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Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study
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Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study
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Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study
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Journal Article
Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study
2023
Overview
Aims
Having a child with congenital heart disease (CHD) can affect parental health-related quality of life (HR-QoL). We investigated the long-term trajectories of mental HRQoL (m-HRQoL) in mothers of children with CHD and examined risk factors for persistent low m-HRQoL.
Methods
One hundred twenty-five mothers of children with CHD completed a standardized questionnaire on m-HRQoL (mental subscale SF-12) after the children’s first open-heart surgery and subsequently when the children were 1, 4, 6, 10, and 13 years old. A z-score for m-HRQoL was calculated with national norms. Latent class growth analysis (LCGA) was used to identify subgroups of mothers with regards to their m-HRQoL trajectories over time. Regression analysis investigated predictors for chronically low m-HRQoL.
Results
Compared to norms, mothers of children with CHD had significantly lower m-HRQoL immediately after open-heart surgery (
β
= −0.30 (
CI-95:
−0.44, −0.15)). Subsequently, m-HRQoL increased to a normal level (m-HRQoL compared to the norm from 1 to 13 years:
β
ranges between 0.05 and 0.27). LCGA revealed two distinct groups of m-HRQoL trajectories: A group with normal m-HRQoL (75% of mothers,
means
z-scores range between − 0.76 and 0.62) and a group with chronically low m-HRQoL (25% of mothers,
mean z-scores
range between −1.32 and −0.10). Chronically, low m-HRQoL was associated with poorer social support (
OR
= 3.39 (
CI-95:
1.40, 8.49),
p
= 0.008) but not with parental education, migration background, number of open-heart surgeries, diagnosis of a univentricular CHD, or low IQ.
Conclusion
A quarter of mothers of children with CHD have chronically low m-HRQoL throughout their child’s development, especially those mothers with poor social support. Further studies of family-oriented approaches are needed to identify and support these mothers and reinforce parental well-being.
Publisher
Springer International Publishing,Springer Nature B.V
