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"Chronically ill children"
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Ernest & Rebecca. 5, The school of nonsense
Even though Rebecca is cured, her best friend Ernest the microbe will stay nearby to help protect her from a nasty flu virus that wants to spread around her school.
BOOK
Moral laboratories
Moral Laboratoriesis an engaging ethnography and a groundbreaking foray into the anthropology of morality. It takes us on a journey into the lives of African American families caring for children with serious chronic medical conditions, and it foregrounds the uncertainty that affects their struggles for a good life. Challenging depictions of moral transformation as possible only in moments of breakdown or in radical breaches from the ordinary, it offers a compelling portrait of the transformative powers embedded in day-to-day existence. From soccer fields to dinner tables, the everyday emerges as a moral laboratory for reshaping moral life. Cheryl Mattingly offers vivid and heart-wrenching stories to elaborate a first-person ethical framework, forcefully showing the limits of third-person renderings of morality.
eBook
Everything, everything
The story of a teenage girl who's literally allergic to the outside world. When a new family moves in next door, she begins a complicated romance that challenges everything she's ever known. The narrative unfolds via vignettes, diary entries, texts, charts, lists, illustrations, and more.
The paradox of hope
Grounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances.
eBook
Everything, everything
\"The story of a teenage girl who's literally allergic to the outside world. When a new family moves in next door, she begins a complicated romance that challenges everything she's ever known. The narrative unfolds via vignettes, diary entries, texts, charts, lists, illustrations, and more\"-- Provided by publisher.
Book
Children with complex and continuing health needs : the experiences of children, families and care staff
Aimed at students and practitioners involved in supporting such children, and designed to give them an insight into what it means to raise a child with such multiple needs.'
- Current Awareness Service
'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are supporting them.'
- Sue Kirk, University of Manchester, UK.
Focusing on the real life experiences of children and their families, this book provides valuable insight into living with complex and continuing health needs.
The author highlights the importance of seeing each child as an individual, with the same rights and needs as any other person, rather than defining them by their health condition. The book includes case studies to illustrate the experiences of children, parents, siblings and extended families, as well as professionals in health and social care. These personal accounts discuss both the challenges and the rewards associated with looking after a child with complex needs. The author also provides an overview of the support which is available in healthcare and education systems and makes recommendations for the future.
Anyone who is responsible for supporting children with complex and continuing health needs will benefit from reading this book.
eBook
Managing Chronic Health Needs in Child Care and Schools
This fully revised and updated resource helps teachers and caregivers address the challenges of caring for children with chronic health conditions and special health care needs in child care and school settings. The health issues covered include chronic illnesses, acute situations, and selected developmental and behavioral problems, with a special emphasis on children with special health care needs. More than 50 quick reference sheets on specific conditions provide teachers and caregivers with guidance on how to help at a glance. New quick reference sheets include Childhood Obesity, Eczema, Fetal Alcohol Spectrum Disorder, Food Allergies, Gastroesophageal Reflux Disease, and more. The guide addresses topics with universal relevancy such as Care Plan development and implementation, medication administration, emergency planning, and handling symptoms that develop while on-site. Also included are ready-to-use sample forms, letters, and Care Plans, for easy implementation.
eBook
Extreme Parenting
This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child. The guide is packed with practical advice, models of exploration and lists of action points.
eBook
Providing support at home for children and young people who have complex health needs
Providing Support at Home for Children and Young People who have Complex Health Needs discusses elements of providing support in the home, which influence the quality of provision. This includes: the rationale for providing support at home, the child being central to the provision of support, taking into account the needs of the whole family, working closely with parents, working in the family home, choices and rights, supporting adolescents, team working, ethical issues, political and organisational issues. Case studies are used to illustrate the points raised.
eBook
Nursing care of children and young people with long-term conditions
The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings.
Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource:
* Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice
* Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions
* Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners
* Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness
* Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services
Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.
eBook