Journal Article

Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation

Van Hecke, Amy Vaughan, Karst, Jeffrey S.

2012

Overview

Raising a child with an autism spectrum disorder (ASD) can be an overwhelming experience for parents and families. The pervasive and severe deficits often present in children with ASD are associated with a plethora of difficulties in caregivers, including decreased parenting efficacy, increased parenting stress, and an increase in mental and physical health problems compared with parents of both typically developing children and children with other developmental disorders. In addition to significant financial strain and time pressures, high rates of divorce and lower overall family well-being highlight the burden that having a child with an ASD can place on families. These parent and family effects reciprocally and negatively impact the diagnosed child and can even serve to diminish the positive effects of intervention. However, most interventions for ASD are evaluated only in terms of child outcomes, ignoring parent and family factors that may have an influence on both the immediate and long-term effects of therapy. It cannot be assumed that even significant improvements in the diagnosed child will ameliorate the parent and family distress already present, especially as the time and expense of intervention can add further family disruption. Thus, a new model of intervention evaluation is proposed, which incorporates these factors and better captures the transactional nature of these relationships.

• Publisher: Springer US,Springer,Springer Nature B.V
• Subject: Adaptation, Psychological / Adolescent / Adult / Anxiety / Autism / Behavior Problems / Behavior Therapy - methods / Behavioral Science and Psychology / Caregivers / Caregivers - psychology / Child / Child and School Psychology / Child Development Disorders, Pervasive - psychology / Child Development Disorders, Pervasive - therapy / Child Rearing / Children / Divorce / Early Intervention (Education) - methods / Family (Sociological Unit) / Family counseling / Family Relations / Financial Problems / Humans / Intervention / Longitudinal Studies / Mental Health / Parent Participation / Parent-Child Relations / Parenting - psychology / Parents / Parents & parenting / Parents - education / Parents - psychology / Pervasive Developmental Disorders / Physical Health / Program Evaluation / Psychology / Self Efficacy / Sibling Relations / Social Sciences / Social Support / Stress / Stress, Psychological / Time / Well Being