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"Transitional Care - organization "
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A randomized controlled trial testing the effectiveness of a paramedic-delivered care transitions intervention to reduce emergency department revisits
2018
Background
Approximately 20% of community-dwelling older adults discharged from the emergency department (ED) return to an ED within 30 days, an occurrence partially resulting from poor care transitions. Prior published interventions to improve the ED-to-home transition have either lacked feasibility or effectiveness. The Care Transitions Intervention (CTI) has been validated to decrease rehospitalization among patients transitioning from the hospital to the home but has never been tested for patients transitioning from the ED to the home. Paramedics, traditionally involved only in emergency care, are well-positioned to deliver the CTI, but have never been previously evaluated in this role.
Methods
This single-blinded randomized controlled trial tests whether the paramedic-delivered ED-to-home CTI reduces community-dwelling older adults’ ED revisits in the 30 days after an index visit. We are prospectively recruiting patients aged≥ 60 years at 3 EDs in Rochester, NY and Madison, WI to enroll 2400 patient subjects. Subjects are randomized into control and treatment groups, with the latter receiving the adapted CTI. The intervention consists of the paramedic performing one home visit and up to three follow-up phone calls. During these interactions, the paramedic follows the CTI approach by coaching patients toward their goals, with a focus on their personal health record, medication management, red flags, and primary care follow-up. We follow patient participants for 30 days. All receive a survey during the index ED visit to capture baseline demographic and health information and two telephone-based surveys to assess process objectives and outcomes. We also perform a medical record review. The primary outcome is the odds of ED revisit within 30 days after discharge from the index ED visit.
Discussion
This is the first study to test whether the CTI, applied to the ED-to-home transition and delivered by community paramedics, can decrease the rate at which older adults revisit an ED. Outcomes from this research will help address a major emergency care challenge by supporting older adults in the transition from the ED to home, thereby improving health outcomes for this population and reducing potentially avoidable ED visits.
Trial registration
ClinicalTrials.gov Registration:
NCT02520661
. Trial registration date: August 13, 2015.
Journal Article
The cardiac care bridge program: design of a randomized trial of nurse-coordinated transitional care in older hospitalized cardiac patients at high risk of readmission and mortality
by
Engelbert, R. H. H.
,
Karapinar-Çarkit, F.
,
Daliri, S.
in
Activities of daily living
,
Aged
,
Aged, 80 and over
2018
Background
After hospitalization for cardiac disease, older patients are at high risk of readmission and death. Although geriatric conditions increase this risk, treatment of older cardiac patients is limited to the management of cardiac diseases. The aim of this study is to investigate if unplanned hospital readmission and mortality can be reduced by the Cardiac Care Bridge transitional care program (CCB program) that integrates case management, disease management and home-based cardiac rehabilitation.
Methods
In a randomized trial on patient level, 500 eligible patients ≥ 70 years and at high risk of readmission and mortality will be enrolled in six hospitals in the Netherlands. Included patients will receive a Comprehensive Geriatric Assessment (CGA) at admission. Randomization with stratified blocks will be used with pre-stratification by study site and cognitive status based on the Mini-Mental State Examination (15–23 vs ≥ 24). Patients enrolled in the intervention group will receive a CGA-based integrated care plan, a face-to-face handover with the community care registered nurse (CCRN) before discharge and four home visits post-discharge. The CCRNs collaborate with physical therapists, who will perform home-based cardiac rehabilitation and with a pharmacist who advices the CCRNs in medication management The control group will receive care as usual.
The primary outcome is the incidence of first all-cause unplanned readmission or mortality within 6 months post-randomization. Secondary outcomes at three, six and 12 months after randomization are physical functioning, functional capacity, depression, anxiety, medication adherence, health-related quality of life, healthcare utilization and care giver burden.
Discussion
This study will provide new knowledge on the effectiveness of the integration of geriatric and cardiac care.
Trial registration
NTR6316
. Date of registration: April 6, 2017.
