility of new diagnostic and treatment strategies, novel industrial processes, and innovative approaches to thorny problems in fields such as nutrition, agriculture, and biomanufacturing. As modern genetics has matured and developed technologies of increasing power, debates over risk assessments and proper applications of the technology, and over who should have decision-making power over such issues, have become more prominent. Recently, some scientists have advocated that ethicists “step out of the way,” whereas others have called for greater ethical scrutiny, or even for moratoria on some lines of research
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. As a community, however, we must together determine the proper application of these powerful biological tools. This paper, a consensus statement of a group of interdisciplinary delegates drawn from the top biotech-producing countries of the world, offers a set of ethical principles to contribute to the ethical conversation about human cellular biotechnological research moving forward.
Journal Article
Regulate gene editing in wild animals
Altering wild animal populations using gene drive aims to rapidly disrupt a particular trait, such as the ability of Anopheles mosquitoes to transmit malaria. From the standpoint of ethics, it is not clear why trait modification is by definition a bad thing.
Journal Article
Applications and ethics of computer-designed organisms
Computer-designed organisms — biobots, such as xenobots — are at the intersection of synthetic developmental biology and machine learning. This technology, which enables the evolution of real, living forms to take place in a virtual world, is part of an emerging new research field with applications in biomedicine and engineering, and raises profound philosophical questions.Michael Levin and colleagues discuss how computer-designed organisms ― biobots and xenobots ― are driving a new research field with applications in biomedicine and engineering, and associated ethical and philosophical questions.
Journal Article
Validity and Reliability of an Instrument for Assessing Case Analyses in Bioengineering Ethics Education
Assessment in ethics education faces a challenge. From the perspectives of teachers, students, and third-party evaluators like the Accreditation Board for Engineering and Technology and the National Institutes of Health, assessment of student performance is essential. Because of the complexity of ethical case analysis, however, it is difficult to formulate assessment criteria, and to recognize when students fulfill them. Improvement in students’ moral reasoning skills can serve as the focus of assessment. In previous work, Rosa Lynn Pinkus and Claire Gloeckner developed a novel instrument for assessing moral reasoning skills in bioengineering ethics. In this paper, we compare that approach to existing assessment techniques, and evaluate its validity and reliability. We find that it is sensitive to knowledge gain and that independent coders agree on how to apply it.
Journal Article
The Role of Professional Knowledge in Case-Based Reasoning in Practical Ethics
The use of case-based reasoning in teaching professional ethics has come of age. The fields of medicine, engineering, and business all have incorporated ethics case studies into leading textbooks and journal articles, as well as undergraduate and graduate professional ethics courses. The most recent guidelines from the National Institutes of Health recognize case studies and face-to-face discussion as best practices to be included in training programs for the Responsible Conduct of Research. While there is a general consensus that case studies play a central role in the teaching of professional ethics, there is still much to be learned regarding how professionals learn ethics using case-based reasoning. Cases take many forms, and there are a variety of ways to write them and use them in teaching. This paper reports the results of a study designed to investigate one of the issues in teaching case-based ethics: the role of one’s professional knowledge in learning methods of moral reasoning. Using a novel assessment instrument, we compared case studies written and analyzed by three groups of students whom we classified as: (1) Experts in a research domain in bioengineering. (2) Novices in a research domain in bioengineering. (3) The non-research group—students using an engineering domain in which they were interested but had no in-depth knowledge. This study demonstrates that a student’s level of understanding of a professional knowledge domain plays a significant role in learning moral reasoning skills.
Journal Article
Reengineering Biomedical Translational Research with Engineering Ethics
It is widely accepted that translational research practitioners need to acquire special skills and knowledge that will enable them to anticipate, analyze, and manage a range of ethical issues. While there is a small but growing literature that addresses the ethics of translational research, there is a dearth of scholarship regarding how this might apply to engineers. In this paper we examine engineers as key translators and argue that they are well positioned to ask transformative ethical questions. Asking engineers to both broaden and deepen their consideration of ethics in their work, however, requires a shift in the way ethics is often portrayed and perceived in science and engineering communities. Rather than interpreting ethics as a roadblock to the success of translational research, we suggest that engineers should be encouraged to ask questions about the socio-ethical dimensions of their work. This requires expanding the conceptual framework of engineering beyond its traditional focus on “how” and “what” questions to also include “why” and “who” questions to facilitate the gathering of normative, socially-situated information. Empowering engineers to ask “why” and “who” questions should spur the development of technologies and practices that contribute to improving health outcomes.
Journal Article
Biomedical ethics for engineers : ethics and decision making in biomedical and biosystem engineering
Biomedical Ethics for Engineers provides biomedical engineers with a new set of tools and an understanding that the application of ethical measures will seldom reach consensus even among fellow engineers and scientists. The solutions are never completely technical, so the engineer must continue to improve the means of incorporating a wide array of societal perspectives, without sacrificing sound science and good design principles.Dan Vallero understands that engineering is a profession that profoundly affects the quality of life from the subcellular and nano to the planetary scale. Protecting and enhancing life is the essence of ethics; thus every engineer and design professional needs a foundation in bioethics. In high-profile emerging fields such as nanotechnology, biotechnology and green engineering, public concerns and attitudes become especially crucial factors given the inherent uncertainties and high stakes involved. Ethics thus means more than a commitment to abide by professional norms of conduct. This book discusses the full suite of emerging biomedical and environmental issues that must be addressed by engineers and scientists within a global and societal context. In addition it gives technical professionals tools to recognize and address bioethical questions and illustrates that an understanding of the application of these measures will seldom reach consensus even among fellow engineers and scientists. · Working tool for biomedical engineers in the new age of technology· Numerous case studies to illustrate the direct application of ethical techniques and standards· Ancillary materials available online for easy integration into any academic program
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