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"Grief Anecdotes."
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Through my eyes
Wu shares her experience of taking care of a dying patient. Here, she narrates how they fostered a well established relationship between the two of them. She also admits how she felt sad of how life has dealt the patient with such particular hand, yet patient still had the strength to hold his head high. He chose peace where over a number of weeks, the war that had been waging inside of him came to a halt.
Journal Article
Sorrow: A Therapist's Reflection on the Inevitable and the Unknowable
People who live with a painful gap between who they have been and who they are now, of who they dreamt themselves to be and who they still long to be, are living with chronic sorrow. Chronic sorrow is a normal, nonpathological state of pervasive, continuing, periodic, and resurgent sadness related to the ongoing losses associated with illness and disability, in this case not loss of an other, but loss of self (Roos, 2002). Focusing on the lives of four women, one of whom committed suicide, I explore the macroprocesses that invade the experience of even so personal an experience as self‐loss. The role of the therapist is made transparent through anecdotes and by discussing implications for clinical practice. 摘要那些过往生活和现在生活以及曾经梦想和当下梦想有痛苦差距的人生活在长期悲伤之中。长期悲伤是普遍、持续、周期性复发的悲伤,是一种正常的非病理学状态,与疾病或残障导致的持续失落相关,但在这里,并非失去别人,而是自己(Roos, 2002)。本文作者通过聚焦四个女人的生活(其中一个自杀),探索了侵入如自我失去这般个人经历的宏观过程。治疗师的作用通过轶事和探讨临床实践意义而明了 ResumenLas personas que viven con una brecha dolorosa entre quiénes han sido y quiénes son ahora, entre quiénes soñaron ser y quiénes aún anhelan ser, están viviendo con pena crónica. La pena crónica es un estado normal no patológico de tristeza dominante, continua, periódica y resurgente relacionada con las pérdidas permanentes asociadas con las enfermedades y las discapacidades, en este caso no la pérdida de otro sino la pérdida de uno mismo (Roos, 2002). Centrándome en la vida de cuatro mujeres, una de las cuales se suicidó, analizo los macroprocesos que invaden la experiencia tan personal de la pérdida de uno mismo. El papel del terapeuta se hace visible a través de anécdotas y del debate de las implicancias para la práctica clínica. Video
Journal Article
Where is God when dementia sneaks into our house? Practical theology and the partners of dementia patients
How can hope, love and faith stay alive when dementia enters a home? In this article I shall look especially at the spouse or partner who shares an abode with a person with dementia. Most of the authors in this field, also John Swinton who is perhaps the best known author whose books are written from a (practical) theological perspective, focus on care in institutions, that means care by professionals. A partner living with a dementia patient has two main roles: as partner and caregiver. Night and day a partner is witness to the ongoing deterioration of her or his beloved partner, without being a professional. This article is founded not only on literature about dementia patients, but also on the experiences of several partners, as well as my own experiences as a partner. The question we all ask is: ‘From where does our strength come?’ I argue that what is said in the literature on the subject of (the pastoral care for) dementia patients does not help the partners, because it lays a heavy burden on them, who are already suffering from feelings of grief and guilt. I do not agree with John Swinton’s idea that God created dementia. Looking for different ways of thinking about God and faith to survive with hope and love, I turn to the exegesis of the creation stories by Ellen van Wolde. These give the opportunity to take the evil of the situation of the deterioration of the personality of a patient with dementia seriously, and at the same time grant the possibility to turn the grief and guilt feelings into strength to fight evil, together with a God whose empathy and love stays with a partner in her or his loneliness and grief.Keywords: dementia; partner care; guilt feelings; evil; God as ally
Journal Article
Being tough, being healthy: local forms of counselling in response to adult death in northwest Tanzania
While antiretroviral medicines have reduced AIDS-related deaths in sub-Saharan Africa, many people still lose multiple family members and struggle with the social and economic consequences of those deaths. This paper examines how older Tanzanians frame feelings of loss caused by the untimely death of young adults and how they advise other bereaved about how to manage loss. A local concept oyegumisilize - meaning 'to move on and push grief and worries aside' - is employed in offering bereaved persons advice about how to deal with feelings of loss. Older people try hard to manage memories of loss whilst simultaneously struggling to fulfil the social obligations around mourning that contribute to their ongoing bereavement. Oyegumisilize can be seen as a counselling practice that helps those who have lost loved ones to move on with life and feel normal. It is argued that this form of counselling is a form of therapeutic speech, where the emphasis is not on 'talking through' emotions, but on speech that is aimed at 'toughening up' the bereaved person. The findings presented here are based upon ethnographic research undertaken in Muleba District in Kagera Region, Tanzania, between 2003 and 2004, and follow-up research conducted in 2005, 2008 and 2012.
Journal Article
End-of-life stories
End-of-life experiences are often viewed in terms of only one perspective such as medicine.In this volume, a variety of end-of life experiences are presented and each case is analyzed from a variety of disciplinary perspectives.
eBook
Story: An Intimate Human Resource
The significance of story in providing therapeutic, person-centered care and the centrality of relationship in obtaining stories are explored in this issue of Creative Nursing. Authors explain narrative medicine, narrative nursing, and the narrative reflective process as used in education, a research cluster, and a program to help nurses thrive amid stress. Nurses tell their own and others ‘stories of courage, compassion for the dying, immersion in another culture, and grieving adverse life events.
Journal Article
Cartography of Endurance
This commentary canvasses a few prominent themes of ethical relevance drawn from the stories in this issue. I develop the metaphor of cartography to illuminate critical experiences in the moral lives of parents of children with brain tumors. Relationship transformation within families along the timeline of a child’s illness and recovery is one such set of experiences. Points for consideration in health professions education are also featured: clinical humility regarding “second opinions,” cultivating therapeutic efficacy from the clinician–parent relationship, error, and medical care itself as a source of trauma.
Journal Article
Monstrous!: Actors, Audiences, Inmates, and the Politics of Reading Shakespeare
This essay considers the use of Shakespeare as marker of authenticity and as a therapeutic space for performers and audiences across a number of genres, from professional actors in training literature to prison inmates in radio and film documentaries. It argues that in the wake of recent academic trends—the critique of \"Shakespeare\" as an author figure; the privileging of the text as a source of multiple, potentially conflicting readings—Shakespeare's function as cultural capital has shifted sites, from \"Shakespeare\" to the playtexts themselves.
Journal Article