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This book confronts readers with questions emerging from the 'gap' between EU aspirations to reduce youth unemployment without increasing social exclusion - and what is actually happening in practice. Aimed at a diverse readership, it is based on a three year European Union (EU) project into education, training, guidance and employment (ETG) programmes for young adults across six countries. Insights are grounded in the lives and stories of disadvantaged young adults, and of those who work with them, bringing to life unintended impacts of well intended interventions. The authors consider the influence of shifting political and pedagogical ideologies in the EU on local practices and young peoples’ lives and choices. They also consider the impact of policy and performance management discourses ’on the ground’. This work uses rigorous yet innovative narrative forms to invite readers into a ’whole system’ inquiry into these complexities. Unemployed Youth and Social Exclusion in Europe will make an important contribution to reflecting critically on current policy and practice, as well as to academic understandings of unemployed youth, and restrictive and reflexive approaches to learning for inclusion across Europe. Contents: Foreword, Karen Evans. Encounters: Orientations; The research wellspring for this book; Three starting stories: young Europeans being 'Activated' for employment; Youth transition research: changing metaphors and languages in a globalizing world. Lenses On The Shifting Landscape Of 'Activation': Activation practices: an emerging topography; Working-identities in (com)motion; Agency, empowerment, and activation: balancing contradictions; Re-vis(ion)ing professional practice with young unemployed adults. Paradoxes And Possibilities: Policy, Practice And Research: Making the bridge: introduction; Ideologies and policy discourses: impacts from 'On High' and 'Afar'; Restrictive and reflexive activation discourses explored; Learning and improvisation at the policy-practice interface; Epilogue; Appendix; Bibliography; Index. Susan Warner Weil is a Professor at the University of the West of England, UK. Danny Wildemeersch is a Professor at the University of Leuven, Belgium. Dr Theo Jansen lectures at the University of Nijmegen, The Netherlands.

We investigate the existence and importance of family welfare cultures, where the receipt of a welfare program by one generation causes increased participation in the next generation. Our context is Norway’s disability insurance (DI) system. To overcome the challenge of correlated unobservables across generations, we take advantage of random assignment of judges to DI applicants whose cases are initially denied. Some appeal judges are systematically more lenient, which leads to random variation in the probability a parent will be allowed DI. Using this exogenous variation, we find strong evidence for a causal link across generations: when a parent is allowed DI at the appeal stage, their adult child’s participation over the next five years increases by 6 percentage points. This effect grows over time, rising to 12 percentage points after 10 years. Although these findings are specific to our setting, they highlight that welfare reforms can have long-lasting effects on program participation, since any original effect on the current generation could be reinforced by changing the participation behavior of their children as well. The detailed nature of our data allows us to compare the intergenerational transmission with spillover effects in other networks and to explore mechanisms.

Child chronic illness/ disability can present significant challenges for children, families and society that require appropriate policy responses; yet little is known about the demands placed on families resources from an economics perspective in terms of its impact on household income and the extra income required to achieve the same standard of living as families who do not have a child with a chronic illness/disability. The paper uses data from the Growing Up in Ireland National survey dataset for nine year olds. It is the first study to empirically investigate the impact of child chronic illness/disability on earnings, standard of living and the extra cost of disability together. It is also the first study to explicitly address endogeneity in the standard of living model by using a two-stage process where residuals were harvested to provide efficient estimates. The findings show that families experience significant disadvantage and economic hardship due to reduced household income and a lower standard of living due to the extra cost of disability that would require considerable income to compensate. Policy implications of these findings suggest that a tiered approach to disability support payments which encompass broader criteria for inclusion based on varying severity levels be introduced to alleviate the financial hardship and compromised economic wellbeing of families affected. In addition, more innovative policies are required to implement appropriate timely access to health and social care services and flexi parental employment, which in turn requires the provision of adequate access to high quality educational and care facilities.

BackgroundHealth economics research and economic evaluation have increasingly taken a societal perspective, accounting for the economic impacts of informal care. Projected economic costs of informal care help researchers and policymakers understand better the long-term consequences of policy reforms and health interventions. This study makes projections of the economic costs of informal care for older people in England.MethodsData come from two national surveys: the English Longitudinal Study of Ageing (ELSA, N = 35,425) and the Health Survey for England (N = 17,292). We combine a Markov model with a macrosimulation model to make the projections. We explore a range of assumptions about future demographic and epidemiological trends to capture model uncertainty and take a Bayesian approach to capture parameter uncertainty.ResultsWe estimate that the economic costs of informal care were £54.2 billion in 2019, three times larger than the expenditure on formal long-term care. Those costs are projected to rise by 87% by 2039, faster than public expenditure but slower than private expenditure on formal long-term care. These results are sensitive to assumptions about future life expectancy, fertility rates, and progression of disabilities in the population.ConclusionsPrevention schemes aiming to promote healthy aging and independence will be important to alleviate the costs of informal care. The government should strengthen support for informal caregivers and care recipients to ensure the adequacy of care, protect the well-being of caregivers, and prevent the costs of informal care from spilling over to other sectors of the economy.

