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Community-based healthcare : the search for mindful dialogues
This is a book for practitioners working in community-based healthcare as well as educators of future practitioners and researchers exploring this practice field and for people with chronic disabilities and their families and carers. The book invites readers to re-think and re-shape the way that community-based healthcare is practised by practitioners and experienced/engaged with by clients/patients and their families and other carers. Based on a PhD study of therapeutic relationships in community healthcare settings in NSW, Australia, and on real-life experiences of practitioners, clients and clients' families and care givers, this book paints a rich picture of the lived experiences of these participants in community-based healthcare. It examines the issues and challenges they face and the ways they deal with these. Key themes identified across the book are: the value and nature of relationships in this unique healthcare setting, the importance of time and using it well, the way good teamwork facilitates good community-based, patient-centred healthcare, balancing autonomy and equality with healthcare quality, practice wisdom embodied in healthcare, and ways of improving healthcare in clients' own homes -- Provided by the publisher.
Improving Quality of Care Through Detection of Complexity Among Community‐Dwelling Older People Receiving District‐Nurse Support: ImPaCt Study Randomised Controlled Trial
2025
Aim To examine the effect of implementing the patient complexity instrument (PCI) in addition to usual‐care on complexity detection, clinical‐care time allocation and referrals to supportive services compared to usual‐assessment alone. Design A parallel‐group‐blocked pragmatic randomised controlled trial. Methods A mixed‐method study conducted within a regional Australian community nursing service. Randomisation occurred at the initial client assessment following referral acceptance for community nursing support. Older people aged 65 years and over (client participants), referred to the service from 1st of July 2020 to 30th of September 2020, were eligible for Commonwealth Home Support Programme funding. A convenience sample of community nurses conducting client assessments was recruited. The intervention group included usual assessment plus the PCI, and the control group was usual assessment alone. Chi‐square test independence compared complexity ratings (low, medium, high) between groups for the hypothesis that adding the PCI to usual assessment has no effect on nurses' complexity detection compared to usual assessment alone. Results Compared to usual‐assessment alone, adding the PCI did not change nurses' level detected complexity rating. However, for older people initially assessed with low levels of complexity, the PCI indicated a need for additional clinical‐care‐time. The nurses' contribution to process evaluation showed that the PCI was useful in providing prompts for aspects to consider during their assessment. Conclusion The addition of PCI to nurses' usual assessment did not improve levels of complexity ratings. However, the PCI enhanced complexity detection by pinpointing areas of care requiring referrals for additional care and extra time required. The ImPaCt trial demonstrated the PCI as a useful tool for enhancing care for older people receiving nursing support in the community. The PCI is a beneficial guidance resource for those new to the Community Nursing role caring for older people. Reporting Method The study adhered to the updated guidelines for reporting parallel group randomised trials. Reporting was conducted according to the CONSORT checklist. Patient or Public Contribution This study was focused on the nurses' perspective of client complexity and how this complexity is detected. During the protocol development phase, a presentation about the study was made to a consumer group (older people) from the lead researcher's workplace. This presentation was well received, with five consumers in attendance. The protocol was also presented to the Board of the lead researcher's workplace, which was a large regional public health service. Four board members were in attendance and showed positive interest. Implications for the Profession and Patient Care This study underscores the merit of incorporating a care complexity assessment tool into community nursing care for older people, amplifying decision‐making regarding patient complexity. Future studies should explore clients' perspectives, the PCI's effect on and implications for hospital (re)admissions and longevity at home. Trial Registration: The trial was registered with the Australian and New Zealand Clinical Trials Registry (blinded for review)
Journal Article
Outcomes of an effectiveness trial of cognitive–behavioural intervention by mental health nurses in schizophrenia
by
Hammond, Katie
,
Kingdon, David
,
Pelton, Jeremy
in
Behavior modification
,
Brief therapy
,
Case management
2006
Little is known about the medium-term durability of cognitive-behavioural therapy (CBT) in a community sample of people with schizophrenia.
To investigate whether brief CBT produces clinically important outcomes in relation to recovery, symptom burden and readmission to hospital in people with schizophrenia at 1-year follow-up.
Participants (336 of 422 randomised at baseline) were followed up at a mean of 388 days (s.d. = 53) by raters masked to treatment allocation (CBT or usual care).
