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"Cancer in children"
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If : a mother's memoir
\"An eloquent, heartfelt account of a young boy's fight with cancer and of a mother's determination and resilience, which sees their family through to his recovery. As her ten-year-old son sits at the kitchen table one evening, Lise Marzouk inspects his mouth and discovers an unusual growth, which doctors later confirm is cancerous. When he is hospitalized at the Curie Institute in Paris for lymphoma treatment, Lise finds herself torn between two worlds, one at his bedside, and the other at home with her two younger children, struggling to maintain a sense of stability in their lives. And so she writes--of their fears and doubts, but also of their moments of tenderness and joy--and through these memories, stories, and reveries, she arrives at a deeper understanding of herself as a woman, a mother, and a writer. Brimming with a rebellious sense of hope, If offers an intimate look at how a mother's love and support enabled her family to come out of a devastating experience stronger and more connected\"-- Provided by publisher.
Book
Love, Ish
Twelve-year-old Mischa \"Ish\" Love's longtime dream has been to someday live on Mars, but when she collapses on the first day of seventh grade an unexpected medical diagnosis threatens to rewrite her future.
BOOK
Health-related quality of life and its determinant factors in Thai children with cancer: parents vs. children perspectives
Background
Health-related quality of life (HRQOL) is a vital assessment to demonstrate the achievement in pediatric cancer care parallels that of medical treatment. The Pediatric Quality of Life Inventory (PedsQL) 3.0 Cancer Module in the Thai Version has become a standard tool to access the HRQOL among Thai children with cancer and their families. This study aimed to explore the HRQOL and factors related to HRQOL among pediatric oncology patients using the PedsQL 3.0 Cancer Module.
Methods
In 2018–2019, a single-institution, cross-sectional study was conducted among children with cancer and their families in Bangkok, Thailand. A paired-sample
t
-test was performed to evaluate the differences between the HRQOL scores of the child and parents' reports. Linear regression was used to evaluate factors associated with HRQOL and which particular domains of the PedsQL 3.0 Cancer Module were influenced.
Results
Eighty-five children with cancer and their families were enrolled. The patients’ mean age was 10.82 ± 5.48 years. The most common cancer types included acute lymphoblastic leukemia (
n
= 32, 67%), central nervous system tumors (
n
= 13, 15%), osteosarcoma (
n
= 10, 27%) and neuroblastoma (
n
= 9, 24%), in rank. The mean HRQOL scores in child and parent reports were 74.37 ± 15.7 and 70.42 ± 17.15, respectively (
p
= 0.034). Factors negatively correlated to HRQOL in parent reports were the number of outpatient visits (
p
= 0.019) and hospital admissions (
p
= 0.002). The number of hospitalizations was the only independent factor that affected HRQOL (
p
= 0.044). The number of outpatient visits and/or hospital admissions was influenced by pain and hurt, nausea, procedural anxiety and communication domains (
p
< 0.05). Only the number of hospitalizations was an independent factor influencing the procedural anxiety domain in HRQOL (
p
= 0.005).
Conclusion
HRQOL among Thai children with cancer was desirable from both children's and parent's perspectives. Differences between child and parent HRQOL scores were observed. The number of outpatient visits and hospital admissions affected HRQOL, particularly in the procedural anxiety aspect.
Trial registration
Thai Clinical Trials Registry (TCTR) Number: TCTR20200904001 (04/09/2020),
https://www.thaiclinicaltrials.org/
.
Journal Article
Mustaches for Maddie
\"Maddie is a normal twelve-year-old, but when a CT scan reveals she has a brain tumor, it will take all her imagination, courage, and support from her friends and family to meet this new challenge\"-- Provided by publisher.
Book
Correction: Childhood cancer survival in the highly vulnerable population of South Texas: A cohort study
[This corrects the article DOI: 10.1371/journal.pone.0278354.].
Journal Article
Designing an exercise intervention for adult survivors of childhood cancers
Background
This study examined current physical activity levels and preferences for exercise settings and activities among adult survivors of childhood cancers as a strategy to inform the feasibility and design of such programs.
Methods
A mixed-methods design was used to investigate current activity levels as well as barriers to and preferences for physical activity among 20 adult survivors of pediatric cancer.
Results
One-half of participants reported engaging in regular physical activity, although the frequency, intensity, and duration varied. Overall, 17 of the 20 participants (85%) stated they would be interested in participating in a structured exercise intervention, and they expressed a strong interest in walking (76%), bicycling (53%), and weight training (53%). Common barriers to participation in a potential structured exercise program were insufficient time, current health issues, and program location/distance. Nearly all participants agreed that information on nutrition and diet should be included as part of an exercise intervention.
Conclusions
These findings will help inform the design and implementation of future exercise programs to enhance physical activity among this high-risk group of cancer survivors.
Journal Article