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"Caring sciences"
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Measuring care transitions in Sweden
by
LINDBLAD, MARLÉNE
,
TESSMA, MESFIN
,
EKSTEDT, MIRJAM
in
Care transitions measure
,
Caring Science
,
Health and Caring Sciences
2018
Abstract
Objective
To translate and assess the validity and reliability of the original American Care Transitions Measure, both the 15-item and the shortened 3-item versions, in a sample of people in transition from hospital to home within Sweden.
Design
Translation of survey items, evaluation of psychometric properties.
Setting
Ten surgical and medical wards at five hospitals in Sweden.
Participants
Patients discharged from surgical and medical wards.
Main outcome measure
Psychometric properties of the Swedish versions of the 15-item (CTM-15) and the 3-item (CTM-3) Care Transition Measure.
Results
We compared the fit of nine models among a sample of 194 Swedish patients. Cronbach’s alpha was 0.946 for CTM-15 and 0.74 for CTM-3. The model indices for CTM-15 and CTM-3 were strongly indicative of inferior goodness-of-fit between the hypothesized one-factor model and the sample data. A multidimensional three-factor model revealed a better fit compared with CTM-15 and CTM-3 one factor models. The one-factor solution, representing 4 items (CTM-4), showed an acceptable fit of the data, and was far superior to the one-factor CTM-15 and CTM-3 and the three-factor multidimensional models. The Cronbach’s alpha for CTM-4 was 0.85.
Conclusions
CTM-15 with multidimensional three-factor model was a better model than both CTM-15 and CTM-3 one-factor models. CTM-4 is a valid and reliable measure of care transfer among patients in medical and surgical wards in Sweden. It seems the Swedish CTM is best represented by the short Swedish version (CTM-4) unidimensional construct.
Journal Article
Verbalizing spiritual needs in palliative care: a qualitative interview study on verbal and non-verbal communication in two Danish hospices
by
Voetmann, Sara Stage
,
Hvidt, Niels Christian
,
Viftrup, Dorte Toudal
in
Denmark
,
Existential psychology
,
Health aspects
2022
Denmark is considered one of the World’s most secular societies, and spiritual matters are rarely verbalized in public. Patients report that their spiritual needs are not cared for sufficiently. For studying spiritual care and communication, twelve patients admitted to two Danish hospices were interviewed. Verbal and non-verbal communication between patients and healthcare professionals were identified and analysed. Methodically, the Interpretative Phenomenological Analysis was used, and the findings were discussed through the lenses of existential psychology as well as philosophy and theory of caring sciences. Three themes were identified: 1.
When death becomes present,
2
. Direction of the initiative,
and 3.
Bodily presence and non-verbal communication.
The encounter between patient and healthcare professional is greatly influenced by sensing, decoding, and interpretation. A perceived connection between the patient and the healthcare professional is of great importance as to how the patient experiences the relationship with the healthcare professional.The patient’s perception and the patient’s bodily experience of the healthcare professional are crucial to whether the patient opens up to the healthcare professional about thoughts and needs of a spiritual nature and initiates a conversation hereabout. In this way we found three dynamically connected movements toward spiritual care: 1. From secular to spiritual aspects of care 2. From bodily, sensory to verbal aspects of spiritual care and 3. From biomedical to spiritual communication and care. Thus, the non-verbal dimension becomes a prerequisite for the verbal dimension of spiritual communication to develop and unfold. The behaviour of the healthcare professionals, characterised by the way they move physically and the way they touch the patient, was found to be just as important as verbal conversation when it comes to spiritual care. The healthcare professional can create a connection to the patient through bodily and relational presence. Furthermore, the healthcare professionals should let their sensing and impressions guide them when meeting the patient in dialog about matters of a spiritual nature. Their perception of the patient and non-verbal communication are a prerequisite for being able to meet patient’s spiritual needs with care and verbal communication.