Journal Article
The systematic early integration of palliative care into multidisciplinary oncology care in the hospital setting (IPAC), a randomized controlled trial: the study protocol
by
Vanbutsele, Gaëlle
,
Surmont, Veerle
,
Van Belle, Simon
in
Adaptation, Psychological
,
Adult
,
Aged
2015
Background
Previous studies in the US and Canada, have shown the positive impact of early palliative care programs for advanced cancer patients on quality of life (QoL) and even survival time. There has been a lack of similar research in Europe. In order to generalize the findings from the US and Canada research on a larger scale, similar studies are needed in different countries with different care settings. The aim of this paper is to describe the research protocol of a randomized controlled trial, situated in Flanders, Belgium, evaluating the effect of systematic early integration of palliative care in standard oncology care.
Methods/Design
A randomized controlled trial will be conducted as follows: 182 patients with advanced cancer will be recruited from the departments of Medical Oncology, Digestive Oncology and Thoracic Oncology of the Ghent University Hospital. The trial will randomize patients to either systematic early integration of palliative care in standard oncology care or standard oncology care alone. Patients and informal caregivers will be asked to fill out questionnaires on QoL, mood, illness understanding and satisfaction with care at baseline, 12 weeks and every six weeks thereafter. Other outcome measures are end-of-life care decisions and overall survival time.
Discussion
This trial will be the first randomized controlled trial in the Belgian health care setting to evaluate the effect of systematic early integration of palliative care for advanced cancer patients. The results will enable us to evaluate whether systematic early integration of palliative care has positive effects on QoL, mood and patient illness-understanding and which components of the intervention contribute to these effects.
Trial registration
Clinicaltrials.gov Identifier:
NCT01865396
, registered 24
th
of May, 2013.
Journal Article
Impact of a transition nurse program on the prevention of thirty-day hospital readmissions of elderly patients discharged from short-stay units: study protocol of the PROUST stepped-wedge cluster randomised trial
by
Debray, Matthieu
,
Galamand, Béatrice
,
Poupon Bourdy, Stéphanie
in
Activities of daily living
,
Admission and discharge
,
Aged
2016
Background
In France, for patients aged 75 or older, it has been estimated that the hospital readmission rate within 30 days is 14 %, a quarter being avoidable. Some evidence suggests that interventions “bridging” the transition from hospital to home and involving a designated professional (usually nurses) are the most effective in reducing the risk of readmission, but the level of evidence of current studies is low. Our study aims to assess the impact of a care transition program from hospital to home for elderly admitted to short-stay units.
Methods
This is a multicentre, stepped-wedge cluster randomised trial.
The program will be implemented at three times of the transition: 1) during the patient’s stay in hospital: development of a discharge plan, creation of a transitional care file, and notification of the primary care physician about inpatient care and hospital discharge by the transition nurse; 2) on the day of discharge: meeting between the transition nurse and the patient to review the follow-up recommendations; and 3) for 4 weeks after discharge: follow-up by the transition nurse.
The primary outcome is the 30-day unscheduled hospital readmission or emergency visit rate after the index hospital discharge.
The patients enrolled will be aged 75 or older, hospitalized in an acute care geriatric unit, and at risk of hospital readmission or an emergency visit after returning home.
In all, 630 patients will be included over a 14-month period. Data analysis will be blinded to allocation, but due to the nature of the intervention, physicians and patients will not be blinded.
Discussion
Our study makes it possible to evaluate the specific effect of a bridging intervention involving a designated professional intervening before, during, and after hospital discharge.
The strengths of the study design are methodological and practical. It permits the estimation of the intervention effect using between- and within-cluster comparisons; the study of the fluctuations in unscheduled hospital readmission or emergency visit rates; the participation of all clusters in the intervention condition; the implementation of the intervention in each cluster successively.
Trial Registration
This study has been registered as a cRCT at clinicaltrials.gov (identifier:
NCT02421133
). Registered 9 March 2015.