The objective of disability policy is to create a society where people with disabilities and their families enjoy an equal standard of living to those without disabilities, though evidence to underpin policy is sparse. We defined the compensating variation (CV) of child disability as the amount of additional income a family with a disabled child would require to achieve the same living standards as a similar family without a disabled child. The aims of this study were to estimate the CV for child disability and to explore how this varied for different levels of disability and reference levels of living standards. Using data on 54,641 families from the Family Resources Survey (2004-2012), we matched families with (cases) and without (controls) a disabled child on family and child characteristics plus living standards and calculated the income difference inclusive of disability benefits. Our findings suggest that across families with the most disabled children, a compensating variation equal to an extra £56-£79 a week was required to achieve the same living standards as matched families without a disabled child compared with the mean level of state disability benefit £47-£71 a week in this group.

The purpose of this article is to examine the role of social spending policies in reducing child deprivation and inequality between family structures. In particular, based on the idea that the redistributive effects of such policies affect economic well-being in childhood, we analyse whether three functions of social spending (family/children, housing/social exclusion and sickness/disability) are associated with the reduction of different types of child deprivation (nutrition, clothing, education, leisure and social life) in Europe. We employ multilevel techniques for this purpose. Our findings are consistent with the hypothesis that greater social spending on sickness/disability benefits can reduce the risk of child deprivation, particularly for single-parent families, although we cannot exclude the possibility that this association is spurious. Family/children benefits and housing/social exclusion benefits seem to have a somewhat more limited effect but still contribute to reducing inequalities between single-parent and two-parent families in some types of deprivation.

Aim We aim to assess the effects of the COVID‐19 pandemic on self‐reported health and quality of life among family caregivers of children with disabilities across Europe. Design Cross‐sectional study. Methods Data from the survey by the Eurocarers and IRCCS‐INRCA were used. The data were collected between November 2020 and March 2021 from 16 European countries. Data analysis was done using regression analysis to identify family caregivers' self‐reported health and well‐being predictors. Results This study included 289 caregivers. The mean age of children was 12 years. Their family caregiver's mean age was 44, and they were mainly women. Experience of lack of freedom predicted family caregivers' poor self‐reported health and quality of life. Children's interrupted health and social services also predicted family caregivers' poor self‐reported mental well‐being. Longitudinal evidence on the pandemic's effects and a diverse view of family caregivers of children with disabilities are needed to plan effective post‐pandemic health services and nursing practice. No Patient or Public Contribution.

The transition from care into adulthood is a difficult step for any young person, but young people leaving care have a high risk of social exclusion, both in terms of material disadvantage and marginalisation. In Young People's Transitions from Care to Adulthood leading academics gather together the latest international research relating to the transition of young people leaving care, outlining and comparing the range of legal and policy frameworks, welfare regimes and innovative practice across 16 countries. The book also highlights the variations that exist between different groups leaving care. Featuring key messages for policy and practice, this book will give academics, practitioners and policymakers valuable insights into how to encourage resilience and improve outcomes for care leavers.

ObjectiveTo survey parents and carers of children with a congenital anomaly across Europe about their experiences of healthcare services and support during the COVID-19 pandemic.DesignCross-sectional study.SettingOnline survey in 10 European countries, open from 8 March 2021 to 14 July 2021.Population1070 parents and carers of children aged 0–10 years with a cleft lip, spina bifida, congenital heart defect (CHD) requiring surgery and/or Down syndrome.Main outcome measuresParental views about: the provision of care for their child (cancellation/postponement of appointments, virtual appointments, access to medication), the impact of disruptions to healthcare on their child’s health and well-being, and satisfaction with support from medical sources, organisations and close relationships.ResultsDisruptions to healthcare appointments were significantly higher (p<0.001) in the UK and Poland, with approximately two-thirds of participants reporting ‘cancelled or postponed’ tests (67/101; 256/389) and procedures compared with approximately 20% in Germany (13/74) and Belgium/Netherlands (11/55). A third of participants in the UK and Poland reported ‘cancelled or postponed’ surgeries (22/72; 98/266) compared with only 8% in Germany (5/64). In Poland, 43% (136/314) of parents reported that changes to their child’s ongoing treatment had moderately to severely affected their child’s health, significantly higher than all other countries (p<0.001). Satisfaction ratings for support from general practitioners were lowest in the UK and Poland, and lowest in Poland and Italy for specialist doctors and nurses.ConclusionA large proportion of participants reported disruptions to healthcare during the pandemic, which for some had a significant impact on their child’s health. Regional differences in disruptions raise questions about the competence of certain healthcare systems to meet the needs of this vulnerable group of patients and indicate improvements should be strived for in some regions.