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"Living well"
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Providing 'Just Enough' Support for Individuals to Live Well With Dementia
Persons living with Alzheimer's disease and related dementias strive to live well throughout the course of the disease. To contribute to well-being, caregivers (family and professionals) can use person-centered care, such as person-centered interventions and relationships, and promote
living well. This article describes a conceptual model that addresses the interconnected concepts of person-centered care, living well, and well-being. Also, the concept of \"just enough\" support is examined, as are its implications to maximize independence and slow the rate of functional decline.
Tips to provide \"just enough\" support are discussed to help sustain independence and function.
Journal Article
The wellbeing of nations : meaning, motive and measurement
\"What is national wellbeing and what is progress? Why measure these definitions? Why are measures beyond economic performance needed and how will they be used? How do we measure national wellbeing & turn the definitions into observable quantities? Where are we now and where to next? These questions are asked and answered in this much needed, timely book. The Wellbeing of Nations provides an accessible and comprehensive overview of the measurement of national well-being, examining whether national wellbeing is more than the sum of the wellbeing of everyone in the country, and identifying and reviewing requirements for new measures. It begins with definitions, describes how to operationalize those definitions, and takes a critical look at the uses to which such measures are to be put. The authors examine initiatives from around the world, using the UK 'measuring national wellbeing programme' as a case study throughout the book, along with case studies drawn from other countries, as well as discussion of the position in some countries not yet drawn into the national wellbeing scene\"-- Provided by publisher.
Book
Peasants, Good Living and Agroecology for Rural Development
Objective: To understand the possibility of rural development that interrelates the principles of good living and the practice of agroecology to rural development. Theoretical reference: The Good Living and its perspective of building a society that comprises a balanced and respectful coexistence with nature; agroecology as an alternative for survival in the rural environment and rural development that brings with it many demands and the need to (re)know the plurality of rural peoples. Methodology: Exploratory bibliographic research with content analysis that aims to understand and explain how the peasant way of life interrelates the theory of the Good Living with agroecological practices for rural development. Results and conclusion: We highlight the broadening of the debate on the subject addressed, in order to collaborate scientifically with the studies about the peasant and his life in the countryside. What is expected of rural development is that it promotes improvement in the lives of peasants, thus enabling them to remain in the countryside, with quality of life. Implication of research: By pursuing existing integration in the principles of living well with agroecology, research offers an innovative approach to sustainable rural development including the promotion of environmental conservation and the well-being of peasant communities. Originality: Lies in the interdisciplinary and innovative approach that seeks to integrate the principles of Good Living, with the practice of agroecology. This approach contributes to an evolving field of study, providing new perspectives in the search for solutions to the challenges faced by rural communities and contemporary agriculture.
Journal Article
Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohort
Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 people with dementia and 11 family carers who were ongoing participants in the IDEAL cohort during the initial ‘lockdown’ period in May and June 2020, and follow-up interviews with five people with dementia and two carers as restrictions were eased in July. We analysed interview data and triangulated the findings with issues raised in dementia-specific online forums. Findings showed some people with dementia were coping well, but others experienced a range of negative impacts, with varying degrees of improvement as restrictions were eased. The need for clear personalised information relating to COVID-19 and the value of support in the form of regular ‘just checking’ phone calls was emphasised. This exceptional situation provides a natural demonstration of how social and psychological resources shape the potential to ‘live well’ with dementia. While some support is recommended for all, a personalised approach to determine needs and coping ability would ensure that further practical and emotional support is targeted effectively.
Journal Article
Trying My Best to Live Well With Dementia
Groves shares her experience of living well with dementia. The first step on her path to living well was to begin to let others in; to find a way to take those she loved, and who loved her, along on her journey. Neither her husband, her family, nor her friends had noticed anything unusual about her memory and were completely unprepared for this change in their lives. They told their immediate families at the beginning of this journey, but deciding how and when to tell the broader circle of friends was a more difficult decision. Finding peace with her new identity was another challenge. The way she lived her life and saw herself was changing. However, even as she was having to let go of some of these everyday activities, she began to draw on her former experiences and skills as an advocate.
Journal Article
Self-esteem, self-efficacy, and optimism as psychological resources among caregivers of people with dementia: findings from the IDEAL study
ABSTRACTObjectivesBeing a family caregiver, and in particular giving care to someone with dementia, impacts mental and physical health and potentially reduces the ability of caregivers to “live well.” This paper examines whether three key psychological resources—self-efficacy, optimism, and self-esteem—are associated with better outcomes for caregivers of people with dementia. Design and ParticipantsCaregivers of 1,283 people with mild-to-moderate dementia in the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) project responded to measures of self-efficacy, optimism, and self-esteem, and “living well” (quality of life, life satisfaction, and well-being). Multivariate linear regression was used to examine the association between psychological resources and “living well”. ResultsSelf-efficacy, optimism, and self-esteem were all independently associated with better capability to “live well” for caregivers. This association persisted when accounting for a number of potential confounding variables (age group, sex, and hours of caregiving per day). ConclusionsLow self-efficacy, optimism, and self-esteem might present a risk of poor outcomes for caregivers of people with dementia. These findings encourage us to consider how new or established interventions might increase the psychological resilience of caregivers.
Journal Article
Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme
Background
People with different types of dementia may have distinct symptoms and experiences that affect their quality of life. This study investigated whether quality of life varied across types of dementia and over time.
Methods
The participants were 1555 people with mild-to-moderate dementia and 1327 carers from the IDEAL longitudinal cohort study, recruited from clinical services. As many as possible were followed for up to 6 years. Diagnoses included were Alzheimer’s disease, vascular dementia, mixed Alzheimer’s and vascular dementia, Parkinson’s disease dementia, dementia with Lewy bodies, and frontotemporal dementia. Self- and informant-rated versions of the Quality of Life in Alzheimer’s Disease scale were used. A joint model, incorporating a mixed effects model with random effects and a survival model to account for dropout, was used to examine whether quality of life varied by dementia type at the time of diagnosis and how trajectories changed over time.
Results
The strongest associations between dementia type and quality of life were seen around the time of diagnosis. For both self-ratings and informant ratings, people with Parkinson’s disease dementia or dementia with Lewy bodies had lower quality of life scores. Over time there was little change in self-rated scores across all dementia types (− 0.15 points per year). Informant-rated scores declined over time (− 1.63 points per year), with the greatest decline seen in ratings by informants for people with dementia with Lewy bodies (− 2.18 points per year).
Conclusions
Self-rated quality of life scores were relatively stable over time whilst informant ratings showed a steeper decline. People with Parkinson’s disease dementia or dementia with Lewy bodies report particularly low levels of quality of life, indicating the importance of greater attention to the needs of these groups.
Journal Article
Living Well as an Alzheimer's Caregiver
Tom Allen, a care partner for his wife, Julie, shares his story about how he learned to support her in living well with dementia, how he needed to be the best version of himself, learn and grow as they went, and trust the choices he might need to make for both of them. Also, Tom needed
to support Julie in finding purpose and meaning, keep their values at the forefront as they made decisions, and join Julie in her reality. Tom's experience serves as an example for other care partners and care providers as they learn to support the person with dementia to live well.
Journal Article