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Raising resilient children with autism spectrum disorders : strategies for helping them maximize their strengths, cope with adversity, and develop a social mindset
\"New hope for parents raising a child with autism spectrum disorders. In Raising Resilient Children with Autism Spectrum Disorders, noted psychologists and bestselling authors Dr. Goldstein and Dr. Brooks teach you the strategies and mindset necessary to help your child develop strength, hope, and optimism. This is the first approach for autism spectrum disorders based in the extremely popular field of positive psychology. Drs. Brooks and Goldstein--world-renowned experts on child psychology and, specifically, resilience--offer you practical tips for long-term solutions rather than just quick fixes. Featuring dozens of stories and an easy-to-follow, prescriptive narrative, Drs. Brooks and Goldstein demonstrate how to apply resilience to every parenting practice when raising a child with autism spectrum disorders, preparing him or her for the challenges of todays' complicated, ever-changing world and helping your child develop essential social skills.Learn how to: Empower your child to problem-solve on his or her own Teach your child to learn from mistakes rather than feel defeated by them Discipline your child while instilling self-worth Build an alliance with your child's school\"-- Provided by publisher.
Book
The needs of families of trauma intensive care patients: A mixed methods study
To identify the needs of families of trauma patients in the Intensive Care Unit and to assess nurses’ perceptions of those needs.
A sequential mixed-methods study was utilised combining survey data and semi-structured interviews.
A tertiary Intensive Care Unit in Australia.
The Critical Care Family Needs Inventory assessed the needs of families of general and trauma patients. Nurses were also surveyed for their perspectives on the needs of trauma patients’ families. Interviews with families were analysed using an inductive thematic analysis technique.
214 surveys were completed (50 family members of trauma patients; 53 family members of general patients; 111 nurses). No statistically significant sub-scale differences in survey responses between the family groups were found. However, differences on four of the five survey sub-scales (p ≤ .001) were identified between families of trauma patients and nurses. Three themes emerged identifying unique needs of families of trauma patients from the interviews and included: Personal Distress and Adjustment,Guidance, and Care.
This mixed methods study identified that families of trauma patients have different needs to families of general patients and the nurses rated the needs of the families of trauma patients as less important than the families rated their own needs. Through a collaborative partnership with these families, nurses can assist and better meet their needs. The provision of individualised patient/family-centred care is likely to have a positive influence.
Journal Article
I am intelligent : from heartbreak to healing-- a mother and daughter's journey through autism
This story provides a look into the lives of a mother obsessed with curing her child of autism and a daughter who retains full awareness of her situation.
Book
Needs of family members of patients admitted to a university hospital critical care unit, Izmir Turkey: comparison of nurse and family perceptions
This study aims to compare the perceptions of nurses and families on the needs of the relatives of the patients in Intensive Care Unit (ICU).
This cross-sectional study was conducted in the ICU of a university hospital. The study comprised 213 critical care patients' relatives and 54 nurses working in the same ICU. Data were collected using the Turkish version of Critical Care Family Needs Inventory (CCFNI) and a questionnaire on the characteristics of the participants. The difference between the perceptions of families and nurses was analyzed using Student t-test. Results: CCFNI's assurance/proximity subscale mean scores ranked first among bothpatients and nurses. The item \"To be assured the best care possible is being given to the patient\" was the top priority for both groups. Mean assurance/proximity and information dimensions of relatives were significantly higher compared to nurses (
< 0.001). No significant difference was found between the perception of patient relatives and nurses related to support and comfort dimensions (
< 0.05).
The needs of the relatives of patients are underestimated by nurses. This inhibited the performance of ICU nurses in line with the holistic care approach. Educational objectives that include the needs of ICU patients' relatives should be incorporated into the undergraduate and in-service training of nurses. Policies should be established to create space and time for effective relative-nurse communication.
Journal Article
Kid confidence : help your child make friends, build resilience, and develop real self-esteem
\"Help kids cultivate real, lasting confidence. In Kid Confidence, a clinical psychologist and parenting expert offers practical, evidence-based parenting strategies to help children build satisfying relationships, embrace personal growth, and discover the freedom that comes with a quiet ego--a deeply rooted sense of competence, confidence, and compassion for oneself and others\"-- Provided by publisher.
