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23,829 result(s) for "REGISTRATION SYSTEMS"
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The Danish Civil Registration System
Introduction: The Danish Civil Registration System (CRS) was established in 1968, and all persons alive and living in Denmark were registered for administrative use. Content: CRS includes individual information on the unique personal identification number, name, gender, date of birth, place of birth, citizenship, identity of parents and continuously updated information on vital status, place of residence and spouses. Validity and coverage: Since 1968, CRS has recorded current and historical information on all persons living in Denmark. Among persons born in Denmark in 1960 or later it contains complete information on maternal identity. For women born in Denmark in April 1935 or later it contains complete information on all their children. CRS contains complete information on immigrations and emigrations from 1969 onwards, permanent residence in a Danish municipality from 1971 onwards, and full address in Denmark from 1977 onwards. Conclusion: CRS in connection with other registers and biobanks will continue to provide the basis for significant knowledge relevant to the aetiological understanding and possible prevention of human diseases.
Epidemiological Study Based on China Osteonecrosis of the Femoral Head Database
Objective The aim of the present study was to reveal the case characteristics of osteonecrosis of the femoral head (ONFH) in Mainland China. Methods This cross‐sectional epidemiological study derived data for ONFH patients from July 2016 to December 2018 from the China Osteonecrosis of the Femoral Head Database (CONFHD). The derived data included gender, age, body mass index (BMI), height, occupation, region, and etiology of femoral head necrosis. A descriptive analysis was performed to summarize the epidemiological characteristics of the case data in the CONFHD. Results A total of 1844 ONFH patients (2945 hips) were included in this study, comprising 1302 men and 542 women. The age of patients ranged from 18 to 95 years, with a median of 50 years, and the male to female ratio was 2.4. Male patients are younger than female patients (48.26 ± 12.56 years old and 55.56 ± 14.94 years old, respectively). Among the 1844 patients (2945 hips), there were 528 (17.92%) hips at ARCO stage I, 941 (31.99%) hips at ARCO stage II, 873 (29.63%) hips at ARCO stage III, and 603 (20.46%) hips at ARCO stage IV. In the subclassification of ARCO stages I and II, the majority of cases were type C; type A comprised the majority in the subclassification of ARCO stage III. According to the Kellgren–Lawrence classification system, among the 603 ARCO stage IV hips, there were 178 (29.52%) grade 1 hips, 201 (33.34%) grade 2 hips, 176 (29.18%) grade 3 hips, and 48 (7.96%) grade 4 hips. Most were from three provinces: Henan (27.3%), Shanxi (13.9%), and Shandong (11.9%). Regarding BMI, 982 patients (53.25%) were overweight or obese. Among all patients, the largest proportion of patients engaged in level IV manual work. Of all the patients, there were 495 (26.84%) with steroid‐induced ONFH, 685 (37.15%) were alcoholics, and 290 (15.73%) had traumatic ONFH. The 495 patients with steroid‐induced ONFH included 278 men (56.16%) and 217 women (43.84 %), had a complete history of hormone use. Among the primary diseases, there were 195 cases (39.39%) of immune system diseases, followed by dermatological diseases, respiratory diseases, nephropathy, and other diseases. There were a total of 685 patients with alcoholic ONFH, 589 of these patients (85.99%) were men. A total of 188 (27.45%) patients had drunk alcohol for 6–10 years (comprising the highest proportion), and 280 patients (40.88%) consumed 3001–3500 mL of alcohol each week (the highest proportion). Conclusion Osteonecrosis of the femoral head most commonly occurs after the age of 40. Male patients have an earlier onset than female patients, and the number of male patients is approximately twice that of female patients. The BMI of patients was mainly in the overweight and obese range, and half of these patients engaged in level IV manual work. From the imaging findings, the numbers of hips at ARCO stages II and III were greatest, and the number at stage I was relatively small. Among all the causes of disease, alcohol, steroid use and trauma were the three most common reasons for ONFH. This is the first Internet‐based ONFH patient case registration study for mainland China. It presents epidemiological characteristics of osteonecrosis of the femoral head in mainland China.
Stakeholders’ perceived achievements and challenges after the safe motherhood project in Northern Uganda
The Japanese Red Cross Society (JRCS) and the Uganda Red Cross Society (URCS) implemented the Safe Motherhood project to promote mother-friendly society in northern Uganda from 2010 to 2016. The follow-up study has not been conducted and the information on achievements and challenges after the project were limited. To review the safe motherhood project in northern Uganda, the purpose of the study was to explore the stakeholders’ perceived achievements and challenges after the project. Study design was qualitative content analysis using interview guides. After the approval of Institutional Review Board Clearance, the study was started (Approval Number: 2017-034). The subjects were informed about the ethical considerations (informed consent, participation on free will, confidentiality, and anonymity) in participating in the research, and they participated after signing the consent form. Six volunteers, 2 health center staff, and 2 former Uganda Red Cross staff were interviewed. Achievements were the acquisition of knowledge, attitudes changes, behavioural changes, linkage of all stakeholders, and positive influence on Safe Motherhood in community. Challenges of sociocultural barriers, attitudes toward women, accessibility and human resources, incentives and facilities, and sustainability of the project were derived from the interview. The study revealed that the project linked all stakeholders to achieve Safe Motherhood in community and all the developed registration systems were taken over. Long-term support is necessary for Safe Motherhood to take root.
