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Beyond the HIPAA Privacy Rule
by
Medicine, Institute of
,
Services, Board on Health Care
,
Policy, Board on Health Sciences
in
Health
,
Medical records
,
Privacy, Right of
2009
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.
In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Research Methods for Memory Studies
2013
The first practical guide to research methods in memory studies. This book provides expert appraisals of a range of techniques and approaches in memory studies, and focuses on methods and methodology as a way to help bring unity and coherence to this new field of study.
Qualitative data : an introduction to coding and analysis
by
Silverstein, Louise B
,
Auerbach, Carl
in
Methodology
,
PSYCHOLOGY
,
Psychology -- Research -- Methodology
2003
Qualitative Data is meant for the novice researcher who needs guidance on what specifically to do when faced with a sea of information. It takes readers through the qualitative research process, beginning with an examination of the basic philosophy of qualitative research, and ending with planning and carrying out a qualitative research study. It provides an explicit, step-by-step procedure that will take the researcher from the raw text of interview data through data analysis and theory construction to the creation of a publishable work.
The volume provides actual examples based on the authors' own work, including two published pieces in the appendix, so that readers can follow examples for each step of the process, from the project's inception to its finished product. The volume also includes an appendix explaining how to implement these data analysis procedures using NVIVO, a qualitative data analysis program.
Food research
by
Brett, John
,
Chrzan, Janet
in
Agriculture & Food (see also POLITICAL SCIENCE
,
Agriculture & Food Policy
,
Anthropology
2017,2022
Biocultural and archaeological research on food, past and present, often relies on very specific, precise, methods for data collection and analysis. These are presented here in a broad-based review. Individual chapters provide opportunities to think through the adoption of methods by reviewing the history of their use along with a discussion of research conducted using those methods. A case study from the author's own work is included in each chapter to illustrate why the methods were adopted in that particular case along with abundant additional resources to further develop and explore those methods.
Quality of life : the assessment, analysis, and reporting of patient-reported outcomes
by
Machin, David
,
Fayers, Peter M.
in
Health status indicators
,
Lebensqualität
,
Outcome assessment (Medical care)
2016,2015
The assessment of patient reported outcomes and health-related quality of life continue to be rapidly evolving areas of research and this new edition reflects the development within the field from an emerging subject to one that is an essential part of the assessment of clinical trials and other clinical studies.
Statistical methods in medical research
by
Armitage, Peter
,
Berry, Geoffrey
,
Matthews, J. N. S
in
Biometry
,
Medicine
,
Medicine -- Research -- Statistical methods
2002,2001,2013
The explanation and implementation of statistical methods for the medical researcher or statistician remains an integral part of modern medical research. This book explains the use of experimental and analytical biostatistics systems. Its accessible style allows it to be used by the non-mathematician as a fundamental component of successful research.
Since the third edition, there have been many developments in statistical techniques. The fourth edition provides the medical statistician with an accessible guide to these techniques and to reflect the extent of their usage in medical research.
The new edition takes a much more comprehensive approach to its subject. There has been a radical reorganization of the text to improve the continuity and cohesion of the presentation and to extend the scope by covering many new ideas now being introduced into the analysis of medical research data. The authors have tried to maintain the modest level of mathematical exposition that characterized the earlier editions, essentially confining the mathematics to the statement of algebraic formulae rather than pursuing mathematical proofs.
Received the Highly Commended Certificate in the Public Health Category of the 2002 BMA Books Competition.
Clinical research in communication disorders : principles and strategies
by
Hegde, M. N. (Mahabalagiri N.)
,
Salvatore, Anthony P.
in
Communication Disorders
,
Medical Writing
,
Research Design
2021
This thoroughly updated fourth edition of Clinical Research in Communication Disorders: Principles and Strategies remains an instrumental resource for courses on research methods and design in communication disorders. The book is separated into three key sections: science and the scientific methods, clinical research designs, and doing, reporting, and evaluating research. Together, these sections provide thorough coverage of both the single-subject and group design strategies along with issues of measurement; philosophy of science; ethics of research; and planning, conducting, and reporting research. Instructors and students in communication sciences and disorders will appreciate the text's comprehensive coverage of scientific methods, group and single-subject research designs, report writing, and ethics of research in a single source.