At 1-year follow-up, participants who received CBT had significantly more insight (P = 0.021) and significantly fewer negative symptoms (P = 0.002). Brief therapy protected against depression with improving insight and against relapse; significantly reduced time spent in hospital for those who did relapse and delayed time to admission. It did not improve psychotic symptoms or occupational recovery, nor have a lasting effect on overall symptoms or depression at follow-up.
Mental health nurses should be trained in brief CBT for schizophrenia to supplement case management, family interventions and expert therapy for treatment resistance.
Journal Article
Nurse led, home based self help treatment for patients in primary care with chronic fatigue syndrome: randomised controlled trial
2010
Objective To evaluate the effectiveness of home delivered pragmatic rehabilitation—a programme of gradually increasing activity designed collaboratively by the patient and the therapist—and supportive listening—an approach based on non-directive counselling—for patients in primary care with chronic fatigue syndrome/myalgic encephalomyelitis or encephalitis (CFS/ME).Design Single blind, randomised, controlled trial.Setting 186 general practices across the north west of England between February 2005 and May 2007.Participants 296 patients aged 18 or over with CFS/ME (median illness duration seven years) diagnosed using the Oxford criteria.Interventions Participants were randomly allocated to pragmatic rehabilitation, supportive listening, or general practitioner treatment as usual. Both therapies were delivered at home in 10 sessions over 18 weeks by one of three adult specialty general nurses who had received four months’ training, including supervised practice, in each of the interventions. GP treatment as usual was unconstrained except that patients were not to be referred for systematic psychological therapies during the treatment period.Main outcome measures The primary clinical outcomes were fatigue and physical functioning at the end of treatment (20 weeks) and 70 weeks from recruitment compared with GP treatment as usual. Lower fatigue scores and higher physical functioning scores denote better outcomes.Results A total of 257 (87%) of the 296 patients who entered the trial were assessed at 70 weeks, the primary outcome point. Analysis was on an intention to treat basis, with robust treatment effects estimated after adjustment for missing data using probability weights. Immediately after treatment (at 20 weeks), patients allocated to pragmatic rehabilitation (n=95) had significantly improved fatigue (effect estimate -1.18, 95% confidence interval -2.18 to -0.18; P=0.021) but not physical functioning (-0.18, 95% CI -5.88 to +5.52; P=0.950) compared with patients allocated to treatment as usual (n=100). At one year after finishing treatment (70 weeks), there were no statistically significant differences in fatigue or physical functioning between patients allocated to pragmatic rehabilitation and those on treatment as usual (-1.00, 95% CI -2.10 to +0.11; P=0.076 and +2.57, 95% CI 3.90 to +9.03; P=0.435). At 20 weeks, patients allocated to supportive listening (n=101) had poorer physical functioning than those allocated to treatment as usual (-7.54, 95% CI -12.76 to -2.33; P=0.005) and no difference in fatigue. At 70 weeks, patients allocated to supportive listening did not differ significantly from those allocated to treatment as usual on either primary outcome.Conclusions For patients with CFS/ME in primary care, pragmatic rehabilitation delivered by trained nurse therapists improves fatigue in the short term compared with unconstrained GP treatment as usual, but the effect is small and not statistically significant at one year follow-up. Supportive listening delivered by trained nurse therapists is not an effective treatment for CFS/ME.Trial registration International Standard Randomised Controlled Trial Number IRCTN74156610.
Journal Article
Alleviating perinatal depressive symptoms and stress: a nurse-community health worker randomized trial
by
Baer, Lawrence J.
,
Barton, Lauren R.
,
Roman, Lee Anne
in
Adult
,
Clinical trials
,
Community health care
2009
To determine whether a Nurse-Community Health Worker (CHW) home visiting team, in the context of a Medicaid enhanced prenatal/postnatal services (EPS), would demonstrate greater reduction of depressive symptoms and stress and improvement of psychosocial resources (mastery, self-esteem, social support) when compared with usual Community Care (CC) that includes Medicaid EPS delivered by professionals. Greatest program benefits were expected for women who reported low psychosocial resources, high stress, or both at the time of enrollment. Medicaid eligible pregnant women (
N
= 613) were randomly assigned to either usual CC or the Nurse-CHW team. Mixed effects regression was used to analyze up to five prenatal and postnatal psychosocial assessments. Compared to usual CC, assignment to the Nurse-CHW team resulted in significantly fewer depressive symptoms, and as hypothesized, reductions in depressive symptoms were most pronounced for women with low psychosocial resources, high stress, or both high stress and low resources. Outcomes for mastery and stress approached statistical significance, with the women in the Nurse-CHW group reporting less stress and greater mastery. Women in the Nurse-CHW group with low psychosocial resources reported significantly less perceived stress than women in usual CC. No differences between the groups were found for self-esteem and social support. A Nurse-CHW team approach to EPS demonstrated advantage for alleviating depressive symptoms in Medicaid eligible women compared to CC, especially for women at higher risk.
