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Hard lessons: learning from the Charlie Gard case
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Hard lessons: learning from the Charlie Gard case
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Journal Article
Hard lessons: learning from the Charlie Gard case
2018
Overview
[...]that experimental treatments should potentially be embarked upon without delay. 9 In Charlie's case, it is ironic that delayed decision-making means that he could have received nucleoside treatment months ago, and by the time the case was finally concluded in court it would have been possible to assess if it had led to any improvement, or not. [...]there are of course limits to aggressively offering experimental treatment, particularly where the side effects of treatment may make it highly likely not to be in the individual's interests. Is there an alternative? Because of the formidable epistemic and normative challenges in determining when treatment is futile, 12 one solution in some jurisdictions has been to focus on developing a fair and legally supported due process for decision-making. 13 14 There are two key components to this process that could and arguably should be adopted in the UK for future disputes about treatment. [...]they are to have 'sympathetic knowledge… of those human interests which, by conflicting in particular cases, give rise to the need to make a moral decision'.
Publisher
BMJ,BMJ Publishing Group LTD
Subject
/ Disabled Children - legislation & jurisprudence
/ Dissent and Disputes - legislation & jurisprudence
/ Ethics
/ Human Rights - legislation & jurisprudence
/ Humans
/ Infant
/ Male
/ Medical Futility - legislation & jurisprudence
/ Professional-Family Relations - ethics
/ Terminally Ill - legislation & jurisprudence
/ Tourism
