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Aim To evaluate the effects of a person‐centred and thriving‐promoting intervention on nursing home residents´ experiences of thriving and person‐centredness of the environment, and to evaluate if the effects varied between female and male residents. Design A multi‐centre, non‐equivalent controlled group before‐after intervention design. Methods Six nursing homes in Australia, Norway and Sweden were allocated to either intervention or control group. The intervention comprised a staff educational programme. A survey using proxy‐ratings by staff was administered before (T0), immediately after (T1) and six months after (T2) the intervention. The sample varied between 205 and 292 residents. Linear regression models were used to explore effects. Results Statistically significant effects were found on experiences of thriving and person‐centredness of the environment. These effects were significant for male residents but not for female residents. The results emphasize the importance of individually tailored social and recreational activities.

Introduction The introduction of effective, evidence‐based approaches to centredness in health care is hindered by the fact that research results are not easily accessible. This is partly due to the large volume of publications available and because the field is closely linked to and in some ways encompasses adjoining fields of research, for example, shared decision making and narrative medicine. In an attempt to survey the field of centredness in health care, a systematic overview of reviews was conducted with the purpose of illuminating how centredness in health care is presented in current reviews. Methods Searches for relevant reviews were conducted in the databases PubMed, Scopus, Cinahl, PsychINFO, Web of Science and EMBASE using terms connected to centredness in health care. Filters specific to review studies of all types and for inclusion of only English language results as well as a time frame of January 2017–December 2018, were applied. Results The search strategy identified 3697 unique reviews, of which 31 were included in the study. The synthesis of the results from the 31 reviews identified three interrelated main themes: Attributes of centredness (what centredness is), Translation from theory into practice (how centredness is done) and Evaluation of effects (possible ways of measuring effects of centredness). Three main attributes of centeredness found were: being unique, being heard and shared responsibility. Aspects involved in translating theory into practice were sufficient prerequisites, strategies for action and tools used in safeguarding practice. Further, a variety and breadth of measures of effects were found in the included reviews. Conclusions Our synthesis demonstrates that current synthesized research literature on centredness in health care is broad, as it focuses both on explorations of the conceptual basis and the practice, as well as measures of effects. This study provides an understanding of the commonalities identified in the reviews on centredness in healthcare overall, ranging from theory to practice and from practice to evaluation. Patient or Public Contribution Patient representatives were involved during the initiation of the project and in decisions about its focus, although no patient or public representatives made direct contributions to the review process.

Aim To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long‐term conditions. Design A qualitative descriptive study design. Methods Semi‐structured individual interviews were conducted with 15 persons with long‐term condition/s who experienced outpatient treatment or follow‐up care. Data were explored through inductive thematic analysis. The COREQ checklist was followed. Results The analysis revealed five themes: adapting and self‐managing in daily life, handling and carrying information, building trust and continuity, acting in a flexible and transparent dialogue and sharing the way forward. The participants described their personal and informal resources, and their actions to take control and manage health and well‐being. A person‐centred approach, sharing of knowledge and communication skills enabled the development of trust in the healthcare providers and their treatment and care. Communication was facilitated through availability, shared documentation, continuity and coordination of care. Collaboration was described as a flexible dialogue with mutual trust and transparency, shared learning and problem‐solving. Sharing the way forward was a process, alongside and important to the life‐changing process to cope with the illness. Conclusions Prerequisites for the collaboration in outpatient settings were availability, continuity and a healthcare system that acknowledged, empowered and adapted to patients' health status, resources, everyday life and a patient's coping processes to manage their disease. For a co‐created, person‐centred outpatient care, it is important to acknowledge and/or collaborate with the patient's team of other healthcare providers and informal caregivers. Relevance to Clinical Practice The study contributes to better understanding of patient preferences and prerequisites how to work in partnership and how to develop future services and person‐centred care for persons living with long‐term conditions. Patient and Public Contribution Patients included in this study were participants during the data collection process.

