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The anatomy of murder
This is the first comprehensive account of \"Anatomy in National Socialism\". Traces the gradual escalation of ethical transgressions in anatomy during National Socialism from the traditional anatomical work with the dead to human experimentation, and points to the need for vigilance against similar gradual ethical compromise in contemporary medical ethics. Demonstrates the manner in which anatomists became complicit in the complete annihilation of the perceived \"enemies\" of the Nazi-government. Demands the full reconstruction of the biographies and memorialization of Nazi-victims, whose bodies were used for anatomical purposes.
eBook
Moral laboratories
Moral Laboratoriesis an engaging ethnography and a groundbreaking foray into the anthropology of morality. It takes us on a journey into the lives of African American families caring for children with serious chronic medical conditions, and it foregrounds the uncertainty that affects their struggles for a good life. Challenging depictions of moral transformation as possible only in moments of breakdown or in radical breaches from the ordinary, it offers a compelling portrait of the transformative powers embedded in day-to-day existence. From soccer fields to dinner tables, the everyday emerges as a moral laboratory for reshaping moral life. Cheryl Mattingly offers vivid and heart-wrenching stories to elaborate a first-person ethical framework, forcefully showing the limits of third-person renderings of morality.
eBook
The anticipatory corpse : medicine, power, and the care of the dying
In this original and compelling book, Jeffrey P. Bishop, a philosopher, ethicist, and physician, argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death, as shaped by our scientific successes and ongoing debates about euthanasia and the \"right to die\"—or to live. The Anticipatory Corpse: Medicine, Power, and the Care of the Dying, informed by Foucault's genealogy of medicine and power as well as by a thorough grasp of current medical practices and medical ethics, argues that a view of people as machines in motion—people as, in effect, temporarily animated corpses with interchangeable parts—has become epistemologically normative for medicine. The dead body is subtly anticipated in our practices of exercising control over the suffering person, whether through technological mastery in the intensive care unit or through the impersonal, quasi-scientific assessments of psychological and spiritual \"medicine.\" The result is a kind of nihilistic attitude toward the dying, and troubling contradictions and absurdities in our practices. Wide-ranging in its examples, from organ donation rules in the United States, to ICU medicine, to \"spiritual surveys,\" to presidential bioethics commissions attempting to define death, and to high-profile cases such as Terri Schiavo's, The Anticipatory Corpse explores the historical, political, and philosophical underpinnings of our care of the dying and, finally, the possibilities of change. This book is a ground-breaking work in bioethics. It will provoke thought and argument for all those engaged in medicine, philosophy, theology, and health policy.
eBook
Storing paediatric genomic data for sequential interrogation across the lifespan
Genomic sequencing (GS) is increasingly used in paediatric medicine to aid in screening, research and treatment. Some health systems are trialling GS as a first-line test in newborn screening programmes. Questions about what to do with genomic data after it has been generated are becoming more pertinent. While other research has outlined the ethical reasons for storing deidentified genomic data to be used in research, the ethical case for storing data for future clinical use has not been explicated. In this paper, we examine the ethical case for storing genomic data with the intention of using it as a lifetime health resource. In this model, genomic data would be stored with the intention of reanalysis at certain points through one’s life. We argue this could benefit individuals and create an important public resource. However, several ethical challenges must first be met to achieve these benefits. We explore issues related to privacy, consent, justice and equality. We conclude by arguing that health systems should be moving towards futures that allow for the sequential interrogation of genomic data throughout the lifespan.
Journal Article
