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"Medical genetics Moral and ethical aspects."
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Stem cell dialogues
A dramatic new way to explore controversial science: Socratic dialogues. These creative debates follow the nuances and complexities of stem cell research and emerging therapies for informed readers and newcomers alike.
eBook
Babies by Design
We stand on the brink of unprecedented growth in our ability to understand and change the human genome. New reproductive technologies now enable parents to select some genetic traits for their children, and soon it will be possible to begin to shape ourselves as a species. Despite the loud cries of alarm that such a prospect inspires, Ronald Green argues that we will-and we should-undertake the direction of our own evolution.
A leader in the bioethics community, Green offers a scientifically and ethically informed view of human genetic self-modification and the possibilities it opens up for a better future. Fears of a terribleBrave New Worldor a new eugenics movement are overblown, he maintains, and in the more likely future, genetic modifications may improve parents' ability to enhance children's lives and may even promote social justice.
The author outlines the new capabilities of genomic science, addresses urgent questions of safety that genetic interventions pose, and explores questions of parenting and justice. He also examines the religious implications of gene modification. Babies by design are assuredly in the future, Green concludes, and by making responsible choices as we enter that future, we can incorporate gene technology in a new age of human adventure.
eBook
Law and Human Genetics
As developments in human genetics proceed apace,the regulation of genetic research and its applications is set to represent one of the major legal challenges of the next century. At every turn – in the fields of medicine and commerce, in insurance and employment, in the family and even in the criminal justice system – advances in human genetics threaten to transform our understanding of ourselves and the basis upon which we relate to one another. This special issue of the Modern Law Review addresses a range of key issues – conceptual, ethical, political and practical – arising from the regulatory challenge confronting the law in the face of the genetic revolution.
eBook
The mutant project : inside the global race to genetically modify humans
As scientists elsewhere start to catch up with China's vast genetic research programme, gene editing is fuelling an innovation economy that threatens to widen racial and economic inequality. Fundamental questions about science, health and social justice are at stake. Who gets access to gene-editing technologies? As countries loosen regulations around the globe, can we shape research agendas to promote an ethical and fair society? Professor Eben Kirksey takes us on a groundbreaking journey to meet the key scientists, lobbyists and entrepreneurs who are bringing cutting-edge genetic modification tools like CRISPR to your local clinic.
Book
Genetic Transparency?
Genetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomics experts and scholars from the humanities and social sciences discuss the changes in interpersonal relationships, human self-understandings, ethics, law, and the health systems.
eBook
Risks in the making
Since the 1990s, the impact of genetic testing for insurance has been the subject of international debates. However, these have been rather speculative and abstract. In an effort to find new openings, the author explores this concern from an empirical sociological angle - by studying the insurance world from the inside, through an ethnographic study of the life insurance industry, exploring insurance practices and how insurers make risks, and underscoring the diversity of insurance markets, underwriting practices and strategies.
Aids, genetische manipulatie, stamceltransplantaties... In een onzekere samenleving als de onze kan wetenschap niet altijd meer een afdoende antwoord bieden voor deze controverses. Ook het internationaal debat over het gebruik van genetica in verzekeringen is tot op heden speculatief en abstract. Dat is niet altijd vruchtbaar als het gaat om het bedenken van oplossingen. Van Hoywegen zoekt in Making Risks. Travels in Life Insurance and Genetics naar een oplossing. In een poging nieuwe openingen te creëeren, vertrekt zij vanuit een empirisch-sociologische invalshoek, door de verzekeringswereld van binnenuit te bestuderen. Centraal staat de vraag hoe verzekeraars tot risicobepalingen komen en hoe criteria voor 'normale' of 'abnormale' risico's worden gedefinieerd. Van Hoywegen kijkt naar de experimenten en evenwichtsoefeningen die verzekeraars uitvoeren om tot een bepaald keuringsbeleid te komen, als een werk van trial and error. Wie risicoselectie als constructiewerk ziet, creëert ruimte voor onderhandeling, verandering en het stimuleren van leerprocessen. Experimenteel leren en daarmee risico's nemen, lijkt een oplossing om in verzekeringen om te gaan met de onzekerheden van genetica. Het boek voorziet in empirische argumenten voor een nieuw beleidsperspectief.
eBook