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Pop! The Bioethics Podcast: Promoting Patient Partnership and Community Engagement by Exploring Bioethics in Popular Media
Emergent responses to the COVID-19 pandemic contributed to a general disconnect in communication between healthcare, academic, and public communities across the globe. The resultant lack of cohesion in public messaging gave rise to widespread fatigue exacerbated by misinformation and frustration with healthcare systems. Today, public mistrust remains a serious impediment to patient care and population health outcomes, calling us to take seriously the task of improving the ways we engage patients and communities as partners in understanding healthcare practices, issues, and bioethical challenges. For a vastly diverse audience, popular media can play an invaluable role in generating awareness of, and inviting participation in, consideration of complex ethical issues. Media in all of its various forms is digestible, immersive, and accessible for broad audiences, and its narratives engage and transport people in ways that generate empathy. When health and other educational messages are integrated into pop culture mediums, they have the power to promote awareness and influence attitudes about contemporary health and socio-cultural issues. The use of health messaging in entertainment is well documented, but media remains underutilized as a tool for creating stronger, more open dialogue among patients and communities. Pop! The Bioethics Podcast attempts to explore the integration of bioethical issues in entertainment as a way of bridging the gap between experts and the public. Over ten episodes, this podcast captures the perspectives of several experts who speak to bioethical topics and challenges such as healthcare decision making, reproductive and research ethics, mental health and addiction as they appear in popular film and television. Through this example, our presentation will demonstrate the value of utilizing media as a strategy for patient engagement. Bioethical issues are often highly technical, critically nuanced, and emotionally charged such that holding conversation on these topics is uncommon in daily life; however, these concepts are pervasive amongst the media we consume every day. By identifying the bioethical aspects of media with which people are already familiar, this project aims to make complex bioethical questions more accessible to the public and, in doing so, promote meaningful collaboration between media, healthcare professionals, and the communities they serve.
Journal Article
RETRACTED: Johnson et al. Effect of Education on Adherence to Recommended Prenatal Practices Among Indigenous Ngäbe–Buglé Communities of Panama. Medicina 2024, 60, 1055
The journal retracts the article titled \"Effect of Education on Adherence to Recommended Prenatal Practices among Indigenous Ngäbe-Buglé Communities of Panama\" [...].The journal retracts the article titled \"Effect of Education on Adherence to Recommended Prenatal Practices among Indigenous Ngäbe-Buglé Communities of Panama\" [...].
Journal Article
The methods of bioethics : an essay in meta-bioethics
This is the first book in bioethics that explains how it is that you actually go about doing good bioethics. Bioethics has made a mistake about its methods, and this has led not only to too much theorizing, but also fragmentation within bioethics. The unhelpful disputes between those who think bioethics needs to be more philosophical, more sociological, more clinical, or more empirical, continue. While each of these claims will have some point, they obscure what should be common to all instances of bioethics. Moreover, they provide another phantom that can lead newcomers to bioethics down blind alleyways stalked by bristling sociologists and philosophers. The method common to all bioethics is bringing moral reason to bear upon ethical issues, and it is more accurate and productive to clarify what this involves than to stake out a methodological patch that shows why one discipline is the most important. This book develops an account of the nature of bioethics and then explains how a number of methodological spectres have obstructed bioethics becoming what it should. In the final part, it explains how moral reason can be brought to bear upon practical issues via an 'empirical, Socratic' approach.
Book
Standards of practice in empirical bioethics research: towards a consensus
Background
This paper reports the process and outcome of a consensus finding project, which began with a meeting at the Brocher Foundation in May 2015. The project sought to generate and reach consensus on standards of practice for Empirical Bioethics research. The project involved 16 academics from 5 different European Countries, with a range of disciplinary backgrounds.
Methods
The consensus process used a modified Delphi approach.
Results
Consensus was reached on 15 standards of practice, organised into 6 domains of research practice (Aims, Questions, Integration, Conduct of Empirical Work, Conduct of Normative Work; Training & Expertise).
Conclusions
Through articulating these standards we outline a position that encourages responses, and through those responses we will be able to identify points of agreement and contestation that will drive the conversation forward. In that vein, we would encourage researchers, funders and journals to engage with what we have proposed, and respond to us, so that our community of practice of empirical bioethics research can develop and evolve further.
Journal Article
Experimental philosophical bioethics and normative inference
This paper explores an emerging sub-field of both empirical bioethics and experimental philosophy, which has been called “experimental philosophical bioethics” (bioxphi). As an empirical discipline, bioxphi adopts the methods of experimental moral psychology and cognitive science; it does so to make sense of the eliciting factors and underlying cognitive processes that shape people’s moral judgments, particularly about real-world matters of bioethical concern. Yet, as a normative discipline situated within the broader field of bioethics, it also aims to contribute to substantive ethical questions about what should be done in a given context. What are some of the ways in which this aim has been pursued? In this paper, we employ a case study approach to examine and critically evaluate four strategies from the recent literature by which scholars in bioxphi have leveraged empirical data in the service of normative arguments.
Journal Article
A life-centered approach to bioethics : biocentric ethics
\"This book applies a discussion of the nature of human life to resolving bioethical issues\" -- Provided by publisher.
Book
