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Pass the tissue: restoring researcher access to legal human donations
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Journal Article
Pass the tissue: restoring researcher access to legal human donations
2025
Overview
The sensitivity of human tissue and previous instances of misuse have, rightfully, led to the introduction of far-reaching oversight and regulatory mechanisms for accessing, storing and sharing samples. However, these restrictions, in tandem with more broad-based privacy regulations, have had the unintended consequence of obstructing legitimate requests for medical materials. This is of real detriment to ambitions for biomedical research, most notably the precision medicine agenda. As such, this paper makes the case for facilitating authorised researcher access to human tissue and associated data along practical medical ethics lines, detailing how liberating samples from unfit regulations, re-evaluating biobanks, diversifying considerations for donor benefit-risk, future proofing donor consent and flattening hierarchies of donation acceptability equate to a more cohesive and respectful means of managing biological samples and information than is achieved at present.
Publisher
BMJ Publishing Group Ltd and Institute of Medical Ethics,BMJ Publishing Group LTD,BMJ Publishing Group
Subject
/ Access
/ Biobanks
/ Biological Specimen Banks - ethics
/ Biological Specimen Banks - legislation & jurisprudence
/ Biomedical Research - ethics
/ Biomedical Research - legislation & jurisprudence
/ Confidentiality - legislation & jurisprudence
/ Consent
/ Donors
/ Ethics
/ Humans
/ Informed Consent - legislation & jurisprudence
/ Medicine
/ Patients
/ Policy
/ Privacy
/ Research Personnel - legislation & jurisprudence
/ Tissue and Organ Procurement
/ Tissue and Organ Procurement - ethics
/ Tissue and Organ Procurement - legislation & jurisprudence
/ Tissue Donors - legislation & jurisprudence
/ Tissues