The aim of the study was to evaluate a technological solution in the form of an App to implement and measure person-centredness in nursing. The focus was to enhance the knowledge transfer of a set of person-centred key performance indicators and the corresponding measurement framework used to inform improvements in the experience of care. The study used an evaluation approach derived from the work of the Medical Research Council to assess the feasibility of the App and establish the degree to which the App was meeting the aims set out in the development phase. Evaluation data were collected using focus groups (n = 7) and semi-structured interviews (n = 7) to capture the impact of processes experienced by participating sites. The study was conducted in the UK and Australia in two organizations, across 11 participating sites. 22 nurses from 11 sites in two large health care organizations were recruited on a voluntary basis. Implementing the KPIs and measurement framework via the APP through two cycles of data collection. The main outcome was to establish feasibility in the use of the App. The majority of nurse/midwife participants found the App easy to use. There was broad consensus that the App was an effective method to measure the patient experience and generated clear, concise reports in real time. The implementation of the person-centred key performance indicators using the App enhanced the generation of meaningful data to evidence patient experience across a range of different clinical settings.

Background: AQuA is an NHS organisation working with providers and commissioners of health and social care in North West England. AQuA has demonstrated commitment to the role of experience of care and engagement of patients’ in evaluating and improving healthcare since 2013. This led to the development our Lived Experience Panel.  The panel comprises  people with current experience of health and social care. Their role is evolving as we develop our understanding and commitment. The panel have been supported in their development with coaching and training. The panel is accepted and valued by AQuA and membership organisations and their skills utilised to shape and develop coproduced improvement activity They have developed into an active team and have corporate roles as well as at programme level and consultancy. A key milestone for the panel was achieving  executive level engagement and commitment towards the complex work required to influence corporate culture, and embed coproduction in performance metrics .               This enabled the panel to influence improvement work from design through to delivery and evaluation. Over time there has been a shift in the panel’s focus from exploring the contribution of patient experience and engagement to supporting and promoting co-design, coproduction and person centred care Activities within our work include designing and delivering training, engagement activities, and roles on steering groups. AQuA members are now recognising the work of panel with specific requests for work of the panel around transformation of services and development of staff. Our next planned steps is to develop a pool of lived experience affiliates for AQUA who will support  more health and social care organisations to develop lived experience into their strategic plans, and QI activity through  mentoring roles and the continued development support. A principle aim is to support the engagement and empowerment of people to become partners in care, moving from theory to practice and learning from people´s experience By supporting how systems understand shared values the panel seeks to enable cultural shift towards a more collaborative approach. A key role in this is supporting system leaders to define measures that matter to people Aims and Objectives: Describe the panel development Discuss the relationships required for coproduction Explore the work of the panel in coproduction and quality improvement in whole system transformation Discuss opportunities and challenges of coproduction. Format: 5       Target audience: This work is of interest to all leaders, staff and patients committed to embedding coproduction within the services they deliver, teach or commission.  Learnings/Take away: Coproduction in improvement isn’t always easy but reaps great benefits Top tips and tools that we’ve found useful

Aim To explore the outcomes of testing an analogue game to incorporate person‐centredness and peer dialogues in group‐based diabetes education targeting people with diabetes. Design Realist evaluation using quantitative and qualitative methods to explore context, mechanisms and outcomes of the intervention. Methods In March–July 2019, the game was tested among 76 people with type 2 diabetes and 17 professionals in 19 settings across nine Danish municipalities. Data consisted of game tests, interviews and questionnaires. Data were analysed using systematic text condensation and descriptive statistics. Results Outcomes of using the game were as follows: (a) a playful atmosphere; (b) active engagement; c) reflections on diabetes‐specific experiences; (d) focused dialogues; (e) professionals gaining insight into the needs of participants; and (f) professionals experiencing peer dialogue as important to incorporate into education. Questionnaire responses showed that 92% people with diabetes and 94% professionals found that the game incorporated person‐centredness and peer dialogues into education.

