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Parental Learning Disability and Children's Needs
Parental Learning Disability and Children's Needs explores how to effectively assess children in families where one or more parent has a learning disability. These children often have unmet needs because their parents are more likely to be coping with mental and physical illness, domestic violence or substance abuse.
The book examines current social care practice in this area, whether it is working, and the impact it has on families. The authors describe how, although some parents with a learning disability face a significant risk of losing their children, most continue to look after them and, while support provided by social services and other agencies, can be significant it is rarely sustained and the health and welfare of many children suffers as a result. Case studies and interviews from original research support the authors' recommendations for policy and practice to combat these problems.
This book will prove to be an invaluable source of information for all social workers and other professionals working with someone who is both a parent and has a learning disability.
eBook
Everything no one tells you about parenting a disabled child : your guide to the essential systems, services, and supports
\"The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child's success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, \"Every 4 1/2 minutes a baby is born with a birth defect in the United States.\" That's 1 in 33. There's no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you\"-- Provided by publisher.
Book
Out of the Mainstream
Out of the Mainstream identifies those aspects of mental illness which can compromise parenting and affect children's development, as well as the efforts of professionals to intervene effectively. With chapters from professionals working primarily with children or adults, in different agencies and in specialist teams or in the community, the book illustrates the ways in which the needs of mentally ill parents and their children can be understood.
The book outlines different theoretical approaches which may be in use alongside each other, including:
A systems theory approach to work with families and with agencies;
The psychoanalytic understanding of mental illness and its impact on family relationships and organisations;
An educational approach to supporting staff, children and parents;
A psychiatric or bio-medical model of work
Out of the Mainstream considers how the diverse groups of agencies, specialist teams and groups in the community can work together, even when many barriers may hinder the effective co- working between individuals and these various groups. It will be an invaluable resource for psychologists, psychiatrists, social workers, health visitors, mental health nurses, teachers and voluntary sector agency staff.
eBook
Unfit parent : a disabled mother challenges an inaccessible world
\"Navigating the joys, stigma, and discrimination of disabled parenting-and how the solutions offered by disability culture can transform the way we all raise our kids\"-- Provided by publisher.
BOOK
A Qualitative Exploration into the Sensory Experiences of Autistic Mothers
Research has found 96% of autistic individuals experience sensory processing difficulties, and being a parent presents many sensory demands that may be especially challenging for autistic mothers. Despite the high prevalence, no research exists exploring the sensory experiences of autistic mothers, highlighting the gap in current knowledge. Semi-structured interviews were conducted with 7 autistic mothers, data were analysed using thematic analysis identifying 5 major themes: antenatal experiences, sensory experiences in motherhood, the impact of sensory processing difficulties, strategies and needs, diagnosis. This research provides greater insight and understanding into the sensory experiences of autistic mothers which can influence earlier diagnosis and inform appropriate support and adaptations for autistic mothers in a variety of different sectors and highlights a possible emerging role for Occupational Therapists.
Journal Article
Profile of Mothers of Children with a Disability Who Seek Support for Mental Health and Wellbeing
This paper investigated the characteristics of mothers of children with a disability who registered for a mental health and wellbeing workshop. The questionnaire measured mental health, health-related behaviours, empowerment, family cohesion, wellbeing and child-related variables. Regression analysis identified factors associated with depressive symptoms and positive wellbeing. Fifty-seven percent of participants (N = 171) had depressive symptoms within the clinical range. Higher symptoms were associated with reduced: empowerment (r = − .39, p < .01); positive-wellbeing (r = − .66, p < .05); and healthy activity (r = − .41, p < .001). Low positive wellbeing (β = .55, p < .001) was the strongest predictor of depressive symptoms. Family cohesion (β = .25, p < .001), was the strongest predictor of positive-wellbeing. Future health and wellbeing interventions that support mothers with high care responsibilities should include psycho-education and strategies to address healthy maternal and family-related behaviour changes.
Journal Article
Bloom : a memoir
\"The author ... recounts the story of the first year of her daughter Nella--who has Down syndrome--and celebrates the beauty found in the unexpected, the strength of a mother's love, and, ultimately, the amazing power of perspective\"-- Provided by publisher.
Book
Disabling families
The family regulation system is increasingly notorious for harming the very families that it ostensibly aims to protect. Under the guise of advancing child welfare, Black, Brown, Native, and poor families are disproportionately surveilled, judged, and separated. Discrimination and ingrained prejudices against disabled parents render their families especially vulnerable to separation and termination. Once enmeshed in the system, disabled parents have little recourse against the state for discrimination based on ableist and raced notions of parenthood.
This article argues that the family regulation system not only discriminates against disabled parents but also produces disability. It identifies and theorizes three modalities of this production: (1) construction, (2) creation, and (3) reinscription. First, the family regulation system constructs the social category of disability by assuming parents bearing a disability label are unfit, then stigmatizing and separating them from their children. Second, the family regulation system creates disability by causing or exacerbating impairments that contribute to or cause disabilities among parents and their families. Third, the family regulation system reinscribes disability by failing to provide appropriate services or accommodations to disabled parents and then blaming a parent's disability when a termination of parental rights occurs. In these three ways, the family regulation system-including the courts, caseworkers, and lawyers who enforce its operation - produces disability. This article documents how the judicial decisions and outcomes arising from the family regulation system pathologize disabled people. It argues, however, that while disability is often stigmatized, it is not a negative identity, social group, or label. In fact, disability can be a positive disrupting force in the family regulation system. The article concludes that disability can be a source of pride, family strength, and personal autonomy. It conceptualizes the act of parenting with a disability as a form of resistance by its very nature. Finally, it offers strategies for disrupting the production of disability in the family regulation system while embracing disability as a positive identity. By unearthing how disability can be constructed, created, and reinscribed by the state, this Article challenges the dominant legal and cultural narrative that disability is solely a medical diagnosis or personal problem.
Journal Article