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Stand by me : a guide to navigating modern, meaningful caregiving
\"Compassionate, groundbreaking, and urgently needed, Stand By Me provides caregivers with new ways to juggle the responsibilities and emotional ups and downs of caregiving. As the founder of the only devoted Caregivers Clinic in the country, clinical psychologist Dr. Allison Applebaum is no stranger to the intensity of being an unpaid, untrained family caregiver. She also understands that it is often the strength and well-being of these very caregivers-the parents, children, partners, siblings, and friends of patients-that are the true linchpin determining each patient's illness experience. This book puts the practical tools and transformative support of the Caregivers Clinic in your hands, empowering you to provide your loved one with the best quality of life and care possible, while promoting your own wellbeing. The book covers crucial topics including: -Getting the most from any healthcare system -Productive advance care planning -Navigating changing roles and relationship dynamics -Finding meaning and purpose in the caregiving experience Stand By Me draws on a decade of clinical and research experience as well as Dr. Applebaum's personal journey as the primary caregiver for her own father, legendary composer Stanley Applebaum, at the end of his life. Dr. Applebaum recognizes caregivers for who they truly are: invaluable healthcare team members. Offering critical insight and takeaways, Stand By Me is an essential resource throughout your caregiving journey\"-- Provided by publisher.
Book
Retooling for an Aging America
As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs.
Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides.
Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs.
eBook
Correction: Quality of life and its social determinants for patients with schizophrenia and family caregivers in Cambodia
[This corrects the article DOI: 10.1371/journal.pone.0229643.].
Journal Article
The Caring Self
According to the Bureau of Labor Statistics, there were approximately 1.7 million home health aides and personal and home care aides in the United States as of 2008. These home care aides are rapidly becoming the backbone of America's system of long-term care, and their numbers continue to grow. Often referred to as frontline care providers or direct care workers, home care aides-disproportionately women of color-bathe, feed, and offer companionship to the elderly and disabled in the context of the home. InThe Caring Self, Clare L. Stacey draws on observations of and interviews with aides working in Ohio and California to explore the physical and emotional labor associated with the care of others.
Aides experience material hardships-most work for minimum wage, and the services they provide are denigrated as unskilled labor-and find themselves negotiating social norms and affective rules associated with both family and work. This has negative implications for workers who struggle to establish clear limits on their emotional labor in the intimate space of the home. Aides often find themselves giving more, staying longer, even paying out of pocket for patient medications or incidentals; in other words, they feel emotional obligations expected more often of family members than of employees. However, there are also positive outcomes: some aides form meaningful ties to elderly and disabled patients. This sense of connection allows them to establish a sense of dignity and social worth in a socially devalued job. The case of home care allows us to see the ways in which emotional labor can simultaneously have deleterious and empowering consequences for workers.
eBook
Sessualità in età evolutiva
The development of a satisfying sexuality is the result of a continuous and dynamic process leading from the influence of a complex interaction of biological, psychological and social factors.
Journal Article
UNDERSTANDING THE MEANING OF CARE: FROM THE PERSPECTIVE OF SPOUSE CAREGIVERS OF PEOPLE WITH PARKINSON’S DISEASE
Abstract
Parkinson’s disease is a highly prevalent geriatric disease in people aged 60 years and over. Parkinson’s disease can largely affect an individual’s life because it causes diverse motor and non-motor symptoms. As symptoms worsen, people with Parkinson’s disease are likely to become dependent, which can lead to caregiver burden. Therefore, the aim of this study is to understand the meaning of care in spouse caregivers who care for people with Parkinson’s disease. This study is a qualitative study using face-to-face in-depth interviews. A total of 15 spouse caregivers (10 husbands and 5 wives) were recruited from a neurological outpatient clinic at a tertiary hospital in South Korea. Two trained nurses interviewed spousal caregivers, and thematic analysis was used for data analysis. In this study, four themes were identified: (a) symptom management, (b) struggling to care, (c) intimacy with one’s spouse, and (d) uncertainty of the future illness progress. People with Parkinson’s disease experienced at least more than one motor or non-motor symptoms. Physical function and lifestyle modification of people with Parkinson’s disease, caregivers’ positive attitude towards the care role, and intimate relationships were key factors of self-care. For caregivers, the progression of disease was the major concern of care. Given that the number of older households is increasing in Asia, it is important to understand older spouse caregivers’ perspective for care of people with Parkinson’s disease. By understanding their needs and difficulties, healthcare providers can build further plans for them.
Journal Article
PROMISING POLICY AND PRACTICE SUPPORTING FAMILY CAREGIVERS AND RECOMMENDATIONS FOR THE FUTURE
Abstract
There have been significant federal and state policy developments since the 2019 update of Valuing the Invaluable. Many inroads have been made in recognizing and supporting family caregivers, but additional steps can be taken at the federal and state levels, and even in the private sector. The National Strategy to Support Family Caregivers, released in September 2022, lays out a unified approach in five organizing goals to achieving this improvement in support for family caregivers. The policy and practice recommendations highlighted in the Valuing the Invaluable: 2023 Update reflect the National Strategy goals. In this presentation, recent policy changes will be summarized that support caregivers and their care recipients in the health care and LTSS systems, which provide financial relief for caregiving, and help working caregivers stay in the workforce. Then the increasing visibility of the family caregiving experience in media and the arts will be explored. This visibility is essential for bringing broader attention to all aspects of caregiving, normalizing the care experience, and eliminating stigma around disability and dementia. Lastly, policy recommendations for building on the National Strategy and bolstering support for family caregivers and care recipients will be detailed for discussion.
Journal Article