Background Ensuring the transition towards person-centred care is a growing focus in health and social care systems globally. Presented as an ethical framework for health and social care professionals, such a transition requires strong leadership and organisational changes. However, there is limited guidance available on how to assist health and social care leaders in promoting person-centred practices. In response to this, the Swedish Association of Health Professionals and the University of Gothenburg Centre for Person-Centred Care collaborated to develop an educational programme on person-centred leadership targeting health and social care leaders to support the transition towards person-centred care in Sweden. The aim with this study was to explore programme management members’ experiences from the development and realisation of the programme. Methods Focus group discussions were conducted, involving 12 members of the programme management team. Data from the discussions were analysed using a structured approach with emphasis the collaborative generation of knowledge through participant interaction. Results The analysis visualises the preparations and actions involved in programme development and realisation as a collaborative endeavour, aimed at integrating leadership and person-centred ethics in a joint learning process. Participants described the programme as an ongoing exploration, extending beyond its formal duration. Leadership was thoughtfully interwoven with person-centred ethics throughout the programme, encompassing both the pedagogical approach and programme curriculum, to provide leaders with tangible tools for their daily use. Conclusions According to our analysis, we conclude that a person-centred approach to both development and realisation of educational initiatives to support person-centred leadership is essential for programme enhancement and daily implementation of person-centred leadership. Our main message is that educational initiatives on the application of person-centred ethics is an ongoing and collaborative process, characterised by an exchange of ideas and collective efforts.

Aim The aim of this study was to translate and culturally adapt the PCPI‐S into German and to eventually test its psychometric properties in long‐term care settings. Background Person‐centred practice has been widely adopted internationally as a best‐practice model in nursing and health care. To ensure a sustainable implementation of this practice and to successively promote it, person‐centred practice should be evaluated on a regular basis. The Person‐centred Practice Inventory—Staff (PCPI‐S), which is based on McCormack & McCance's Person‐centred Practice Framework, is a new instrument for this purpose by assessing perceptions of person‐centredness among healthcare staff. Design A two‐phase research design was used involving the translation and cultural adaption of the PCPI‐S from English to German (PCPI‐S‐G; Phase 1) and a quantitative cross‐sectional survey (Phase 2). Methods Construct validity was evaluated using confirmatory factor analysis (CFA), and internal consistency was calculated using Cronbach's α. Results Phase 1 was conducted using an internationally recommended checklist for translations and cultural adaptations. In Phase 2, the PCPI‐S‐G was tested in 15 residential care homes in Austria with a sample of 255 staff members. The CFA showed good construct validity and supported the theoretical framework. The internal consistency for the three constructs of the PCPI‐S was excellent, revealing Cronbach's α‐scores from 0.902–0.941.

Background Person‐centredness is important in delivering care for long‐term conditions. New models of care aim to co‐ordinate care through integration of health and social care which require new ways of working, often remotely from the patient. Objective To describe how person‐centred care is enacted within multidisciplinary groups (MDGs) created as part of a new service, integrating health and social care for older people. Methods We followed the implementation of eight neighbourhood MDGs, observing and interviewing staff from three MDGs at different phases of programme implementation using semi‐structured topic guides. Results Thirty‐four MDG meetings were observed and 32 staff interviewed. Three core themes were identified which impacted on enactment of person‐centred care: the structural context of MDGs enabling person‐centred care; interaction of staff and knowledge sharing during the MDG meetings; and direct staff involvement of the person outside the MDG discussion. Conclusions This study provides new insights into attempts to enact person‐centred care within a new model of service delivery. Teams did what they could to enact person‐centred care in the absence of the “real” patient within MDG meetings. They were successful in delivering and co‐ordinating some aspects of care (eg prompting medication reviews, referring to social worker, health improvement and arranging further multidisciplinary team meetings for complex cases). This “absence of patients” and time pressures within the MDGs led to reliance on the “virtual” record, enhanced by additional “soft” knowledge provided by staff, rather than ensuring the patient's voice was included.