Journal Article
Older persons’ experiences of adapting to daily life at home after hospital discharge: a qualitative metasummary
by
Molin, Marianne
,
Debesay, Jonas
,
Hestevik, Christine Hillestad
in
Activities of daily living
,
Activities of Daily Living - psychology
,
Adaptation, Psychological
2019
Background
Researchers have shown that hospitalisation can decrease older persons’ ability to manage life at home after hospital discharge. Inadequate practices of discharge can be associated with adverse outcomes and an increased risk of readmission. This review systematically summarises qualitative findings portraying older persons’ experiences adapting to daily life at home after hospital discharge.
Methods
A metasummary of qualitative findings using Sandelowski and Barroso’s method. Data from 13 studies are included, following specific selection criteria, and categorised into four main themes.
Results
Four main themes emerged from the material: (1) Experiencing an insecure and unsafe transition, (2) settling into a new situation at home, (3) what would I do without my informal caregiver? and (4) experience of a paternalistic medical model.
Conclusions
The results emphasise the importance of assessment and planning, information and education, preparation of the home environment, the involvement of the older person and caregivers and supporting self-management in the discharge and follow-up care processes at home. Better communication between older persons, hospital providers and home care providers is needed to improve the coordination of care and facilitate recovery at home. The organisational structure may need to be redefined and reorganised to secure continuity of care and the wellbeing of older persons in transitional care situations.
Journal Article
Continuum of care in maternal, newborn and child health in Pakistan: analysis of trends and determinants from 2006 to 2012
by
Maqsood, Sidra
,
Zakar, Rubeena
,
Fischer, Florian
in
Adult
,
Child
,
Child Health Services - organization & administration
2017
Background
Pakistan, being a developing country, presents the dismal picture of maternal and neonatal mortality and morbidity. The majority of maternal and neonatal deaths could be avoided if Continuum of Care (CoC) is provided in a structured pathway from pregnancy to birth and to the first week of life of the newborn child. This study aimed to analyse the trends of CoC at all three levels (antenatal care, skilled delivery and postpartum care) and to identify various factors affecting the continuation in receiving CoC in Pakistan during 2006 to 2012.
Methods
Secondary data analysis was performed on nationally representative data from the last two iterations of Pakistan Demographic and Health Survey (PDHS), conducted during 2006/07 to 2012/13. The analysis is limited to women of the reproductive age group (15–49 years) who gave birth during the last five years preceding both surveys. This leads to a sample size of 5,724 and 7,461 respondents from PDHS 2006/07 and 2012/13 respectively. The association between CoC and several factors, including individual attributes (reproductive status), family influences, community context, as well as cultural and social values was assessed in bivariate analyses in a first step. Furthermore, odds ratios and adjusted odds ratios with 95% confidence intervals using a binary and multivariable logistic regression were calculated.
Results
Our research presents the trends of a composite measure of CoC including antenatal care, delivery assistance and postpartum care. The largest gap in CoC was observed at antenatal care followed by delivery and postnatal care within 48 h after delivery. Results show that CoC completion rate has increased from 15% to 27% amongst women in Pakistan over time from 2006 to 2012. Women with high age at first birth, having less number of children, with higher education, belonging to richest quintile, living in Sindh province and urban areas, having high autonomy and exposure to mass media were most likely to avail complete CoC.
Conclusions
The findings show that women in Pakistan still lack the CoC. This calls for attention to develop and implement tailored interventions, focusing on the needs of women in Pakistan to provide CoC in an integrated manner, involving both public and private sectors by appropriately addressing the factors hindering CoC completion rates.