Journal Article
The symphony of open-heart surgical care: A mixed-methods study about interprofessional attitudes towards family involvement
by
Ericsson, Elisabeth
,
Arvidsson-Lindvall, MiaLinn
,
Ågren, Susanna
in
Attitude
,
Attitude of Health Personnel
,
Attitudes
2023
The overall aim of this study was to describe the attitudes towards family involvement in care held by nurses and medical doctors working in open-heart surgical care and the factors influencing these attitudes.
Mixed-methods convergent parallel design. A web-based survey was completed by nurses (n = 267) using the Families' Importance in Nursing Care-Nurses Attitudes (FINC-NA) instrument and two open-ended questions, generating one quantitative and one qualitative dataset. Qualitative interviews with medical doctors (n = 20) were conducted in parallel, generating another qualitative dataset. Data were analysed separately according to each paradigm and then merged into mixed-methods concepts. Meta-inferences of these concepts were discussed.
The nurses reported positive attitudes in general. The two qualitative datasets from nurses and medical doctors resulted in the identification of seven generic categories. The main mixed-methods finding was the attitude that the importance of family involvement in care depends on the situation.
The dependence of family involvement on the situation may be due to the patient's and family's unique needs. If professionals' attitudes rather than the family's needs and preferences determine how the family is involved, care runs the risk of being unequal.
Journal Article
Lifeworld-led healthcare is more than patient-led care: an existential view of well-being
by
Todres, Les
,
Dahlberg, Karin
,
Galvin, Kathleen
in
Attitude to Health
,
Caring Science
,
Caring sciences
2009
In this paper we offer an appreciation and critique of patient-led care as expressed in current policy and practice. We argue that current patient-led approaches hinder a focus on a deeper understanding of what patient-led care could be. Our critique focuses on how the consumerist/citizenship emphasis in current patient-led care obscures attention from a more fundamental challenge to conceptualise an alternative philosophically informed framework from where care can be led. We thus present an alternative interpretation of patient-led care that we call ‘lifeworld-led care’, and argue that such lifeworld-led care is more than the general understanding of patient-led care. Although the philosophical roots of our alternative conceptualisation are not new, we believe that it is timely to re-consider some of the implications of these perspectives within current discourses of patient-centred policies and practice. The conceptualisation of lifeworld-led care that we develop includes an articulation of three dimensions: a philosophy of the person, a view of well-being and not just illness, and a philosophy of care that is consistent with this. We conclude that the existential view of well-being that we offer is pivotal to lifeworld-led care in that it provides a direction for care and practice that is intrinsically and positively health focused in its broadest and most substantial sense.
Journal Article
Photo-supported conversations about well-being (BeWell TM ) for patients with exhaustion disorders – a controlled clinical intervention study
by
Holmgren, Kristina
,
Hörberg, Ulrica
,
Wagman, Petra
in
Activities in everyday life
,
Adaptation, Psychological
,
Adult
2025
Health-promotion approaches to address stress-related exhaustion disorders, reduce personal suffering, improve coping and participation in everyday life are needed in primary care. The aim of this study was to investigate self-reported health and well-being before and after an intervention focusing on well-being with photo-supported conversations (BeWell
).
Eighty-one patients (69 women), 20-67 years old, with exhaustion disorders were recruited at Swedish primary health care centres (PHCC) to a controlled clinical study. The intervention group (
= 40) were offered BeWell
by therapists in addition to care as usual. Controls (
= 41) received only care as usual. The primary outcome, self-rated symptoms of exhaustion (Karolinska exhaustion disorder scale, KEDS), and secondary outcomes, anxiety and depression, sense of coherence, quality of life, occupational balance, and work ability, were assessed by validated questionnaires. Non-parametric statistical analyses were used to compare data collected directly after the treatment period with baseline measures.
Demographics and self-rated baseline measures of health and well-being were comparable between the groups, apart from sick leave being more common in the intervention group. Participants in the intervention group reduced their level of exhaustion more than the control group (median difference on KEDS -9.0 vs -4.0,
= .035). However, the size of the KEDS reduction was related to baseline KEDS and, not independently associated with group assignment. Both groups improved regarding secondary outcome measures.
