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"community engagement"
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Civic and Community Engagement among Poor Rural Women in Bihar: A Pilot Study
Civic and community engagement is often crucial for the successful development of rural areas and a catalyst of personal transformation. This article examines changes in civic and community engagement among women in rural Bihar, India. Using an exploratory factor analysis of survey data from n = 815 respondents who participated in Heifer’s Values-Based Holistic Community Development [VBHCD] training, the study identifies three factors that constitute civic and community engagement. Next, the study assesses the efficacy of VBHCD’s impact on participants’ civic and community engagement relative to participants’ duration in the program and type of self-help group. The results indicate that pass-on groups are more civically active in their community than original groups. However, civic and community engagement wanes over the course of participation in Heifer’s intervention. L’engagement civique et communautaire est souvent crucial pour le développement de zones rurales tout en étant un catalyseur de transformation personnelle. Cet article examine les changements dans l’engagement civique et communautaire parmi des femmes en milieu rural dans l’État du Bihar en Inde. Au moyen d’une analyse factorielle exploratoire de données provenant de n = 815 répondantes ayant participé à une formation au développement communautaire holistique fondé sur des valeurs éthiques créée par Heifer, cette étude identifie trois facteurs sous tendant l’engagement civique et communautaire. Ensuite, elle évalue l’impact de la formation suivie par les participantes sur leur engagement civique et communautaire relatif au temps passé à suivre la formation et au type de groupe d’entraide. Les résultats indiquent que les groupes ayant suivi cette formation jouent un plus grand rôle civique dans leurs communautés que les groupes originaux. Cependant, plus les participantes passent de temps dans l’intervention de Heifer, plus leur engagement civique et communautaire s’amoindrit.
Journal Article
Community Engagement Within the Evaluation of Public Policies for Zoonotic Spillover Prevention: A Secondary Matrix Analysis
Despite the overall health, economic, and social costs of zoonotic spillover, its impacts are not felt equally around the globe. Engaging local communities in primary spillover prevention may help to better ensure equity is considered in research and policy-making activities. Our study aimed to gain an understanding of how and at what level community engagement (CE) has been incorporated into the evaluation of public policies for zoonotic spillover prevention. We conducted a secondary analysis on an existing dataset from a systematic review, beginning with a structured deductive content analysis. A secondary matrix of analysis was engaged using an adapted CE tool for screening the included articles based on their level of CE. We then characterized relevant themes based on the CE elements within the included articles. Of the 95 articles included, 55 had no level of CE reported. Among the included articles that had some level of CE, elements included the platforming of community consultation, community training for involvement in spillover prevention research, cultural and language considerations being engaged, community protection and awareness programmes for public health and biosecurity, and community-centered data collection processes being engaged. Our findings highlight the persistent equity gaps in appropriately engaging affected communities within the evaluation of public policies for spillover prevention.
Journal Article
Enhancing translational researchers’ ability to collaborate with community stakeholders: Lessons from the Community Engagement Studio
Community engagement is considered essential to effectively translate research into practice and is increasingly recognized as a key to successful clinical trial recruitment. Challenges to engaging community stakeholders in research persist and new methods are needed to facilitate meaningful stakeholder involvement. The Community Engagement Studio (CE Studio), a consultative model, has been used at every stage of the research process. Best practices drawn from the model could inform other methods of engagement. Using a mixed-methods approach that included evaluation surveys, impact surveys and interviews, we assessed the CE Studio program. We analyzed data from 75 CE Studios; 65 researchers and 591 community members completed surveys and 10 researchers completed interviews. Surveys indicate that 100% of researchers would request a CE Studio in the future, and 99.3% of community members would participate in a CE Studio again. We identified 6 practices to enhance community engagement in clinical and translational research: early input, researcher coaching, researcher humility, balancing power, neutral facilitator, and preparation of community stakeholders. These best practices may enhance the quality of existing community engagement approaches and improve the effectiveness of translational researchers’ efforts to engage community stakeholders in their work.
