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"Death and Dying"
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Bobby wonderful : an imperfect son buries his parents
\"His mother's last word was his name. His father's was \"Wonderful.\" Together they inspired the title for this true story of love and redemption. Bob Morris was always the entertainer in his family, but not always a perfect son. When he finds his parents approaching the end of their lives, he begins to see his relationship to them in a whole new light and it changes his way of thinking. How does an adult child with flaws and limitations figure out how to do his best for his ailing parents while still carrying on and enjoying his own life? And when their final days on earth come, how can he give them the best possible end? In the tradition of bestselling memoirs by Christopher Buckley, Joan Didion, and with a dash of David Sedaris, BOBBY WONDERFUL recounts two poignant deaths and one family's struggle to find the silver lining in them. As accessible as he is insightful, Bob Morris infuses each moment of his profound emotional journey with dark comedy, spiritual inquiry and brutally honest self-examination. This is a little book. But it captures a big and universal experience\"-- Provided by publisher.
Book
Governing Death, Making Persons
Governing Death, Making Persons
tells the story of how economic reforms and changes in the
management of death in China have affected the governance of
persons . The Chinese Communist Party has sought to channel
the funeral industry and death rituals into vehicles for reshaping
people into \"modern\" citizens and subjects. Since the Reform and
Opening period and the marketization of state funeral parlors, the
Party has promoted personalized funerals in the hope of promoting a
market-oriented and individualistic ethos. However, things have not
gone as planned.
Huwy-min Lucia Liu writes about the funerals she witnessed and
the life stories of two kinds of funeral workers: state workers who
are quasi-government officials and semilegal private funeral
brokers. She shows that end-of-life commemoration in urban China
today is characterized by the resilience of social conventions and
not a shift toward market economy individualization. Rather than
seeing a rise of individualism and the decline of a socialist self,
Liu sees the durability of socialist, religious, communal, and
relational ideas of self, woven together through creative ritual
framings in spite of their contradictions.
eBook
This green and pleasant land
\"Accountant Bilal Hasham and his journalist wife Mariam plod along contentedly in the sleepy, chocolate box Dorset village they've lived in for ten years. Then Bilal is summoned to his mother's bedside in Birmingham. Mrs Sakheena Hasham knows she is not long for this world. She has a final request. Instead of whispering her prayers in her dying moments, she instructs her son: You must go home to your village, Babbel's End, and you must build a mosque. Mariam is horrified. The villagers are outraged. How can a grieving Bilal choose between honouring his beloved mum's last wish and preserving everything held dear in the village he calls home? But it turns out home means different things to different people. Battle lines are drawn and this traditional little community becomes the colourful canvas on which the most current and fundamental questions of identity, friendship, family and togetherness are played out. What makes us who we are, who do we want to be, and how far would we go to fight for it?\"-- Provided by publisher.
BOOK
After Aylan Kurdi: How Tweeting About Death, Threat, and Harm Predict Increased Expressions of Solidarity With Refugees Over Time
Viral social media content has been heralded for its power to transform policy, but online responses are often derided as “slacktivism.” This raises the questions of what drives viral communications and what is their effect on support for social change. We addressed these issues in relation to Twitter discussions about Aylan Kurdi, a child refugee who died en route to the European Union. We developed a longitudinal paradigm to analyze 41,253 tweets posted 1 week before the images of Aylan Kurdi emerged, the week they emerged, and 10 weeks afterward—at the time of the Paris terror attacks. Tweeting about death before the images emerged predicted tweeting about Aylan Kurdi, and this, sustained by discussion of harm and threat, predicted the expression of solidarity with refugees 10 weeks later. Results suggest that processes of normative conflict and communication can be intertwined in promoting support for social change.
Journal Article
Grandmother's visit
\"Grandmother lives with Grace's family. She teaches her how to measure water for rice. She tells her stories about growing up in China and together they savor the flavors of her childhood. Grandmother says goodbye when she drops Grace off at school every morning and hello when she picks her up at the end of the day. Then, Grandmother stops walking Grace to and from school, and the door to her room stays closed. Father comes home early to make dinner, but the rice bowls stay full. One day, Grandmother's room is empty. And one day, Grandmother is buried. After the funeral, Grace's mom turns on all the outside lights so that Grandmother's spirit can find its way home for one final goodbye\"--Publisher's website.
Book
Understanding public attitudes to death talk and advance care planning in Northern Ireland using health behaviour change theory: a qualitative study
Objectives
Advance care planning is a key preparatory step in ensuring high-quality palliative and end of life care, and should be considered as a process, beginning with community-level conversations among lay persons. There is, however, indication that death talk among community-dwelling adults is not occurring, and there is a dearth of research examining why this is the case. This study aims to provide the first examination of barriers and facilitators to talking about death and dying among the general population in a UK region (Northern Ireland), and to provide a novel application of health behaviour change theory towards developing a theoretical understanding of the sources of this behaviour.
Methods
The study involved qualitative analysis of responses (
n
= 381 participants) to two open-ended questions within a cross-sectional online survey, with recruitment via social media of adults currently living in Northern Ireland. Reflexive thematic analysis was conducted on open text responses per question, with the barriers and facilitators mapped on to health behaviour change models (the Behaviour Change Wheel COM-B and the Theoretical Domains Framework).
