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result(s) for
"Patient Education as Topic -- Popular Works"
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Handbook for mortals : guidance for people facing serious illness
by
Schuster, Janice Lynch
,
Lynn, Joanne
,
Harrold, Joan K.
in
Advance Care Planning -- Popular Works
,
Attitude to Death -- Popular Works
,
Catastrophic illness
2011
Handbook for Mortals is warmly addressed to all those who wish to approach the final years of life with greater awareness of what to expect and greater confidence about how to make the end of their lives a time of growth, comfort, and meaningful reflection. Written by Dr. Joanne Lynn and a team of experts, this book provides equal measures of practical information and wise counsel, from down-to-earth advice on how to talk to your doctor to inspiring quotes from such writers as Emily Dickinson, W. H. Auden, Jane Kenyon, and others.
Patient Information Websites About Medically Induced Second-Trimester Abortions: A Descriptive Study of Quality, Suitability, and Issues
by
Carlsson, Tommy
,
Axelsson, Ove
in
Abortifacient Agents
,
Abortion
,
Abortion, Induced - education
2017
Patients undergoing medically induced second-trimester abortions feel insufficiently informed and use the Web for supplemental information. However, it is still unclear how people who have experience with pregnancy termination appraise the quality of patient information websites about medically induced second-trimester abortions, whether they consider the websites suitable for patients, and what issues they experience with the websites.
Our objective was to investigate the quality of, suitability of, and issues with patient information websites about medically induced second-trimester abortions and potential differences between websites affiliated with the health care system and private organizations.
We set out to answer the objective by using 4 laypeople who had experience with pregnancy termination as quality assessors. The first 50 hits of 26 systematic searches were screened (N=1300 hits) using search terms reported by the assessors. Of these hits, 48% (628/1300) were irrelevant and 51% (667/1300) led to websites about medically induced second-trimester abortions. After correcting for duplicate hits, 42 patient information websites were included, 18 of which were affiliated with the health care system and 24 with private organizations. The 4 assessors systematically assessed the websites with the DISCERN instrument (total score range 16-80), the Ensuring Quality Information for Patients (EQIP) tool (total score range 0-100), as well as questions concerning website suitability and perceived issues.
The interrater reliability was 0.8 for DISCERN and EQIP, indicating substantial agreement between the assessors. The total mean score was 36 for DISCERN and 40 for EQIP, indicating poor overall quality. Websites from the health care system had greater total EQIP (45 vs 37, P>.05) and reliability scores (22 vs 20, P>.05). Only 1 website was recommended by all assessors and 57% (24/42) were rated as very unsuitable by at least one assessor. The most reported issues with the websites involved lack of information (76%, 32/42), and poor design (36%, 15/42).
The high number of irrelevant hits and poor quality of patient information websites are considerable issues that must be addressed and considered when consulting patients awaiting medically induced second-trimester abortions. In clinical encounters, health professionals should initiate discussions concerning websites about medically induced second-trimester abortions and inform patients about the issues and quality deficits associated with these websites.
Journal Article
Diabetes education
2012,2013
Diabetes education is a process, the key to which is establishing a therapeutic relationship with the individual. The overall goal of diabetes education is to enhance the individual's health capability, including their ability to solve problems and apply the learning to self-care. Thus, diabetes education is an interactive process of teaching and learning where information is co-generated. This innovative and thought-provoking new book explores the 'how' of diabetes education, rather than the 'what' and the 'why'. Diabetes Education: Art, Science and Evidence helps healthcare practitioners teach diabetes effectively from diagnosis onwards and ensure people living with diabetes receive individualised support and information. It enables practitioners and educators to examine and reflect on their practice when managing the person with diabetes. Bringing together all the thinking and experience of the diabetes journey in one text, this book is essential reading for all practitioners and students involved in diabetes care. SPECIAL FEATURES: Features short stories, case studies, illustrative quotes, practice points and reflection points throughout Edited by an internationally renowned expert in the field Contributions from some of the world's leading diabetes educators
Before and After Radical Prostate Surgery: Information and Resource Guide
by
Vandall-Walker, Virginia
,
Moore, Katherine
,
Pyne, Diana
in
Canada
,
Cancer
,
HEALTH & FITNESS / Diseases / Cancer
2008,2014
Before and After Radical Prostate Surgery is a research-based, comprehensive, and comprehensible resource on prostate surgery in Canada. Aimed at men with concerns about prostate surgery and their partners, this invaluable guide includes chapters on preparing for prostate surgery, the surgery itself, recovery in hospital and at home, a list of recommended resources, and special sections to record personal notes and important contact information.
A guide to hypertrophic cardiomyopathy: for patients, families, and interested physicians
Written by the authority on hypertrophic cardiomyopathy (HCM) and an HCM patient, and fully endorsed by the Hypertrophic Cardiomyopathy Association (HCMA), the leading advocacy and support organization, the 3rd Edition of this best-selling guide offers unparalleled insight into all aspects of living with and treating HCM. Accessible and practical, A Guide to Hypertrophic Cardiomyopathy For Patients, Their Families and Interested Physicians 3rd Edition: Answers the most pressing questions posed by patients, their families, and non-specialistshealth professionals involved in their care Covers everything from what is HCM and initial diagnosis of this increasingly prevalentcondition to the latest treatment options Reflects the first-ever HCM guidelines published by the American Heart Association in 2011
What the doctor didn't say : the hidden truth about medical research
by
Menikoff, Jerry
,
Richards, Edward P.
in
Bio-ethics
,
Bioethics and Medical Ethics
,
Clinical trials
2006
Most people know precious little about the risks and benefits of participating in a “clinical trial” – a medical research study involving some innovative treatment for a medical problem. Yet millions of people each year participate anyway. What the Doctor Didn’t Say explains the reality: that our current system intentionally hides much of the information people need to make the right choice about whether to participate. Witness the following scenarios: -Hundreds of patients with colon cancer undergo a new form of keyhole surgery at leading cancer centers – never being told that 85% of colorectal surgeons, worried that it increases the risk of the cancer returning, would not themselves undergo that procedure -Tens of thousands of women at high risk of developing breast cancer are asked to participate in a major research study. They are told about the option of having both breasts surgically removed – but not told about the option of taking a standard osteoporosis pill that might cut the risk of getting breast cancer by one half or more What the Doctor Didn’t Say, written by two prominent experts in the field, is the first book to reveal the secrets that many in the research establishment have fought long and hard to keep from patients. It shows why options not commonly known – including getting a new treatment outside of a research study – can often be the best choice. It explains how patients can make good decisions even if there is only limited information about a treatment’s effect. And it does this through the eye-opening of what is happening daily to thousands of people. Day after day, we are learning how little we know about what really works. Headlines regularly announce that a previously unquestioned treatment – hormane replacement therapy, drugs such as Vioxx or Celebrex – may now be much riskier than we thought. The latest in a surge of recent books criticising the medical establishment (but the first to look at clinical trials specifically), What the Doctor Didn’t Tell You helps to empower patients to survive in a world of medical uncertainty, and makes positive recommendations for systemic reform.