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Public participation geographic information systems (PPGIS) pertains to the use of geographic information systems (GIS) to broaden public involvement in policymaking as well as to the value of GIS to promote the goals of nongovernmental organizations, grassroots groups, and community-based organizations. The article first traces the social history of PPGIS. It then argues that PPGIS has been socially constructed by a broad set of actors in research across disciplines and in practice across sectors. This produced and reproduced concept is then explicated through four major themes found across the breadth of the PPGIS literature: place and people, technology and data, process, and outcome and evaluation. The themes constitute a framework for evaluating current PPGIS activities and a roadmap for future PPGIS research and practice.

Policy Points Health policies that encourage health and social integration can induce community‐based organizations (CBOs) to adopt new ways of working from health care organizations, including their language, staffing patterns, and metrics. These changes can be explained by CBOs’ perceptions that health care organizations may provide new sources of revenue. While the welfare implications of these changes are not yet known, policymakers should consider balancing the benefits of professionalizing CBOs against the risks of medicalizing them. Context Recent health policies incentivize health care providers to collaborate with community‐based organizations (CBOs), such as food pantries and homeless shelters, to address patients’ social determinants of health (SDOH). The perspectives of health care leaders on these policy changes have been studied, but the perspectives of CBO managers have not. Methods Our research question was: How are CBOs in Massachusetts perceiving and responding to new Medicaid policies that encourage collaboration between health care organizations and CBOs? We interviewed 46 people in leadership positions at CBOs in Massachusetts for approximately an hour each. We analyzed these data abductively, meaning that we iterated between inductively coding transcripts and consulting existing theories and frameworks. Findings We found evidence of a knowing‐doing gap among CBOs. Even though CBOs value their distinctiveness and autonomy from health care, they have undertaken a series of organizational changes in response to the new Medicaid policy that make their organizations appear more like health care organizations. These changes include adopting new performance metrics, hiring clinical staff to the board and senior management positions, and using medical language to describe nonmedical work. Drawing on institutional theory, we suggest that the nonprofits undertake such changes in an effort to demonstrate legitimacy to health care organizations, who may be able to provide new sources of critically needed revenue. Conclusions Massachusetts CBOs perceive health systems as potential sources of revenue, due in part to an ongoing Medicaid redesign that encourages the integration of health and social services. This perception is driving CBOs to appear more like health care organizations, but the impacts of these changes on welfare remain unknown.

For nearly two decades, progressives have been dismayed by the steady rise of the right in U.S. politics. Often lost in the gloom and doom about American politics is a striking and sometimes underanalyzed phenomenon: the resurgence of progressive politics and movements at a local level. Across the country, urban coalitions, including labor, faith groups, and community-based organizations, have come together to support living wage laws and fight for transit policies that can move the needle on issues of working poverty. Just as striking as the rise of this progressive resurgence has been its reception among unlikely allies. In places as diverse as Chicago, Atlanta, and San Jose, the usual business resistance to pro-equity policies has changed, particularly when it comes to issues like affordable housing and more efficient transportation systems. To see this change and its possibilities requires that we recognize a new thread running through many local efforts: a perspective and politics that emphasizes \"regional equity.\" Manuel Pastor Jr., Chris Benner, and Martha Matsuoka offer their analysis with an eye toward evaluating what has and has not worked in various campaigns to achieve regional equity. The authors show how momentum is building as new policies addressing regional infrastructure, housing, and workforce development bring together business and community groups who share a common desire to see their city and region succeed. Drawing on a wealth of case studies as well as their own experience in the field, Pastor, Benner, and Matsuoka point out the promise and pitfalls of this new approach, concluding that what they term social movement regionalism might offer an important contribution to the revitalization of progressive politics in America.