Book
Assessing Need for Social Support in Parents of Children with Autism and Down Syndrome
Parents of children with autism frequently turn to the service delivery system to access supports designed to help adapt to the challenges of having a child with a life-long impairment. Although studies have suggested various supports and coping strategies that are effective for adapting, few studies have examined parents' own perceptions of needs, and whether parents felt their needs were being met. In the present study the Family Needs Questionnaire (FNQ; Waaland et al., 1993) was modified to address needs for children with developmental disorders. A sample of fifty-six parents of children with autism and a comparison group of thirty-two parents of children with Down syndrome completed the FNQ. The groups did not differ significantly on the number of important needs reported nor the number of important needs being met. However, the two groups differed in the types of supports they most frequently endorsed as Important or Unmet.
Journal Article
The still point of the turning world
\"Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. The Still Point of the Turning World is the story of a mother's journey through grief and beyond it. Rapp's response to her son's diagnosis was a belief that she needed to \"make my world big\"--to make sense of her family's situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley's Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life\"-- Provided by publisher.
Book
Frustrated Caring: Family Members’ Experience of Motivating COPD Patients Towards Self-Management
The aim of this phenomenological study was to explore principal family members' experience of motivating patients with chronic obstructive pulmonary disease (COPD) towards self-management.
Interviews were conducted with 10 family members (spouses and adult children) of COPD patients. The interviews were audio recorded, transcribed and analyzed thematically.
Being a principal family member of a COPD patient is characterized by frustrated caring; wanting the best for him/her and yet carrying a heavier burden than the person feels equipped for, lacking both knowledge about the disease progress and information about available healthcare resources. The situation demands much energy, due to COPD patients' lack of stamina; family members' fear of the patient's possible breathlessness; willingness to help, though sometimes meeting with negative reactions from the patient; and feeling ignored by health professionals (HPs). Family members expressed a need for a formal connection between patient-family-HPs. The increasing burden experienced by patients' family members is characterized by a sequential process in three phases of the patient's declining self-management. In the early phase, family and patient are ignorant of COPD yet recognize the patient's smoking as a risky lifestyle. In the intermediary phase, signs of COPD become evident to the family. The first turning point is when the family first observes the patient's acute exacerbation. A second turning point is in the advanced phase, when family and patient recognize COPD as a progressive disease, possibly fatal. We also identified family members' views on COPD patients' needs, and their own roles, main frustrations and concerns.
Family members' experience of motivating COPD patients towards self-management is a sequential process where the family experiences advancing caring burden and declining self-management by the patient. We propose the establishment of COPD patients' teams consisting of patient-family-HP, aimed at the patients' best possible self-management.
Journal Article
The boy who said nonsense
Tate, a boy found in a pumpkin patch, loves numbers and can count objects by simply looking at them, but his odd way of communicating puzzles and concerns other people.
Book
Perceived and Unmet Needs of Adult Jordanian Family Members of Patients in ICUs
Purpose: To identify the self‐perceived needs of adult Jordanians who have family members in ICUs and to explore whether those needs were being met. Design: A descriptive, exploratory design was used. A convenience sample of 139 family members of 85 critically ill patients was recruited from ICUs located in three different types of hospitals in Irbid, a city in northern Jordan. The three types of hospitals included Ministry of Health, university health system, and private sector. Methods: Family members who participated in this study were instructed to answer all the questionnaires that included: a demographic data form, the Critical Care Family Needs Inventory (CCFNI), and Needs Met Inventory (NMI). Results: The findings showed that the 10 most important needs identified by adult Jordanian family members were in the Assurance and Information subscales. The need “to be assured that the best care possible is being given to the patient” was reported as the most important need. Use of the NMI indicated that none of the 10 most important needs were perceived as being met. Conclusions: Jordanian ICU nurses should be prepared to care for families in crisis, and the focus of nursing practice should be moved from just patient‐centered care to a more holistic approach including family needs. Clinical Relevance: Meeting family needs should be emphasized in nursing practice. Meeting these needs might help family members to cope better and be more supportive to their critically ill loved one.
Journal Article