Morbidity and mortality from a propensity score-matched, prospective cohort study of laparoscopic versus open total gastrectomy for gastric cancer: data from a nationwide web-based database
BackgroundControversy persists regarding the technical feasibility of laparoscopic total gastrectomy (LTG), and to our knowledge, no prospective study with a sample size sufficient to investigate its safety has been reported. We aimed to compare the postoperative morbidity and mortality rates in patients undergoing LTG and open total gastrectomy (OTG) for gastric cancer in prospectively enrolled cohort using nationwide web-based registry.MethodsFrom August 2014 to July 2015, consecutive patients undergoing LTG or OTG (925 and 1569 patients, respectively) at the participating institutions were enrolled prospectively into the National Clinical Database registration system. We constructed propensity score (PS) models separately in four facility yearly case-volume groups, and evaluated the postoperative morbidity and mortality in PS-matched 1024 patients undergoing LTG or OTG.ResultsThe incidence of overall morbidity were 84 (16.4%) in the OTG and 54 (10.3%) in the LTG groups (p = 0.01).The incidence of anastomotic leakage and pancreatic fistula grade B or above were not significantly different between the two groups (LTG 5.3% vs. OTG 6.1%, p = 0.59, LTG 2.7% vs. OTG 3.7%, p = 0.38, respectively). There were also no significant differences in the 30-day and in-hospital mortality rates between the two groups (LTG 0.2% vs. OTG 0.4%, p = 0.56; LTG 0.4% vs. OTG 0.4%, p = 1.00, respectively).ConclusionThe results from our nationally representative data analysis showed that LTG could be a safe procedure to treat gastric cancer compared to OTG. The indication for LTG should be considered carefully in a clinical setting.
A retrospective cluster analysis of regional disparities and healthcare factors influencing causes of death certification and mortality statistics in India
Reliable cause-specific mortality statistics are crucial for defining health priorities, public health programs, allocating resources, designing and implementing policies to improve healthcare quality and accessibility. India accounts for almost 18 percent of the world’s population. The 2020 report from the Office of the Registrar General of India indicates that the Medical Certification of Cause of Death (MCCD) rate is only 22.5%, with a minimal improvement of just 2.5% over the past decade. This study is the first to provide a comprehensive evaluation of MCCD-patterns across India over the past 15 years, addressing a critical-gap in the literature by identifying regional patterns, disparities, and healthcare variables that have previously been underexplored. Based on MCCD-trends over this period, the states and Union-Territories of India can be categorized into three clusters. Cluster1 includes 23 states with the lowest-average MCCD-rate of 18%, attributed to a low 0.14 doctors per 1000 people, with only 27.4% of hospitals actively reporting-MCCD. In contrast, Clusters2 and 3 have higher-average MCCD-rates of 63% and 60%, respectively, supported by higher 0.27 and 0.33 doctors per 1000 people, with over 80% of hospitals actively reporting-MCCD. Although, the findings indicate that active MCCD-reporting is a major factor associated with MCCD rates, other factors including healthcare infrastructure, state-specific healthcare policies, socioeconomic factors, and administrative management also influence MCCD-rates.
Completeness of death registration in the Civil Registration System, India (2005 to 2015)
Background & objectives: In many developing countries including India, the civil registration data are incomplete, inadequate and not timely, therefore, compromising the usefulness of these data. The completeness of registration of death (CoRD) in the Indian Civil Registration System (CRS) was assessed from 2005 to 2015 at State level to understand its current status and trends over time and also to identify gaps in data to improve CRS data quality. Methods: CoRD for each year for each State was calculated from the CRS reports for 2005-2015. Data were analyzed nationally by geographic region and individual State. The availability of CoRD by age group and sex was also reported. Results: About 40 per cent increase in CoRD was documented for India between 2005 and 2015, with CoRD of 76.6 per cent in 2015. CoRD was >90 per cent in the western and southern regions and the eastern, central and northeastern regions had CoRD lower than the Indian average in 2015. Among the 29 States, 16 (55.2%) State had CoRD >80 per cent and five (17.2%) <50 per cent and 10 States recorded 100 per cent CoRD. Despite the highest per cent increase during 2005-2015 (108.5%), CoRD in Uttar Pradesh was 44.2 per cent in 2015. Varying levels of progress in 2015 were seen between the State with similar CoRD estimates in 2015. Nagaland (−63.3%), Manipur (−33.1%) and Tripura (−30.3%) were the only States that documented a decrease in CoRD during 2005-2015. The age non-availability for India ranged from 37.0 per cent in 2009 to 37.9 per cent in 2015, an average of 41.5 per cent over the seven years and was an average of 35.6 and 36.6 per cent for males and females, respectively. Age was available for all registered deaths only in five (17.2%) of the 29 States in 2009 and four (13.8%) in 2015. Sex non-availability for the recorded deaths was much lower as compared with that for age. Interpretation & conclusions: Despite the significant progress made in CoRD in India, critical differences between the States within the CRS remain, with poor availability of reporting by age and sex. Concentrated efforts to assess the strengths and weaknesses at the State level of the CRS processes, quality of data and plausibility of information generated are needed in India.