This research aims to understand how frontline communities and community‐based organizations (CBOs) that serve them conceptualize themselves, their communities, success, and their needs. Frontline communities experience the “first and worst” impacts of climate change due to industrialization, pollution, changing ecosystems, and other societal issues. CBOs serving frontline communities often face difficulties building organizational capacity and fostering growth in their communities. These challenges emerge from combined factors, including resistance from business and government stakeholders. Funders and scientists alike have shown interest in supporting frontline communities; however, top‐down conceptualizations of success drive existing norms for intermediaries and are often inconsistent with how CBOs define success. To understand how frontline communities conceptualize themselves, success, and their needs, we conducted a mixed‐methods study of CBOs within the network of an emerging intermediary organization supporting frontline communities. Using natural language processing, a survey, and semi‐structured interviews, we identified themes pertaining to how frontline communities conceptualize themselves, capacity building, and success. We find that frontline communities seek four things when engaging with intermediaries: understanding of being frontline as a state of active resistance, unrestricted and destigmatized funding, technical assistance, and reciprocal relationships with resource providers. Our results suggest that self‐definition of being “frontline” as active resistance impacts how frontline communities define success and therefore affects best practices for engagement. Based on this definition, we emphasize the importance of equitable relationship building and hierarchy deconstruction in the philanthropic and scientific sectors. Plain Language Summary Frontline communities experience the “first and worst” impacts of climate change and face difficulties obtaining resources to support the wellbeing of their communities. Funders and scientists have shown interest in supporting frontline communities; however, these relationships can be fraught with power dynamics. To understand how frontline communities define themselves and how they prioritize their needs, we conducted interviews and surveys with representatives of community‐based organizations. We also conducted natural language processing analysis to identify themes arising from the network's grant applications. We find that frontline communities define themselves not only as passively experiencing environmental harm but actively resisting against the systems that cause those harms. Frontline communities also seek three things when engaging with resource providers: unrestricted funding, technical assistance, and reciprocal relationships. We emphasize the importance of relationship building and power sharing for anyone who seeks to support frontline communities–particularly scientists and funders. Key Points Frontline communities view organizational capacity as a state of physical and psychological flexibility, stability, bandwidth, and space Frontline identity is defined by active resistance against the oppressive systems that cause environmental harm Community‐based organizations' resource priorities include unrestricted funding, technical assistance, and reciprocal relationships

Community-based development' (CBD) or'community-driven development' (CDD) has been the predominant approach to international development in recent years. Drawing on fieldwork and first-hand experience, this book explains why CBD/CDD produces outcomes that are incompatible with its underlying assumptions and intended objectives.

Community-based organizations (CBOs) are gaining popularity in Bangladesh as a tool for relaying flood risk information and adaptation strategies. However, to our knowledge, no attempts have been made to determine the impact of CBOs on farmers’ adoption of flood adaptation strategies. Therefore, in this paper, we identify the determinants that influence farmers’ decisions to participate in CBOs and how this participation impacts farmers’ adoption of flood adaptation strategies. A multistage sampling procedure was employed to select 359 farmers for the study. An endogenous switching regression model was applied to control for possible selection bias due to unobserved factors, while propensity score matching (PSM) and inverse probability-weighted regression adjustment (IPWRA) were employed to test for the robustness of the results. The results reveal a positive selection bias, indicating that farmers with above-average flood adaptation strategies are more willing to participate in CBOs. Farmers’ flood experience, having children under 10 years, distance to the village center, and access to information mainly determine the participation in CBOs. It is also found that CBO participation significantly increases farmers’ adoption of flood adaptation strategies. ESR results show that farmers who participated in CBOs have 3.76 higher average flood adaptation strategies compared to CBO non-participation, and this finding is also consistent with PSM and IPWRA results. Therefore, policy intervention aimed at further strengthening and institutionalizing CBOs is necessary for successful flood adaptation.

