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What is digital business reporting? Why do we need it? And how can we improve it? This book aims to address these questions by illustrating the rise of system-to-system information exchange and the opportunities for improving transparency and accountability. Governments around the world are looking for ways to strengthen transparency and accountability without introducing more red tape, which is a source of growing frustration and costs for businesses. In 2004, the Ministry of Finance and the Ministry of Justice in the Netherlands started to investigate the potential of XBRL (eXtensible Business Reporting Language) as a uniform data standard for business-to-government information exchange. In 2006, there was a comprehensive architecture for Standard Business Reporting (SBR), including the requirements for the information infrastructure. One year later the first reports in XBRL were successfully delivered to the Tax and Customs Administration and the Chamber of Commerce via a secure infrastructure. Today, millions of business reports are being exchanged using SBR. As a solution, SBR empowers organisations to present a cohesive explanation of their business operations and helps them engage with internal and external stakeholders, including regulators, shareholders and creditors.Challenging the chain describes the journey of SBR from challenge to solution. Specialists in the field – flanked by academics – provide detailed insights on the challenges actors faced and the solutions they achieved. In its versatility, this book exemplifies the necessary paradigm shifts when it comes to such large-scale public-private transformations. Policy makers, managers, IT specialists and architects looking to engage in such transformations will find guidance in this book.

This authoritative handbook serves as your one-stop guide to understanding and complying with the complex, evolving world of corporate privacy law. Written in clear, non-technical language, the book breaks the privacy compliance universe into manageable parts. You find guidance on collecting and using customer information. You learn how to comply with data protection laws. The book helps you understand the industry-specific obligations of banks, healthcare providers, communications companies and other lines of business. You get the latest details on protecting employer interests while respecting employee privacy. Moreover, you find guidelines on the lawful use of telemarketing, fax advertising, and commercial email. This comprehensive resource also covers compliance for companies doing business with, and in, Europe under the European Union Data Protection Directive. This practical book supports key topics with practice tips, excerpts from relevant laws and regulations, and appendices that list many of the more important federal and state privacy laws.

This authoritative handbook serves as your one-stop guide to understanding and complying with the complex, evolving world of corporate privacy law. You find guidance on collecting and using customer information, learn how to comply with data protection laws and understand the industry-specific obligations of banks, healthcare providers, communications companies and other lines of business.

This book was written to demystify critical standards related to information security, records management privacy information management for the modern librarian and archival professional. In the digital age, librarians and archival professionals play a crucial role in safeguarding the world's knowledge. A Librarian's Guide to ISO Standards for Information Governance, Privacy, and Security is a curated resource for librarians, presenting core ISO standards related to information governance, data privacy, and security. The book provides detailed summaries of these standards, along with case studies and advice on applying them in the modern digital age. It empowers library staff and patrons to prioritize data security and privacy, ensuring trust and confidentiality in their services. The purpose is to demystify critical standards related to information security, records management privacy information management for the modern librarian and archival professional. Inside, you will find detailed summaries of the core ISO standards, descriptions, and case studies illustrating how these standards can apply to librarians in the modern digital age, advice on how to cultivate a culture of data security, and privacy awareness among library staff and patrons.

Electronic medical records (EMRs) facilitate fast and accurate access to patient records, which could improve diagnosis and patient monitoring. Using a 12-year county-level panel, we find that a 10 percent increase in births that occur in hospitals with EMRs reduces neonatal mortality by 16 deaths per 100,000 live births. This is driven by a reduction of deaths from conditions requiring careful monitoring. We also find a strong decrease in mortality when we instrument for EMR adoption using variation in state medical privacy laws. Rough cost-effectiveness calculations suggest that EMRs are associated with a cost of $531,000 per baby’s life saved.

With the expansion of technology and governance, the information governance industry has experienced dramatic and often, sudden changes. Among the most important shifts are the proliferation of data privacy rules and regulations, the exponential growth of data and the need for removing redundant, obsolete, and trivial information and the growing threat of litigation and regulatory fines based on a failure to properly keep records and manage data. At the same time, longstanding information governance standards and best practices exist, which transcend the sudden vicissitudes of the day. This volume focuses on these core IG principles, with an emphasis on how they apply to our target audience, which includes law librarians, legal and research staff and other individuals and departments in both the public and private sectors who engage deeply with regulatory compliance matters. Core topics that will be addressed include: * the importance of implementing and maintaining cohesive records management workflows that implement the classic principles of capturing, checking, recording, consolidation, and review; * the classic records management principles of Accountability, Transparency, Integrity, Protection, Compliance, Accessibility, Retention and Disposition; and * archives Management and the two principles of Providence and Original Order.