Design and analysis of clinical trials : concepts and methodologies
by
Liu, Jen-pei
,
Chow, Shein-Chung
in
Clinical trials
,
Clinical trials -- Methodology
,
Clinical trials -- Statistical methods
2014,2013
Praise for the Second Edition:
\"...a grand feast for biostatisticians. It stands ready to satisfy the appetite of any pharmaceutical scientist with a respectable statistical appetite.\" —Journal of Clinical Research Best Practices
The Third Edition of Design and Analysis of Clinical Trials provides complete, comprehensive, and expanded coverage of recent health treatments and interventions. Featuring a unified presentation, the book provides a well-balanced summary of current regulatory requirements and recently developed statistical methods as well as an overview of the various designs and analyses that are utilized at different stages of clinical research and development. Additional features of this Third Edition include:
• New chapters on biomarker development and target clinical trials, adaptive design, trials for evaluating diagnostic devices, statistical methods for translational medicine, and traditional Chinese medicine
• A balanced overview of current and emerging clinical issues as well as newly developed statistical methodologies
• Practical examples of clinical trials that demonstrate everyday applicability, with illustrations and examples to explain key concepts
• New sections on bridging studies and global trials, QT studies, multinational trials, comparative effectiveness trials, and the analysis of QT/QTc prolongation
• A complete and balanced presentation of clinical and scientific issues, statistical concepts, and methodologies for bridging clinical and statistical disciplines
• An update of each chapter that reflects changes in regulatory requirements for the drug review and approval process and recent developments in statistical design and methodology for clinical research and development
Design and Analysis of Clinical Trials, Third Edition continues to be an ideal clinical research reference for academic, pharmaceutical, medical, and regulatory scientists/researchers, statisticians, and graduate-level students.
Examining the Health Disparities Research Plan of the National Institutes of Health
by
Williams, Monique B.
,
National Research Council (U.S.). Board on Health Sciences Policy. Committee on the Review and Assessment of the NIH's Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities
,
Institute of Medicine (U.S.)
in
Cultural Diversity
,
Cultural Diversity -- United States
,
Evaluation
2006
In the United States, health among racial and ethnic minorities, as well as poor people, is significantly worse than the overall U.S. population. Health disparities are reflected by indices such as excess mortality and morbidity and shorter life expectancy. Examining the Health Disparities Research Plan of the National Institutes of Health is an assessment of the National Institutes of Health (NIH) Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities. It focuses on practical solutions to remedy the state of the current health disparity crisis.
The NIH has played the leading role in conducting extensive research on minority health and health disparities for more than two decades. Although additional research is critical to facilitating a better understanding of the overarching social, economic, educational, and environmental factors that predispose groups to specific diseases and conditions, there is also a great need to translate the existing and new information into best care practices. This means increasing communication with affected populations and their communities. Examining the Health Disparities Research Plan of the National Institutes of Health presents solutions to improving the health disparities nationwide and evaluates the NIH strategy plan designed to actively correct and combat the ongoing health disparities dilemma.
Qualitative research in health care
by
Pope, Catherine
,
Mays, Nicholas
in
Medical care
,
Medical care -- Research -- Methodology
,
Public health
2020,2019
Provides the essential information that health care researchers and health professionals need to understand the basics of qualitative research Now in its fourth edition, this concise, accessible, and authoritative introduction to conducting and interpreting qualitative research in the health care field has been fully revised and updated. Continuing to introduce the core qualitative methods for data collection and analysis, this new edition also features chapters covering newer methods which are becoming more widely used in the health research field; examining the role of theory, the analysis of virtual and digital data, and advances in participatory approaches to research. Qualitative Research in Health Care, 4th Edition looks at the interface between qualitative and quantitative research in primary mixed method studies, case study research, and secondary analysis and evidence synthesis. The book further offers chapters covering: different research designs, ethical issues in qualitative research; interview, focus group and observational methods; and documentary and conversation analysis. A succinct, and practical guide quickly conveying the essentials of qualitative research Updated with chapters on new and increasingly used methods of data collection including digital and web research Features new examples and up-to-date references and further reading The fourth edition of Qualitative Research in Health Care is relevant to health care professionals, researchers and students in health and related disciplines.