Journal Article
Psychosocial group intervention to enhance self-management skills of people with dementia and their caregivers: study protocol for a randomized controlled trial
by
Strandberg, Timo E
,
Hölttä, Eeva H
,
Savikko, Niina
in
Activities of daily living
,
Aged
,
Alzheimer's disease
2012
Background
After diagnosis of a dementing illness, patients and their spouses have many concerns related to the disease and their future. This often leads to poor psychological well-being and reduced health-related quality of life (HRQoL) of the family. Support for self-management skills has been proven to be an effective method to improve prognosis of asthma, heart failure and osteoarthritis. However, self-management interventions have not been studied in dementia. Therefore, our aim was to examine, in an objective-oriented group intervention, the efficacy of self-management support program (SMP) on the HRQoL of dementia patients and their spousal caregivers as well as on the sense of competence and psychological well-being of caregivers.
Methods
During the years 2011 to 12, 160 dementia patients and their spouses will be recruited from memory clinics and randomized into two arms: 80 patients for group-based SMP sessions including topics selected by the participants, 80 patients will serve as controls in usual community care. Sessions may include topics on dementia, community services, active lifestyle and prevention for cognitive decline, spousal relationship, future planning and emotional well-being. The patients and spouses will have their separate group sessions (ten participants per group) once a week for eight weeks. Main outcome measures will be patients’ HRQoL (15D) and spousal caregivers’ HRQoL (RAND-36), and sense of competence (SCQ). Secondary measures will be caregivers’ psychological well-being (GHQ-12) and coping resources, patients’ depression, cognition and signs of frailty. Data concerning admissions to institutional care and the use and costs of health and social services will be collected during a two-year follow-up.
Discussion
This is a ‘proof-of-concept’ study to explore the efficacy of group support for self-management skills among dementia families. It will also provide data on cost-effectiveness of the intervention.
Trial registration
ACTRN12611001173987
Journal Article
Impact of an Educational Program on Pain Management in Patients With Cancer Living at Home
by
Vézina, Lucie
,
Giguère, Anik
,
Aubin, Michèle
in
Analgesics, Opioid - therapeutic use
,
Cancer patients
,
Care and treatment
2006
To assess the effect of an educational homecare program on pain relief in patients with advanced cancer.
Quasi-experimental (pretest post-test, nonequivalent group).
Four community-based primary care centers providing social and healthcare services in the Quebec City region of Canada.
80 homecare patients with advanced cancer who were free of cognitive impairment, who presented with pain or were taking analgesics to relieve pain, and who had a life expectancy of six weeks or longer.
The educational intervention included information regarding pain assessment and monitoring using a daily pain diary and the provision of specific recommendations in case of loss of pain control. Pain intensity data were collected prior to the intervention, and reassessments were made two and four weeks later. Data on beliefs were collected at baseline and two weeks. All data were collected by personal interviews.
Patients beliefs about the use of opioids; average and maximum pain intensities.
Patients beliefs regarding the use of opioids were modified successfully following the educational intervention. Average pain was unaffected in the control group and was reduced significantly in patients who received the educational program. The reduction remained after controlling for patients initial beliefs. Maximum pain decreased significantly over time in both the experimental and control groups.
An educational intervention can be effective in improving the monitoring and relief of pain in patients with cancer living at home.
Homecare nurses can be trained to effectively administer the educational program during their regular homecare visits.