Journal Article
Disaster Risk Reduction Regime in Japan: An Analysis in the Perspective of Open Data, Open Governance
This paper addresses open data, open governance, and disruptive/emerging technologies from the perspectives of disaster risk reduction (DRR). With an in-depth literature review of open governance, the paper identifies five principles for open data adopted in the disaster risk reduction field: (1) open by default, (2) accessible, licensed and documented, (3) co-created, (4) locally owned, and (5) communicated in ways that meet the needs of diverse users. The paper also analyzes the evolution of emerging technologies and their application in Japan. The four-phased evolution in the disaster risk reduction is mentioned as DRR 1.0 (Isewan typhoon, 1959), DRR 2.0 (the Great Hanshin Awaji Earthquake, 1995), DRR 3.0 (the Great East Japan Earthquake and Tsunami: GEJE, 2011) and DRR 4.0 (post GEJE). After the GEJE of 2011, different initiatives have emerged in open data, as well as collaboration/partnership with tech firms for emerging technologies in DRR. This paper analyzes the lessons from the July 2021 landslide in Atami, and draws some lessons based on the above-mentioned five principles. Some of the key lessons for open data movement include characterizing open and usable data, local governance systems, co-creating to co-delivering solutions, data democratization, and interpreting de-segregated data with community engagement. These lessons are useful for outside Japan in terms of data licensing, adaptive governance, stakeholder usage, and community engagement. However, as governance systems are rooted in local decision-making and cultural contexts, some of these lessons need to be customized based on the local conditions. Open governance is still an evolving culture in many countries, and open data is considered as an important tool for that. While there is a trend to develop open data for geo-spatial information, it emerged from the discussion in the paper that it is important to have customized open data for people, wellbeing, health care, and for keeping the balance of data privacy. The evolution of emerging technologies and their usage is proceeding at a higher speed than ever, while the governance system employed to support and use emerging technologies needs time to change and adapt. Therefore, it is very important to properly synchronize and customize open data, open governance and emerging/disruptive technologies for their effective use in disaster risk reduction.
Journal Article
Engagement science: The core of dissemination, implementation, and translational research science
Stakeholder engagement is acknowledged as central to dissemination and implementation (D&I) of research that generates and answers new clinical and health service research questions. There is both benefit and risk in conducting stakeholder engagement. Done wrong, it can damage trust and adversely impact study results, outcomes, and reputations. Done correctly with sensitivity, inclusion, and respect, it can significantly facilitate improvements in research prioritization, communication, design, recruitment strategies, and ultimately provide results useful to improve population and individual health. There is a recognized science of stakeholder engagement, but a general lack of knowledge that matches its strategies and approaches to particular populations of interest based on history and characteristics. This article reviews stakeholder engagement, provides several examples of its application across the range of translational research, and recommends that Clinical Translational Science Awards, with their unique geographical, systems, and historical characteristics, actively participate in deepening our understanding of stakeholder engagement science and methods within implementation and dissemination research. These recommendations include (a) development of an inventory of successful stakeholder engagement strategies; (b) coordination and intentionally testing a variety of stakeholder engagement strategies; (c) tool kit development; and (d) identification of fundamental motivators and logic models for stakeholder engagement to help align stakeholders and researchers.
Journal Article
Digital and virtual strategies to advance community stakeholder engagement in research during COVID-19 pandemic
Despite the adversity presented by COVID-19 pandemic, it also pushed for experimenting with innovative strategies for community engagement. The Community Research Advisory Council (C-RAC) at Johns Hopkins University (JHU), is an initiative to promote community engagement in research. COVID-19 rendered it impossible for C-RAC to conduct its meetings all of which have historically been in person. We describe the experience of advancing the work of the C-RAC during COVID-19 using digital and virtual strategies. Since March 2020, C-RAC transitioned from in person to virtual meetings. The needs assessment was conducted among C-RAC members, and individualized solutions provided for a successful virtual engagement. The usual working schedule was altered to respond to COVID-19 and promote community engaged research. Attendance to C-RAC meetings before and after the transition to virtual operation increased from 69% to 76% among C-RAC members from the community. In addition, the C-RAC launched new initiatives and in eighteen months since January 2020, it conducted 50 highly rated research reviews for 20 research teams. The experience of the C-RAC demonstrates that when community needs are assessed and addressed, and technical support is provided, digital strategies can lead to greater community collaborations.
Journal Article
Sustained Community Involvement in Translational Research: Evaluating the Acceptability of a Multisession Community Engagement Studio Approach
This study expands the Community Engagement Studio (CE Studio) approach to cultivate deeper, more sustained community involvement in translational research. While traditional CE Studios typically convene a single community expert panel for research input, this study extended the approach to host multiple sessions with multiple diverse panels over a two‐year period. The sessions were held virtually and were delivered by a Community Health Worker (CHW), who drew on deep community ties to also conduct strategic outreach, recruitment, and orientation of the panels to the CE Studio approach. The researchers seeking input from the CE Studio panels aimed to develop a health information platform accessible to underserved populations. Community experts participating in four CE Studio panels (African American, Asian American, and English and Spanish‐speaking Latinx communities) met on five occasions for a total of 20 CE sessions and completed a postparticipation survey (n = 15) and focus group (n = 16). Participants reported stronger bonds with the research institution and increased appreciation for the value of translational research because of their prolonged participation. The presence of a CHW was viewed as essential to trust‐building and sustained panel participation. The study highlights the role of diverse perspectives in shaping research design and technology development, emphasizing that investments in sustained community engagement can enhance the rigor of translational research. Attendance fluctuations and the pacing of sessions were challenges, especially during the pandemic. Nevertheless, the expanded CE Studio approach offers a promising framework for bridging gaps between academic institutions and historically marginalized communities.
Journal Article