Stress-related symptoms decreased considerably over the treatment period for both groups. The potential benefit of the BeWell
, which was intended to facilitate recovery, needs to be further evaluated.
Journal Article
Flexibility in rigid systems: a meta-synthesis of best practices for integrated care
by
Forsgärde, Elin-Sofie
,
Hagerman, Heidi
,
Tryselius, Kristina
in
Best practices
,
Care and treatment
,
Care transitions
2025
Introduction
Integrated care has the potential to mitigate patient safety risks by enhancing collaboration and maintaining a patient-centred approach. However, best practices for successful implementation are lacking. This study aims to identify and describe key components of best practices for integrating health and social care to increase understanding of successful implementation.
Methods
A Collaborative Reflexive Deliberative Approach was used. The data comprised twenty-one published articles and five unpublished manuscripts from 2015 to 2023, along with the experiences of ten clinicians and researchers in integrated care, and the research team itself.
Results
Components identified as best practices for integrated care, each describing different aspects shaped by and for the patient, were: holistic co-creation in an ethical stance, trust through physical and relational proximity, flexible caring, learning and adaptable organizations and flexible information and communication.
Discussion/conclusion
The study emphasizes the importance of building trust through proximity and adaptable organizational learning, and the need for a holistic perspective, acknowledging both the limitations and potentials of health and social care integration. Embracing innovative thinking and recognizing that not everyone needs all services at all times can foster flexible, person-centred integrated care. Addressing these complexities is essential for successful integration efforts.
Journal Article
Disturbed Sleep and Fatigue in Occupational Burnout
by
Hans-Peter Søndergaard
,
Marie Söderström
,
Torbjörn Åkerstedt
in
arousal
,
Biological and medical sciences
,
Burnout
2006
Objectives The purpose of this study was to investigate sleep with polysomnography and self-ratings and the diurnal pattern of sleepiness and fatigue in a group suffering from severe occupational burnout. Method Twelve white-collar workers on long-term sick leave (> 3 months) and 12 healthy controls with high and low scores on the Shirom Melamed Burnout Questionnaire (SMBQ) were included. A 1-night polysomnographic recording (after habituation) was carried out at home, and sleepiness and mental fatigue were rated at different times of the day for weekdays and the weekend. Precipitating factors at the time of the illness at work and real life were considered, and different dimensions of occupational fatigue were described. A repeatedmeasures analysis of variance using two or three within group factors was used to analyze the data. Results The main polysomnographic findings were more arousals and sleep fragmentation, more wake time and stage-1 sleep, lower sleep efficiency, less slow wave sleep and rapid eye movement sleep, and a lower delta power density in nonrapid eye movement sleep in the burnout group. The burnout patients showed pronounced sleepiness and mental fatigue at most times of the day for weekdays without reduction during weekends. The precipitating factor was occupational stress (psychiatric interview), and work stress indicators were increased. Conclusions Occupational burnout is characterized by impaired sleep. It is suggested that impaired sleep may play a role in the development of fatigue or exhaustion in burnout.
Journal Article
Nursing students' assessment of the learning environment in different clinical settings
by
Bisholt, Birgitta
,
Ohlsson, Ulla
,
Engström, Agneta Kullén
in
Adult
,
Attitude of Health Personnel
,
Caring sciences
2014
Nursing students perform their clinical practice in different types of clinical settings. The clinical learning environment is important for students to be able to achieve desired learning outcomes. Knowledge is lacking about the learning environment in different clinical settings.
The aim was to compare the learning environment in different clinical settings from the perspective of the nursing students.
A cross-sectional study with comparative design was conducted.
Data was collected from 185 nursing students at three universities by means of a questionnaire involving the Clinical Learning Environment, Supervision and Nurse Teacher (CLES + T) evaluation scale. An open-ended question was added in order to ascertain reasons for dissatisfaction with the clinical placement.