Journal Article
Securing structured transitional care for adolescents with type 1 diabetes: a qualitative study of implementation barriers and facilitators prior to implementation– the STEPSTONES-Implement project
by
Sparud-Lundin, Carina
,
Brorsson, Anna Lena
,
Saarijärvi, Markus
in
Adolescent
,
Adolescents
,
Adults
2026
Background
Adolescents and young adults with type 1 diabetes (T1D) face challenges during the transition from pediatric to adult healthcare, including gaps in care and deteriorating health outcomes. Although structured transition programs have demonstrated effectiveness, few components of transitional care are implemented in practice. Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical conditions (STEPSTONES) is a person-centered, multicomponent intervention developed to support adolescents with chronic conditions during this transition. Prior to implementation in pediatric diabetes care, there is a need to understand the implementation context that might influence program adoption. The aim of this study was to explore healthcare professionals’ perspectives on barriers to and facilitators for implementing the STEPSTONES transition program for adolescents with T1D in two pediatric diabetes outpatient settings in Sweden prior to implementation.
Methods
Qualitative inductive design was employed. Data was collected during 2024 – 2025 through three focus group interviews with registered nurses (
n
= 8), physicians (
n
= 3) and individual interviews with healthcare managers (
n
= 2) and the chair for a national patient organization for youth with T1D (
n
= 1). Participants were recruited from two pediatric diabetes outpatient clinics at a university hospital in Sweden prior to program implementation. Data was analyzed using thematic analysis.
Results
An overarching theme,
Conceptualizations of structured transitional care
, was identified, encompassing three themes:
openness to changes in the transition care processes, ensuring dedicated responsibility for transitional care and supporting a youth-oriented approach.
Key facilitators included a strong perceived need for structured transition support, alignment of the program with existing practices, leadership engagement, and the appointment of a dedicated transition coordinator. Barriers were related primarily to contextual constraints, such as limited resources, challenges in collaboration between pediatric and adult care, and healthcare professionals’ uncertainty regarding how to discuss sensitive topics and psychosocial support. healthcare professionals’ uncertainty regarding
Conclusions
These findings indicate favorable preconditions for implementing the STEPSTONES transition program in pediatric diabetes care. However, successful implementation will depend on addressing cross-organizational contextual barriers, strengthening recipients’ competence in adolescent-centered care, and investing in active and sustained facilitation. In accordance with the Integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) framework that we used as a post hoc interpretative framework, the findings highlight that implementation success requires alignment between the innovation, recipients, and context, with facilitation playing a pivotal role. These insights may inform the implementation of structured transition programs for adolescents with chronic conditions in routine healthcare.
Journal Article
Burdensome Transitions of Care for Patients with End-Stage Liver Disease and Their Caregivers
by
Traeger Lara
,
Donlan, John
,
Richter, James
in
Caregivers
,
Liver diseases
,
Qualitative research
2021
BackgroundPatients with end-stage liver disease (ESLD) experience frequent readmissions; however, studies focused on patients’ and caregivers’ perceptions of their transitional care experiences to identify root causes of burdensome transitions of care are lacking.AimTo explore the transitional care experiences of patients with ESLD and their caregivers in order to identify their supportive care needs.MethodsWe conducted interviews with 15 patients with ESLD and 14 informal caregivers. We used semi-structured interview guides to explore their experiences since the diagnosis of ESLD including their care transitions. Two raters coded interviews independently (κ = 0.95) using template analysis.ResultsParticipants reported feeling unprepared to manage their informational, psychosocial, and practical care needs as they transitioned from hospital to home after the diagnosis of ESLD. Delay in the timely receipt of supportive care services addressing these care needs resulted in hospital readmissions, emotional distress, caregiver burnout, reduced work capacity, and financial hardship. Participants shared the following resources that they perceived would improve their quality of care: (1) discharge checklist, (2) online resources, (3) mental health support, (4) caregiver support and training, and (5) financial navigation.ConclusionTransitional care models that attend to the informational, psychosocial, and practical domains of care are needed to better support patients with ESLD and their caregivers at the time of diagnosis and beyond. Without attending to the multidimensional care needs of newly diagnosed patients with ESLD and their caregivers, they are at risk of burdensome transitions of care, high healthcare utilization, and poor health-related quality of life.
Journal Article
Hospital to home transition of children with medical complexities in the Netherlands: current practice
by
Ahout, I. M. L.
