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result(s) for
"Terminally ill parents."
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\"A forty-year-old man, burying himself in work and avoiding close emotional bonds with people, pays a visit to his mother in the country and is forced to extend it upon discovering her illness. While there, he reevaluates past familial and romantic relationships and finally attempts to build new ones. Gestures is \"a psychologically precise and moving autopsy of a 'man in the wake of ordeals.'\"-- Provided by publisher
Our short history : a novel
\"Karen Neulander has always been fiercely protective of her son, Jacob, now six. When Jacob's father, Dave, found out Karen was pregnant and made it clear that fatherhood wasn't in his plans, Karen walked out of the relationship, never telling Dave her intention was to raise their child alone. But now Jake is asking to meet his dad, and with good reason: Karen is dying. When she finally calls her ex, she's shocked to find Dave ecstatic about the son he never knew he had. As she tries to play out her last days in the \"right\" way, Karen wrestles with the truth that the only thing she cannot bring herself to do for her son--let his father become a permanent part of his life--is the thing he needs from her the most\"-- Provided by publisher.
The usage of family audiobooks as a legacy for grieving children — an exploratory quantitative analysis among terminally ill parents and close persons
2024
Background
Since 2017, terminally ill parents with dependent children under the age of 18 have been able to record an audiobook for their dependent children. This service allows them to narrate how they would like to be remembered in their voice. The family audiobook is a professionally supported, voluntary, free service that is unique in Germany. There is little research on digital memories for children. The study aims to understand how this service is used and its influence on children through responses of terminally ill parents and close persons.
Methods
An anonymous online survey, accessible between September 2023 and November 2023, was conducted among terminally ill parents and their close persons with support from the Family Audiobook Association in Germany. Analyses were carried out using SPSS.
Results
186 respondents, 95 terminally ill parents, and 91 close persons completed the online survey. Almost all terminally ill parents felt eased to have recorded a family audiobook. The two groups showed differences in how they used the family audiobook and how often they listened to it. While some children listen to the family audiobook with their bereaved parents or friends, other children are not yet ready for this, according to the open-ended responses of terminally ill parents and close persons.
Conclusions
The family audiobook provides a valuable opportunity for terminally ill parents with dependent children under the age of 18 to tell their own biographical story, offer support to the bereaved in remembering, and preserve the voice of the deceased for the children. In addition, this approach could help healthcare professionals to reduce the stress associated with providing end-of-life care for terminally ill parents.
Journal Article
Meaning in life of terminally ill parents with minor children compared to palliative care patients – a quantitative analysis using SMiLE
by
Ateş, Gülay
,
Hesse, Michaela
,
Cuhls, Henning
in
Children & youth
,
Families & family life
,
Original Research
2024
Background:
Caring for terminally ill patients with minor children can be very stressful. The perceived quality of life is significantly influenced by the Meaning in Life (MiL). No studies were found that focus on the prioritized special needs of this patient group.
Objectives:
The aim is to compare and contrast terminally ill parents with minor children and palliative care patients in Germany, in order to provide appropriate support beyond medical, nursing or therapeutic interventions.
Methods:
Terminally ill parents diagnosed were surveyed using a validated instrument ‘Schedule for Meaning in Life Evaluation (SMiLE)’. The study listed various areas that contribute to the MiL, followed by an evaluation of their importance and satisfaction levels. The researchers then compared these findings with data collected from palliative care patients.
Results:
In Germany, 54 patients, mostly female and with a mean age of 43, were included in this study between February 2017 and September 2020. The median age of the 96 children during the survey phase was 7 years. The comparison group consists of 100 palliative care patients in Germany; mostly aged 50 years and older. For terminally ill patients most important areas were in decreasing order family (100%), social relations (80%), leisure time (61%), nature/animals (39%) and home/garden (30%). Although the overall indices are close between both groups, there are significant and highly correlated differences between them. Parents felt limited by their illness in being a mother or father, as they wanted to be.
Conclusion:
The involvement with SMiLE led patients to consider their coping resources. The areas relevant to terminally ill parents differed from those relevant to palliative care patients. All participants identified family as the most important factor for MiL. The results suggest that evaluating MiL can serve as a coping strategy and help terminally ill parents with minor children.
Plain language summary
A comparison of answers to the meaning in life from seriously ill parents with young children with the answers of other seriously ill patients
Background: Caring for seriously ill patients with young children can be very stressful. The quality of life depends on meaning in life. No studies were found that focus on the needs of this patients. Objectives: The aim was to explore similarities and differences between seriously ill parents with young children and palliative care patients in Germany to find the best way to support them. Methods: The Meaning in Life questions were used to find this out. Two researchers asked seriously ill parents about different things that make their lives meaningful. The researchers then compared the results with data from other seriously ill patients in need of palliative care. In Germany, 54 seriously ill parents with young children were interviewed between February 2017 and September 2020. The children were usually seven years old. The compared group consisted of 100 palliative care patients and was mostly older than 49 years. For seriously ill patients most important were family, social relations, leisure time, nature/animals, and home/garden. The values seemed similar, but there are clear differences between the groups. Parents felt their illness limited them in being a mother or a father. Conclusion: The questions helped patients helped to remember meaning in life and set goals. The things that mattered to seriously ill parents were different from those that mattered to palliative care patients. All participants said that family was the most important thing for meaning in life. The results show that thinking about meaning in life can help.
Journal Article
My Mother, My Father
2013
Some of Australia's best known writers share their wise and searingly honest experiences of losing a parent.
The good mother
Kate has been through the fire with her three children. Having been left devastated and homeless after her husband's affair and the break-up of their family, somehow she has pulled through. Though times are still tough, she's beginning to see the start of a new life. But when 12-year-old Jesssica is diagnosed with cancer, Kate's resilience is put to the ultimate test. She has an 18-year-old son consumed with hatred of his father, a seven-year-old who is bewildered and acting up and an ex-husband who won't face up to his responsibilities. And in the middle of it a beloved child who is trying to be brave but is getting sicker by the day. Kate knows she must put to one side her own fear and heartbreak and do right by her children, particularly Jessica. But maybe doing the right thing means doing the unthinkable.
When She is Gone: Child Care Plans of Mozambican Mothers with Terminal Illnesses
2007
This study explored the child welfare plans of 102 mothers with terminal illnesses (predominantly AIDS) in rural Mozambique. The majority of mothers assumed that after their death the extended family would care for the children, but none offered a clearly identified plan. Many hoped that the government would provide for the children's education, food, and health care, although very little assistance is available currently. The vast majority of the women reported a preference for placement in an orphanage over other options, due to the perception that the children will be better fed and educated there. Ironically, all orphanages in Mozambique are at full capacity. The findings suggest an urgent need for collaboration at community, national, and international levels to meet the needs of orphans. Policy, practice, and research implications are explored.
Journal Article