The 2009 Health Information Technology for Economic and Clinical Health (HITECH) Act is landmark legislation that places electronic health record (EHR) technologies at the center of health system reform in the United States. This study leverages the meaningful use (MU) provisions of the HITECH Act to quantify different degrees of EHR use in a large and heterogeneous set of hospitals and investigates the impact of EHR use on quality of care. The results provide evidence of EHRs’ positive quality effects and reconcile earlier mixed findings in the EHR evaluation literature by showing that their benefits vary according to different levels of use and hospital characteristics. The effect sizes were larger in disadvantaged (i.e., small and rural) hospitals, suggesting the potential of EHRs in mitigating the disparities in the quality of healthcare. The 2009 Health Information Technology for Economic and Clinical Health (HITECH) Act is landmark legislation that places electronic health record (EHR) technologies at the center of health system reform in the United States. However, despite their promises, studies in the EHR evaluation literature have found mixed evidence of EHRs’ quality benefits. In contrast to existing research that has focused on EHR investments or adoption, we propose that its actual use should be the focus in evaluating the advantages of EHRs. We leveraged the meaningful use (MU) provisions of the HITECH Act to quantify different degrees of EHR use in a large and heterogeneous set of hospitals. The results provided evidence of EHRs’ positive effects on quality of care and reconciled earlier mixed findings by showing that their benefits vary according to different levels of use and hospital characteristics. Specifically, we found that, although adopting EHRs had no significant quality impact, attaining MU of EHRs yielded a significant 0.19–0.43 percentage point increase in process quality of care, which further translates into significant societal benefits. The effect sizes were larger in disadvantaged (i.e., small and rural) hospitals, suggesting the potential of EHRs in mitigating the disparities in the quality of healthcare. This study contributes to this ongoing discussion and the literature on EHR evaluations and use of information systems. Implications for research, policy, and practice are discussed. The online appendices are available at https://doi.org/10.1287/isre.2018.0813 .

In this article we draw on the concept of a social licence to explain public concern at the introduction of care.data, a recent English initiative designed to extract data from primary care medical records for commissioning and other purposes, including research. The concept of a social licence describes how the expectations of society regarding some activities may go beyond compliance with the requirements of formal regulation; those who do not fulfil the conditions for the social licence (even if formally compliant) may experience ongoing challenge and contestation. Previous work suggests that people's cooperation with specific research studies depends on their perceptions that their participation is voluntary and is governed by values of reciprocity, non-exploitation and service of the public good. When these conditions are not seen to obtain, threats to the social licence for research may emerge. We propose that care.data failed to adequately secure a social licence because of: (i) defects in the warrants of trust provided for care.data, (ii) the implied rupture in the traditional role, expectations and duties of general practitioners, and (iii) uncertainty about the status of care.data as a public good. The concept of a social licence may be useful in explaining the specifics of care.data, and also in reinforcing the more general lesson for policy-makers that legal authority does not necessarily command social legitimacy.

Context: Congress has raised concerns about providers and electronic health record (EHR) vendors knowingly engaging in business practices that interfere with electronic health information exchange (HIE). Such \"information blocking\" is presumed to occur because providers and vendors reap financial benefits, but these practices harm public good and substantially limit the value to be gained from EHR adoption. Crafting a policy response has been difficult because, beyond anecdotes, there is no data that captures the extent of information blocking. Methods: We conducted a national survey of leaders of HIE efforts who work to enable HIE across provider organizations. We asked them about the frequency of information blocking, its specific forms, and the effectiveness of various policy strategies to address it. We received responses from 60 individuals (57% response rate). We calculated descriptive statistics across responses. Findings: Half of respondents reported that EHR vendors routinely engage in information blocking, and 25% of respondents reported that hospitals and health systems routinely do so. Among EHR vendors, the most common form of information blocking was deploying products with limited interoperability. Among hospitals and health systems, the most common form was coercing providers to adopt particular EHR or HIE technology. Increasing transparency of EHR vendor business practices and product performance, stronger financial incentives for providers to share information, and making information blocking illegal were perceived as the most effective policy remedies. Conclusions: Information blocking appears to be real and fairly widespread. Policymakers have some existing levers that can be used to curb information blocking and help information flow to where it is needed to improve patient care. However, because information blocking is largely legal today, a strong response will involve new legislation and associated enforcement actions.

Building privacy and security protections into health information technology systems will bolster trust in such systems and promote their adoption. The privacy issue, too long seen as a barrier to electronic health information exchange, can be resolved through a comprehensive framework that implements core privacy principles, adopts trusted network design characteristics, and establishes oversight and accountability mechanisms. The public policy challenges of implementing this framework in a complex and evolving environment will require improvements to existing law, new rules for entities outside the traditional health care sector, a more nuanced approach to the role of consent, and stronger enforcement mechanisms. [PUBLICATION ABSTRACT]