Introduction The COVID‐19 pandemic has affected antiretroviral therapy (ART) continuity among people living with HIV (PLHIV) worldwide. We conducted a qualitative study to explore barriers to ART maintenance and solutions to ART interruption when stringent COVID‐19 control measures were implemented in China, from the perspective of PLHIV and relevant key stakeholders. Methods Between 11 February and 15 February 2020, we interviewed PLHIV, community‐based organization (CBO) workers, staff from centres for disease control and prevention (CDC) at various levels whose work is relevant to HIV care (CDC staff), HIV doctors and nurses and drug vendors from various regions in China. Semi‐structured interviews were conducted using a messaging and social media app. Challenges and responses relevant to ART continuity during the COVID‐19 pandemic were discussed. Themes were identified by transcript coding and mindmaps. Results Sixty‐four stakeholders were recruited, including 16 PLHIV, 17 CBO workers, 15 CDC staff, 14 HIV doctors and nurses and two drug vendors. Many CDC staff, HIV doctors and nurses responsible for ART delivery and HIV care were shifted to COVID‐19 response efforts. Barriers to ART maintenance were (a) travel restrictions, (b) inadequate communication and bureaucratic obstacles, (c) shortage in personnel, (d) privacy concerns, and (e) insufficient ART reserve. CBO helped PLHIV maintain access to ART through five solutions identified from thematic analysis: (a) coordination to refill ART from local CDC clinics or hospitals, (b) delivery of ART by mail, (c) privacy protection measures, (d) mental health counselling, and (e) providing connections to alternative sources of ART. Drug vendors contributed to ART maintenance by selling out‐of‐pocket ART. Conclusions Social and institutional disruption from COVID‐19 contributed to increased risk of ART interruption among PLHIV in China. Collaboration among key stakeholders was needed to maintain access to ART, with CBO playing an important role. Other countries facing ART interruption during current or future public health emergencies may learn from the solutions employed in China.

Background In 2021, the National Institutes of Health launched a multi‐centre observational study on long Covid: Researching COVID to Enhance Recovery (RECOVER). Six Boston academic medical centres joined community partners to become the Boston COVID Recovery Cohort (BCRC), a consortium of RECOVER sites. Our consortium developed a community engagement model, and this manuscript shares lessons and recommendations. Design and Participants The BCRC Community Partnership Table, which included community partners, senior equity leaders, academic researchers and health system collaborators, co‐developed a charter to advance research, community education, clinical care, social support and institutional and policy change goals. BCRC engaged patients, providers, caregivers and legislators via multiple communication channels. Findings The BCRC Community Partnership Table faced several challenges: working within a novel, evolving pandemic; structural barriers to successful community engagement; perspectives on trustworthiness of research; and working across multiple organisations with distinct structures, resources and goals. There were also successes: leaders who were invested in community engagement; a focus on inclusive network building; co‐production; flexible communication channels; a shift to centring communities and patients; and connection with the legislature to support broader policy impacts. Discussion To inform future community engagement models, we recommend the following: (1) healthcare research funders should build in time and resources for community engagement; (2) study consortia should include community engagement specialists in decision‐making positions from the outset; and (3) community members should have prominent roles leading research engagement efforts. Conclusions Engagement models can enhance the equity impact of long Covid research. Reflections and recommendations in this paper can inform future efforts. Patient or Public Contribution The project included community leaders, community‐based organisations, people with long Covid, and those caring for people with long Covid. Community leaders, community‐based organisations and people with long Covid are included in every aspect of the network. They inform decision‐making, play a key role in network leadership and are also all represented within the authorship team.

Introduction While biomedical HIV prevention offers promise for preventing new HIV infections, access to and uptake of these technologies remain unacceptably low in some settings. New models for delivery of HIV prevention are clearly needed. This commentary highlights the potential of person‐centred programming and research for increasing the cultural relevance, applicability and use of efficacious HIV prevention strategies. It calls for a shift in perspective within HIV prevention programmes and research, whereby people are recognized for their agency rather than assumed to be passive beneficiaries or research participants. Discussion Person‐centred HIV prevention reorientates power dynamics so that individuals (rather than interventions) are at the centre of the response. Respecting personal choice and agency – and understanding how these are shaped by the context in which people exercise these choices – are critical dimensions of the person‐centred approach. Community‐based participatory research should be employed to inform and evaluate person‐centred HIV prevention. We argue that community‐based participatory research is an orientation rather than a method, meaning that it can be integrated within a range of research methods including randomized controlled trials. But embracing community‐based participatory approaches in HIV prevention research requires a systemic shift in how this type of research is reported in high impact journals and in how research impact is conceived. Community‐based organizations have a critical role to play in both person‐centred HIV prevention and research. Conclusions HIV prevention is situated at the intersection of unprecedented opportunity and crisis. Person‐centred approaches to HIV prevention and research shift power dynamics, and have the potential to ensure a more sustainable response with each individual actively participating in their own care and meaningfully contributing to the production of knowledge on HIV prevention. This approach taps into the resourcefulness, resilience and knowledge of the person and their communities, to strengthen research and programmes, making them more relevant, appropriate and effective.