The nursing students' satisfaction with the placement did not differ between clinical settings. However, those with clinical placement in hospital departments agreed more strongly that sufficient meaningful learning situations occurred and that learning situations were multi-dimensional. Some students reported that the character of the clinical setting made it difficult to achieve the learning objectives.
In the planning of the clinical placement, attention must be paid to whether the setting offers the student a meaningful learning situation where the appropriate learning outcome may be achieved.
Journal Article
Novel Biochemical Markers of Psychosocial Stress in Women
by
Åsberg, Marie
,
Åkerstedt, Torbjörn
,
Nygren, Åke
in
Adult
,
Biochemical markers
,
BIOCHIP ARRAY TECHNOLOGY
2009
Prolonged psychosocial stress is a condition assessed through self-reports. Here we aimed to identify biochemical markers for screening and early intervention in women.
Plasma concentrations of interleukin (IL) 1-alpha, IL1-beta, IL-2, IL-4, IL-6, IL-8, IL-10, interferon-gamma (INF-gamma), tumor necrosis factor-alpha (TNF-alpha), monocyte chemotactic protein-1 (MCP-1), epidermal growth factor (EGF), vascular endothelial growth factor (VEGF), thyroid stimulating hormone (TSH), total tri-iodothyronine (TT3), total thyroxine (TT4), prolactin, and testosterone were measured in: 195 women on long-term sick-leave for a stress-related affective disorder, 45 women at risk for professional burnout, and 84 healthy women.
We found significantly increased levels of MCP-1, VEGF and EGF in women exposed to prolonged psychosocial stress. Statistical analysis indicates that they independently associate with a significant risk for being classified as ill.
MCP-1, EGF, and VEGF are potential markers for screening and early intervention in women under prolonged psychosocial stress.
Journal Article
School nurses’ attitudes and experiences regarding the human papillomavirus vaccination programme in Sweden: a population-based survey
by
Stenhammar, Christina
,
Rosenblad, Andreas
,
Oscarsson, Marie
in
Adult
,
Allied Health Personnel - psychology
,
Attitude
2014
Background
Sweden introduced a school-based human papillomavirus (HPV) vaccination programme in 2012, and school nurses are responsible for managing the vaccinations. The aim of the present study was to investigate the attitudes and experiences of school nurses regarding the school-based HPV vaccination programme 1 year after its implementation.
Methods
Data were collected using a web-based questionnaire in the spring of 2013, and 83.1% (851/1024) of nurses responded.
Results
There were strong associations between the nurses’ education about the HPV vaccine and their perceived knowledge about the vaccine and a favourable attitude towards vaccination (both
p
< 0.001). School nurses who received a high level of education were more likely to have a positive attitude to HPV vaccination compared with nurses with little education about HPV vaccination (adjusted odds ratio [OR] = 9.8; 95% confidence interval [CI]: 3.797–25.132). Nurses with high perceived knowledge were more likely to have a positive attitude compared with those with a low level of perceived knowledge (OR = 2.5; 95% CI: 1.299–4.955). If financial support from the government was used to fund an additional school nurse, nurses were more likely to have a positive attitude than if the financial support was not used to cover the extra expenses incurred by the HPV vaccination (OR = 2.1; 95% CI: 1.051–4.010). The majority, 648 (76.1%), had been contacted by parents with questions about the vaccine, mostly related to adverse effects. In addition, 570 (66.9%) stated that they had experienced difficulties with the vaccinations, and 337 (59.1%) of these considered the task to be time-consuming.
Conclusions
A high level of education and perceived good knowledge about HPV are associated with a positive attitude of school nurses to the HPV vaccination programme. Thus, nurses require adequate knowledge, education, skills and time to address the questions and concerns of parents, as well as providing information about HPV. Strategic financial support is required because HPV vaccination is a complex and time-consuming task.
Journal Article