Journal Article
Effects of a programme of multifactorial home visits on falls and mobility impairments in elderly people at risk: randomised controlled trial
by
Crebolder, Harry F J M
,
Diederiks, Jos P M
,
de Witte, Luc P
in
Accidental falls
,
Accidental Falls - prevention & control
,
Accidental Falls - statistics & numerical data
2000
Abstract Objective: To evaluate whether a programme of multifactorial home visits reduces falls and impairments in mobility in elderly people living in the community. Design: Randomised controlled trial with 18 months of follow up. Setting: Six general practices in Hoensbroek, the Netherlands. Participants: 316 people aged 70 and over living in the community, with moderate impairments in mobility or a history of recent falls. Intervention: Five home visits by a community nurse over a period of one year. Visits consisted of screening for medical, environmental, and behavioural factors causing falls and impairments in mobility, followed by specific advice, referrals, and other actions aimed at dealing with the observed hazards. Main outcome measures: Falls and impairments in mobility. Results: No differences were found in falls and mobility outcomes between the intervention and usual care groups. Conclusion: Multifactorial home visits had no effects on falls and impairments in mobility in elderly people at risk who were living in the community. Because falls and impairments in mobility remain a serious problem among elderly people, alternative strategies should be developed and evaluated.
Journal Article
A sustainable programme to prevent falls and near falls in community dwelling older people: results of a randomised trial
by
Steinberg, Margaret
,
Peel, Nancye
,
Cartwright, Colleen
in
Accidental Falls - prevention & control
,
Age groups
,
Aged
2000
STUDY OBJECTIVE In the causative mechanism of falls among older community dwellers, slips and trips have been found to be significant precursors. The purpose of the two year trial was to assess the effectiveness of multi-component interventions targeting major risk factors for falls in reducing the incidence of slips, trips and falls among the well, older community. DESIGN Four groups with approximately equal numbers of participants were randomly allocated to interventions. The prevention strategies included education and awareness raising of falls risk factors, exercise sessions to improve strength and balance, home safety advice to modify environmental hazards, and medical assessment to optimise health. The interventions combined the strategies in an add on approach. The first intervention group receiving the information session only was regarded as the control. The outcome of interest was the occurrence of a slip, trip or fall, monitored prospectively using a daily calendar diary. PARTICIPANTS AND SETTING Two hundred and fifty two members of the National Seniors Association in the Brisbane district agreed to participate. National Seniors clubs provide a forum for active, community dwelling Australians aged 50 and over to participate in policy, personal development and recreation. MAIN RESULTS Using Cox's proportional hazards regression model, adjusted hazard ratios comparing intervention groups with the control ranged from 0.35 (95% CI 0.17, 0.73) to 0.48 (0.25, 0.91) for slips; 0.29 (0.16, 0.51) to 0.45 (0.27, 0.74) for trips; and 0.60 (0.36, 1.01) to 0.82 (0.51, 1.31) for falls. While calendar monitoring recorded outcome, it was also assessed as a prevention strategy by comparing the intervention groups with a hypothetical non-intervened group. At one year after intervention, reductions in the probability of slips, trips and falls (61(95%CI 54, 66)%; 56 (49, 63)%; 29 (22, 36)% respectively) were demonstrated. CONCLUSIONS This study makes an important contribution to the priority community health issue of falls prevention by showing that effective, sustainable, low cost programmes can be introduced through community-based organisations to reduce the incidence of slips, trips and falls in well, older people.
Journal Article
Trends in Use of Referral Hospital Services for Care of Sick Newborns in a Community-based Intervention in Tangail District, Bangladesh
by
Rahman, Mohammed Anisur
,
Darmstadt, Gary L.
,
Winch, Peter J.
in
Bangladesh
,
Care and treatment
,
Child Health Services - statistics & numerical data
2006
The Projahnmo-II Project in Mirzapur upazila (sub-district), Tangail district, Bangladesh, is promoting care-seeking for sick newborns through health education of families, identification and referral of sick newborns in the community by community health workers (CHWs), and strengthening of neonatal care in Kumudini Hospital, Mirzapur. Data were drawn from records maintained by the CHWs, referral hospital registers, a baseline household survey of recently-delivered women conducted from March to June 2003, and two interim household surveys in January and September 2005. Increases were observed in self-referral of sick newborns for care, compliance after referral by the CHWs, and care-seeking from qualified providers and from the Kumudini Hospital, and decreases were observed in care-seeking from unqualified providers in the intervention arm. An active surveillance for illness by the CHWs in the home, education of families by them on recognition of danger signs and counselling to seek immediate care for serious illness, and improved linkages between the community and the hospital can produce substantial increases in care-seeking for sick newborns.
Journal Article