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"Children with disabilities Biography."
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A world without Martha : a memoir of sisters, disability, and difference
\"Victoria Freeman was only four when her parents followed medical advice and sent her sister away to a distant, overcrowded institution. Martha was not yet two, but in 1960s Ontario there was little community acceptance or support for raising children with intellectual disabilities at home. In this frank and moving memoir, Victoria describes growing up in a world that excluded and dehumanized her sister, and how society's insistence that only a \"normal\" life was worth living affected her sister, her family, and herself, until changing attitudes to disability and difference offered both sisters new possibilities for healing and self-discovery.\"-- Provided by publisher.
Book
Life with a Superhero
Over twenty years ago, in a small Israeli town, a desperate mother told a remarkable lie. She told her friends and family that her newborn child had died. That lie became the catalyst for the unfolding truth of the adoption of that same baby—Michael —who is, in fact, very much alive and now twenty-two years old. He also has Down syndrome. When Kathryn Hulings adopted Michael as an infant, she could not have known that he would save her life when she became gravely ill and was left forever physically compromised. Her story delights in how Michael’s life and hers, while both marked by difference and challenge, are forever intertwined in celebration and laughter. With candor and a sense of humor, Life With a Superhero wraps itself around the raucous joy of Michael’s existence with his four older siblings who play hard and love big; how Kathryn and her husband, Jim, utilize unconventional techniques in raising kids; the romance between Michael and his fiancée, Casey; the power of dance in Michael's life as an equalizing and enthralling force; the staggering potential and creativity of those who are differently-abled; and the mind-blowing politics of how Kathryn navigated school systems and societal attitudes that at times fought to keep Michael excluded from the lives of kids deemed “normal.” No other books about the parenting experience outline what to do when, say, a child runs across the roof of a tri-level house pretending he can fly, or shows up in a 7th grade social studies class dressed like Spiderman, or calls 911 when his girlfriend breaks his heart. But, as Michael’s mom, Kathryn has been trying to figure how to be a mother in just such circumstances—sometimes with success, sometimes with dismal failure—for over two decades.
eBook
Rachel in the World
What happens when love is no longer enough? Jane Bernstein thought that learning to accept her daughters disabilities meant her struggles were over. But as Rachel grew up and needed more than a parents devotion, both mother and daughter were confronted with formidable obstacles. Rachel in the World, which begins in Rachels fifth year and ends when she turns twenty two, tells of their barriers and successes with the same honesty and humor that made Loving Rachel, Bernsteins first memoir, a classic. Bernstein's linked narratives center on family issues, social services, experiences with caregivers, and Rachel herself--difficult, charming, hard to fathom, eager for her own independence. Bernstein invites the reader to share the frustrations and unexpected pleasures of finding a place for her daughter, first in her family, and then in the world.
eBook
Raising Henry
Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same.
In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability,Raising Henryis also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget.
eBook
Revolutionary grandparents : generations healing autism with love and hope
\"What is it like to be part of a very special family, one that revolves around a child's struggle with autism or a related developmental disorder? In Revolutionary Grandparents, twenty-two grandmothers and grandfathers from the Thinking Moms' Revolution community share their experience and offer advice to others facing this monumental struggle. Many of these grandparents have moved in with their children and grandchildren to help with daily tasks -- all have had to alter their lives drastically. From their front-row seat, they recount their stories. They describe what they observed and felt as their grandchildren regressed into autism, as well as the challenges their families faced as a result. But more importantly, they also write about the progress and the successes of their grandchildren. No two stories are alike in their details, but each one is similar in its honesty, passion, and overwhelming hope. Positivity is the common thread that ties together this unique collection of mini-memoirs\"--Provided by publisher.
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Enticing Hard-To-Reach Writers
In her moving and personal book Enticing Hard-to-Reach Writers. Ruth Ayres weaves together her experience as a mother, teacher, and writer. She explores the power of stories to heal children from troubled backgrounds and offers up strategies for helping students discover and write about their own stories of strength and survival. She shares her own struggles and triumphs and hard-earned lessons from raising a family of four adopted children. Her experience is invaluable to any teacher whose has met children living in poverty, in unstable households, or in fear of abuse. Ayres explores brain research and the ways trauma can change the brain and how encouraging all students to write can help offset some of these effects. She believes that all students benefit from revealing their stories, by communicating information and opinion that allows darkness to turn to light in the lives of children. In the last part of her book she offers up practical suggestions for enticing all writers, regardless of their struggles. Enticing Hard-to-Reach Writers invites you on a journey to become a teacher who refuses to give up on any student, who helps children believe that they can have a positive impact on the world, and who-in some cases becomes the last hope for a child to heal.
eBook
I am intelligent : from heartbreak to healing-- a mother and daughter's journey through autism
This story provides a look into the lives of a mother obsessed with curing her child of autism and a daughter who retains full awareness of her situation.
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Non-complicit: Revisiting Hans Asperger’s Career in Nazi-era Vienna
Recent allegations that pediatrician Hans Asperger legitimized Nazi policies, including forced sterilization and child euthanasia, are refuted with newly translated and chronologically-ordered information that takes into account Hitler’s deceptive ‘halt’ to the T4 euthanasia program in 1941. It is highly unlikely that Asperger was aware of the T4 program when he referred Herta Schreiber to Am Spiegelgrund or when he mentioned that institution 4 months later on the medical chart of another (unrelated) girl, Elisabeth Schreiber. Asperger campaigned vigorously from 1938 to 1943 to have his specialization, Curative Education, take priority in the diagnosis and treatment of disabled children over other fields that promoted Nazi racial hygiene policies. He neither disparaged his patients nor was he sexist. By 1938, he had identified the essentials of Asperger syndrome and described an unnamed boy whom he later profiled (as Ernst K.) in 1944. Rather than doing ‘thin’ research, Asperger made discoveries that were prescient, and some of his activities conformed to definitions of “individual resistance.”
Journal Article