Co-design of a Mobile App for Engaging Breast Cancer Patients in Reporting Health Experiences: Qualitative Case Study
The World Health Organization recommends incorporating patient-reported experience measures and patient-reported outcome measures to ensure care processes. New technologies, such as mobile apps, could help report and monitor patients' adverse effects and doubts during treatment. However, engaging patients in the daily use of mobile apps is a challenge that must be addressed in accordance with the needs of people. We present a qualitative case study documenting the process of identifying the information needs of breast cancer patients and health care professionals during the treatment process in a Chilean cancer institution. The study aims to identify patients' information requirements for integration into a mobile app that accompanies patients throughout their treatment while also providing features for reporting adverse symptoms. We conducted focus groups with breast cancer patients who were undergoing chemotherapy (n=3) or who completed chemotherapy between 3 months and 1 year (n=1). We also surveyed health care professionals (n=9) who were involved in patient care and who belonged to the oncology committee of the cancer center where the study took place. Content analysis was applied to the responses to categorize the information needs and the means to satisfy them. A user interface was designed according to the findings of the focus groups and was assessed by 3 trained information system and user interaction design experts from 2 countries, using heuristic evaluation guidelines for mobile apps. Patients' information needs were classified into 4 areas: an overview of the disease, information on treatment and day-to-day affairs, assistance on the normality and abnormality of symptoms during treatment, and symptoms relevant to report. Health care professionals required patients to be provided with information on the administrative and financial process. We noted that the active involvement of the following 4 main actors is required to satisfy the information needs: patients, caregivers, social network moderators, and health professionals. Seven usability guidelines were extracted from the heuristic evaluation recommendations. A mobile app that seeks to accompany breast cancer patients to report symptoms requires the involvement of multiple participants to handle the reports and day-to-day information needs. User interfaces must be designed with consideration of the patient's social conventions and the emotional load of the disease information.
Critical Comparative Analysis of UAS Legislative Developments
High growth and subsequent additional risks of the UAS sector have attracted the interest of various researchers and state legislation makers across the world. This article aims to review the most important, recent developments in UAS regulations of three major countries (USA, Japan, Australia) and of European Union Aviation Safety Agency (EASA). A comparative analysis and critical thinking of six (6) factors (UAS classification, Flights over people-Crowds of people, Registration systems, UAS geographical zones, Private Data-Privacy, Law Enforcement System) are conducted, in order to define areas of improvement in the fields of UAS flight risks and safety. Our studies show that although major steps have been done forward by these regulatory frameworks, there are still deficiencies that should be overcome. Finally, we advocate some proposals that could be used in the prospective legislative amendments.
A Comparative Analysis of the 2018 Biometric Voter Registration and the 2013 Manual Voter Registration in Zimbabwe’s Elections
This study is a comparative analysis of the Biometric Voter Registration (BVR) and manual voter registration processes with specific reference to Zimbabwe’s 2013 and 2018 Harmonised Elections. The main objective of the study was to investigate the challenges and opportunities of BVR against the manual voters’ registration processes in Zimbabwe’s 2013 and 2018 harmonised elections. This study employed qualitative methodology, where data was gathered using interviews, observations, and documentary searches. The voter registration process has been one of the major reasons for electoral disputes in Zimbabwe. The 2013 elections utilised the manual voter register, whereas the 2018 harmonised elections made use of the BVR process. The study noted that manual voter registration has been associated with long queues, many errors, and malpractices. The study also noted that the BVR process has brought some improvements to Zimbabwe’s electoral processes. However, the study recommends that the Zimbabwean government should adopt electronic voting in order to make the BVR process more relevant.
Cadaster and land register harmonization in Poland and Ukraine
This study presents an analysis of the functioning of real estate data registration systems in Poland and Ukraine, with a particular focus on the registration of property rights. It examines the historical development of these systems, their current structures, and the existing mechanisms for data exchange between them. The analysis also identifies key challenges related to interoperability and data consistency. The investigation revealed that in Poland, the real estate cadastre and the land register operate as separate systems under the authority of different institutions, despite recording overlapping information. To address issues of data integration, the Integrated Real Estate Information System was introduced to enable the exchange and verification of data between these registers and other public databases. In Ukraine, three independent systems manage real estate data: the State Land Cadastre, the State Register of Real Rights, and the archival records maintained by the Bureau of Technical Inventory (BTI). This fragmentation undermines the completeness and reliability of real estate information, complicating administrative procedures. The findings of this study highlight the urgent need to develop comprehensive legal frameworks and implement advanced technical solutions in both countries to reconcile discrepancies across real estate registers. The research also points to the substantial potential of integrated information systems to deliver accurate, consistent, and up-to-date property data. Empowering such systems with appropriate legal authority and functional capabilities would significantly improve the reliability, transparency, and efficiency of real estate information management.