Results
The findings evidence a myriad of barriers and facilitators to engaging in death talk, with themes aligning to areas such as lack of acceptance of death in social contexts and fear of upsetting self or others, and a need to improve interpersonal communication skills for facilitating conversations and improve knowledge of the existing services around death and dying. A theoretical understanding of the drivers of death talk is presented with findings mapped across most components of the COM-B Behaviour Change Model and the Theoretical Domains Framework.
Conclusions
This study contributes to a small but emergent research area examining barriers and facilitators to talking about death and dying. Findings from this study can be used to inform new public health programmes towards empowering adults to have these conversations with others in their community towards upstreaming advance care planning.
Journal Article
The year of the rat
In the year following her mother's death after giving birth, fifteen-year-old Pearl must try to come to terms with her loss, her new relationship with her stepfather, and her baby sister--The Rat--as well as the fact that Mom will not leave Pearl alone.
Book
Change in perception of the quality of death in the intensive care unit by healthcare workers associated with the implementation of the “well-dying law”
PurposeThe importance of dying with dignity in the intensive care unit (ICU) has been emphasized. The South Korean government implemented the “well-dying law” in 2018, which enables patients to refuse futile life-sustaining treatment (LST) after being determined as terminally ill. We aimed to study whether the well-dying law is associated with a significant change in the quality of death in the ICU.MethodsThe Quality of Dying and Death (QODD) questionnaires were prospectively collected from the doctors and nurses of deceased patients of four South Korean medical ICUs after the law was passed (January 2019 to May 2020). Results were compared with those of our previous study, which used the same metric before the law was passed (June 2016 to May 2017). We compared baseline characteristics of the deceased patients, enrolled staff, QODD scores, and staff opinions about withdrawing LST from before to after the law was passed.ResultsAfter the well-dying law was passed, deceased patients (N = 252) were slightly older (68.6 vs. 66.6, p = 0.03) and fewer patients were admitted to the ICU for post-resuscitation care (10.3% vs. 20%, p = 0.003). The mean total QODD score significantly increased after the law was passed (36.9 vs. 31.3, p = 0.001). The law had a positive independent association with the increased QODD score in a multiple regression analysis.ConclusionOur study is the first to show that implementing the well-dying law is associated with quality of death in the ICU, although the quality of death in South Korea remains relatively low and should be further improved.
Journal Article
The funeral
\"Norma and her parents are going to her great-uncle Frank's funeral, and Norma is more excited than sad. She is looking forward to playing with her favorite cousin, Ray, but when she arrives at the church, she is confronted with rituals and ideas that have never occurred to her before. While not all questions can be answered, when the day is over Norma is certain of one thing: Uncle Frank would have enjoyed his funeral. This sensitive and life-affirming story will lead young readers to ask their own questions about life, death and how we remember those who have gone before us\" -- Publisher's description.
Book
Encouraging death communication in a death-avoidant society: analysis of interviews with death café organizers
Background
Post-war Japanese tend to avoid discussion of death, resulting in a lack of death communication within clinical settings. However, with the aging of society, the significance of conversations and decisions related to end-of-life issues has grown. In 2007, the government established guidelines for decision-making in end-of-life care. Nonetheless, death communication remains a challenge for healthcare professionals in clinical settings.
In contrast, death cafés have spontaneously emerged within communities as informal gatherings to openly discuss and explore death. Learning from death café organizers may help healthcare professionals encourage death communication in a death-avoidant society.
Therefore, a qualitative study was conducted to describe death cafés by examining the underlying motivation and practices through interviews with death café organizers.
Methods
Individual in-depth interviews were conducted with death café organizers. Two key aspects were explored: 1) the underlying motivations of organizers; and 2) the practices and challenges encountered in running death cafés. The interviews were transcribed verbatim and analyzed using a qualitative descriptive approach. Thematic analysis was used.
Results
The study identified two themes representing the underlying motivation of death café organizers: individually-oriented and community-oriented. These themes exhibited contrasting orientations and were collectively termed “individual-community orientation”.
Regarding the practice of death cafés, the focus was on the “attitude towards having attendees with and without grief in the same session.” Participants’ attitudes towards this aspect fell into two categories with opposing orientations: “purification” and “inclusion.” The “purification-inclusion orientation” was more prevalent among organizers who initiated death cafés due to their personal experiences.
A matrix was created to categorize death cafés based on their underlying motivations (individual vs. community-oriented) and practices (purification vs. inclusion). This classification resulted in quadrant 1 (community-oriented, inclusive) and quadrant 3 (individually-oriented, purification). Notably, death cafés in quadrant 1 were often held in temples.
Conclusions
Japanese death cafés can be classified into two categories: individually and purification-oriented and community and inclusive-oriented categories. Healthcare professionals can learn valuable insights from death café organizers, particularly in promoting death communication. Specifically, temple death cafés, with their inclusive practices and orientation towards community, can be particularly beneficial in fostering inclusivity and community engagement.
Journal Article