,
vanWoensel, J. B. M.
,
van Karnebeek, C. D.
in
Adolescent
,
Child
,
Child, Preschool
2025
Children with Medical Complexity (CMC) often require 24/7 expert care, which may impede discharge from hospital to home (H2H) resulting in prolonged admission. Limited research exists on pediatric patients with delayed discharges and the underlying reasons for such extended admissions. Therefore, our objectives were to (1) describe the demographics, clinical characteristics, and course of CMC who are in their H2H transition and (2) identify the reasons for postponement of H2H discharge. Prospective, multicenter, observational cohort study performed from February 2022 until November 2022 for 6 months in four Dutch University Medical Center children’s hospitals. Clinically admitted patients (age 0–18 years) were eligible for inclusion if they were medically stable, yet required specialized nursing and/or paramedical care and were in the H2H transition process. In total, 44 participants were included, of whom 32 (72.7%) were younger than 1 year. Median stay in the hospital was 7.3 weeks (range 0.7–28.7). Upon entering the H2H phase, postponement of discharge was for 65.1% of the patients primarily due to a combination of medical reasons and organizational/family factors. For the remaining 34.9% of the patients, discharge was delayed solely due to organizational and/or family factors.
Conclusion
Our study highlights several reasons contributing to the postponement of discharge for pediatric patients with medical complexity, including their medical fragility, the time-consuming process of parent training, and the challenges in organizing home care. Future steps should explore various transitional care programs aimed at improving the H2H transition.
What is Known
:
•
Hospital to home transition for Children with Medical Complexity is a multi-faceted process with many challenges and obstacles
•
Insight into the current practice of transitioning home in University Medical Centers remains unknown and is needed to develop a tailored yet standardized approach
What is New:
•
Our findings reveal reasons for postponement of discharge home and show that patients are medically stable for more than half of their hospital stays. This indicates potential opportunities to reorganize care for better outcomes for the child, the family, and healthcare consumption
Journal Article
Barriers and Facilitators to Establishing Partnerships for Substance Use Disorder Care Transitions Between Safety-Net Hospitals and Community-Based Organizations
by
Fenstemaker, Cheyenne
,
Pagán, José A.
,
Franz, Berkeley
in
Data collection
,
Data systems
,
Drug abuse
2024
The effectiveness of hospital-based transitional opioid programs (TOPs), which aim to connect patients with substance use disorders (SUD) to ongoing treatment in the community following initiation of medication for opioid use disorder (MOUD) treatment in the hospital, hinges on successful patient transitions. These transitions are enabled by strong partnerships between hospitals and community-based organizations (CBOs). However, no prior study has specifically examined barriers and facilitators to establishing SUD care transition partnerships between hospitals and CBOs.
To identify barriers and facilitators to developing partnerships between hospitals and CBOs to facilitate care transitions for patients with SUDs.
Qualitative study using semi structured interviews conducted between November 2022-August 2023.
Staff and providers from hospitals affiliated with four safety-net health systems (n=21), and leaders and staff from the CBOs with which they had established partnerships (n=5).
Interview questions focused on barriers and facilitators to implementing TOPs, developing partnerships with CBOs, and successfully transitioning SUD patients from hospital settings to CBOs.
We identified four key barriers to establishing transition partnerships: policy and philosophical differences between organizations, ineffective communication, limited trust, and a lack of connectivity between data systems. We also identified three facilitators to partnership development: strategies focused on building partnership quality, strategic staffing, and organizing partnership processes.
Our findings demonstrate that while multiple barriers to developing hospital-CBO partnerships exist, stakeholders can adopt implementation strategies that mitigate these challenges such as using mediators, cross-hiring, and focusing on mutually beneficial services, even within resource-limited safety-net settings. Policymakers and health system leaders who wish to optimize TOPs in their facilities should focus on adopting implementation strategies to support transition partnerships such as inadequate data collection and sharing systems.
Journal Article